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Subject:
From:
P & E MCKINLAY <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Wed, 28 Jun 2000 09:37:15 +1200
Content-Type:
text/plain
Parts/Attachments:
text/plain (35 lines)
Hi Marie

Are you asking for a child or adult? Our daughter Sarah is five and a half
and takes baclofen tablets. It's dose is by weight. She weighs 17 kilograms
and has 15 mgs at night (1 & 1/2 10 mg tablets). If she is quite tight and
flingy in the mornings we give her another tablet. It takes the edge of her
tightness - and seems to have the added benefit of making her drowsy at
bedtime. Sarah has athetoid CP - bilateral hemiplegia (all limbs affected
but rather than being spastic quadriplegia she has more control with her
legs than she does her arms).

I note from your email address you are from New Zealand. Whereabouts? I
haven't come across anyone else on this list that has a child with CP from
NZ. (presuming your enquiry is about a child not adult)

You may also have noticed a lot of people on this list seem to have a
baclofen pump which is surgically placed under the skin. I have recently
seen a TV news item about this being used in Australia now but I don't think
it's made it to NZ yet.

Feel free to contact me if you think I can be of help.

Regards Elizabeth
Southland NEW ZEALAND


----- Original Message -----
From: "marie" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Wednesday, June 28, 2000 1:13 AM
Subject: hi all


> hi gang is any one on Baolofen  it is a pill  thank u marie

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