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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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Wed, 28 Jun 2000 11:40:57 +1200
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hi Elizabeth
i am going to be on it tomorrow if u want towrite to mye at any time plz do
marie
-----Original Message-----
From: P & E MCKINLAY <[log in to unmask]>
To: [log in to unmask] <[log in to unmask]>
Date: Wednesday, 28 June 2000 09:37
Subject: Re: hi all


>Hi Marie
>
>Are you asking for a child or adult? Our daughter Sarah is five and a half
>and takes baclofen tablets. It's dose is by weight. She weighs 17 kilograms
>and has 15 mgs at night (1 & 1/2 10 mg tablets). If she is quite tight and
>flingy in the mornings we give her another tablet. It takes the edge of her
>tightness - and seems to have the added benefit of making her drowsy at
>bedtime. Sarah has athetoid CP - bilateral hemiplegia (all limbs affected
>but rather than being spastic quadriplegia she has more control with her
>legs than she does her arms).
>
>I note from your email address you are from New Zealand. Whereabouts? I
>haven't come across anyone else on this list that has a child with CP from
>NZ. (presuming your enquiry is about a child not adult)
>
>You may also have noticed a lot of people on this list seem to have a
>baclofen pump which is surgically placed under the skin. I have recently
>seen a TV news item about this being used in Australia now but I don't
think
>it's made it to NZ yet.
>
>Feel free to contact me if you think I can be of help.
>
>Regards Elizabeth
>Southland NEW ZEALAND
>
>
>----- Original Message -----
>From: "marie" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Wednesday, June 28, 2000 1:13 AM
>Subject: hi all
>
>
>> hi gang is any one on Baolofen  it is a pill  thank u marie
>

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