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"St. John's University Cerebral Palsy List" <[log in to unmask]>
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From:
Betty Alfred <[log in to unmask]>
Date:
Fri, 28 Apr 2000 13:04:22 EDT
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Hey Anee,

Glad to see that CPIC is getting so many hits, it really is a great site too.
 It's good that people recognize your phenomenal greatness.

Sorry to hear about your grandfather's situation Anee.  This sounds very
serious for him.  I also hope you can find a peaceful way to counter unfair
expectations your family might have of you.

Congratulations to your brother, and best wishes to his lovely bride.  Don't
worry about the dress though.  Only everybody you know will see you in it,
and a hundred years from now it won't make any difference.  There now, don't
you feel better?

Love ya!



In a message dated 04/28/2000 10:30:08 AM Eastern Daylight Time, [log in to unmask]
writes:

<< HI everyone-

 Just to let you know I am still alive.  LOL.  When I saw the messeges about
 CPIC on the list I thought I had better send my friends a note. I have been
 very bussy because my brother is getting maried in July--and I am in the
 wedding.  Oh the bridesmaid dress is aful -- open back, sleevles need i say
 more?   On top of that my mother's father has been in the hospital since
 Febuary after haveing a third heart atack he has had a number of coplications
 and somehow my mother thinks that I am some kind of medical advisor or
 something and keeps calling me up and telling me about all the stuff that is
 happening---let me tell you at this point thay have at least 3 good resons to
 sue if they want.  It's jsut rediculous. And now she has decided that I am
 going to handel all the ADL stuff when he gets home (she is assuming he will
 get home) because the PTs and OTs "arn;t doing anything".  I told her--- mom
 I am not qualifed to do this.  I did go ahead and order a Jay2 cussion for
 them.  The thing is that I am not expereinced in gerontology/cardiac rehab
 like I am in nuromusklor matters and the two are very diffrent on top of
 which I don;t actually have cirtification in anything.  Plus I am doing this
 from 2000 miles away.  This really is not  a good situtation.

 CPIC is troting on along--over 2000 hits in one month!.  I am going to add
 some stuff to it today in fact.  The url for CPIC is
 http://www.geocities.com/aneecp/CPIC.html  In upcoming weeks I will be adding
  an article on TENS to go along with our TES/FES article and also I will be
 adding an article on Life Expectency and CP.  And of course I am always
 looking for ideas so if you think on anything you woould like to see on CPIC
 let me know.

 Yours,

 Anee Stanford >>

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