CELIAC Archives

Celiac/Coeliac Wheat/Gluten-Free List

CELIAC@LISTSERV.ICORS.ORG

Options: Use Forum View

Use Monospaced Font
Show Text Part by Default
Condense Mail Headers

Message: [<< First] [< Prev] [Next >] [Last >>]
Topic: [<< First] [< Prev] [Next >] [Last >>]
Author: [<< First] [< Prev] [Next >] [Last >>]

Print Reply
Date:
Wed, 15 Mar 2000 20:31:45 -0600
Subject:
From:
Ben Bradshaw <[log in to unmask]>
Parts/Attachments:
text/plain (51 lines)
<<Disclaimer: Verify this information before applying it to your situation.>>

Thanks to all who responded to my first post to the list.  My post described
various symptoms, but was focused primarily on a 6 month long pain on the
right side of my head.  Here is a quick summary, and a follow-up:

In five days, I got a total of 48 responses.

At least 90% of the responses were from people who had experienced headaches
that were greatly improved upon going GF.  Some described headaches that
were similar to mine, some not so similar.  Most called the headaches
Migraines, or "Migraine-type headaches".  Of the few that had not personally
experienced headaches, they presented research or examples of celiac related
headache.

About 25% suggested I get tested, but cautioned that I should look to find
the right kind of doctor or lab.

About 65% suggested that I self-test by trying the diet on a "what have you
got to lose" basis.

A common underlying theme in many of the responses was the feeling that most
MD's, even gastros, and especially allergists, really don't understand
celiac, and many don't seem to WANT to understand or accept it.  Nobody was
disrepectful towards the medical profession, but, well, I think you all know
what I mean.  I must say that my recent experiences with the modern trend
toward "specialization" has been that you are typically diagnosed before you
even walk in the door.  Each Specialty has their own pet theory and they
want to force you into their mold.  They all tell you to report back to them
and let them know how you are doing, but when I've tried, I got the feeling
they were not listening.  As one guy told me, "When all you have is a
hammer, everything looks like a nail".

Okay, enough whining about specialists.  Here is a report and follow-up
question:

After about 4 or 5 days of "easing" into a GF diet, I woke up with the
closest thing to no headache I had experienced in nearly 7 months!!  My wife
and I were so excited that we began really getting serious about the diet.
But alas, this morning, after two good days, the old pain is back just like
before.  I don't think I broke the diet, but I'm really not sure what is and
what is not GF or even exactly what things I might have an intolerance to.

Is there some sort of searchable database that would easily tell a new
person what is GF and what is not?  I've seen several lists of "Safe" and
"Forbidden" foods and /or additives, but I find myself trying to read a
bunch of indredients I can't remember and don't have any idea what to make
of them.  Help!

Ben Bradshaw

ATOM RSS1 RSS2