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Reply To: | St. John's University Cerebral Palsy List |
Date: | Sun, 14 Mar 1999 23:54:12 -0500 |
Content-Type: | text/plain |
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Hello Mr. Oliver.Gernand,
I would like to welcome you to the CP list. I am a 20 year old male with
Cerebral Palsy. I went to the Peto Institute in the summer of 85, and again
in 86. At that time I lived close to Frankfurt Germany in the town of
Bruchköbel, not far away from Hanau.
In Regards to your son, I highly recommend the Peto Institute. I do not
know what kind of information you are looking for so I will only give you a
quick over view of my experiences. If you would like more information
please e mail me either through the list or privately either way is fine.
Please note even though I did live in Germany I can only right in English.
When I went on a tour of the Peto Institute in the early part of 85, I was
amazed at what I saw. Children learning how to walk with canes and or
braces. My parents and I were later taken to the director of the Peto
Institute Dr. Harri. I can remember she asking me (in German) whether I
wanted to learn how to walk. I remember answering her with a clear yes.
As for the therapy itself I can tell you it involves a very tough schedule.
The day starts at 6:00 and goes to 5 in the evening. You spend the entire
day doing all kinds of exercises. From very early on they wanted me to be
on my feet. I can remember at first only walking very short distances with
a therapist right behind me putting pressure on my knees to keep me from
going down on my knees. As time went on I can remember walking up and down
floors for exercise. This was amazing. Before going to the Peto Institute
I had to be carried everywhere. It should be said however all individuals
are effected differently by CP, so the results are not the same.
As for your boy, I do not know how bad the CP is, nor am I doctor so it is
impossible to say what the results will be. I think it is a positive that
you are considering "Petö" therapy so early. Be prepared however that
therapy is a long process. I had a friend at the institute that had been
going there for years, but at the end he could walk on his own.
As for my case I cried constantly wanting to go home. But I do not know why
I started crying. I think I was to little to understand what I was doing
there, but I was "big enough" to understand I didn't like it. Needless to
say we left after the second attempt. I am sure if I would have stayed I
would be walking on my own now. Leaving the Peto Institute was a big
mistake. But there is no point in me looking backward at the choices my
parents and I made. Don't make the same mistake.
Jan
PS: If you have trouble understanding this letter please e mail me
privately at: [log in to unmask] and I will give it to my dad who will
translate it for you in german.
"Oliver.Gernand" wrote:
> Hi all,
>
> my name is Oliver Gernand and I am a new member to this list server. I
> have a 17 months old son, who unfortunately suffers from CP. His name is
> Can Taylan (which is Turkish, first word meaning for "life") and he has
> been getting Bobath therapy for the past 9 months or so. We will be
> going to Budapest, Hungary during April for a 3-week look at the
> so-called "Petö" therapy.
>
> If anyone has any experiences with this kind of therapy then your
> feedback would be highly appreciated.
>
> Thanks a lot in advance and best regards, OG
>
> P.S.: Apologies if this is an inappropiate way of contact the list, but
> I did not find any reference to a FAQ section anywhere. If there is one,
> then please provide this as well.
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