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Subject:
From:
Shawn Carolan-Abell <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sun, 27 Feb 2000 11:54:11 -0800
Content-Type:
text/plain
Parts/Attachments:
text/plain (75 lines)
The drug options I know of are robinal and scopoline sp? patches.  They are
systemic drugs-the one made my daughter very pasty and tired. Shawn

>where can i obtain more information about this? i live in Argentina( so
>far..) and work with handicapped children.Saliva is always a problen in
>their social issues.i have read long time ago about some kind of salt in UK,
>that might reduce the excessive effects, do you know something about this?
>i appreciate all the information you can give. Thanks! annie the pt
>-----Original Message-----
>De: Jim Challenor <[log in to unmask]>
>Para: [log in to unmask] <[log in to unmask]>
>Fecha: Domingo 27 de Febrero de 2000 04:38
>Asunto: Re: intro and salivary gland reduction
>
>
>>Hi Shawn,
>>
>>I have a son with major CP (simple description, saves me time when
>>writing).  Kristofer is 10 is attending mainstream school and has just
>>started grade 5 this year.  He cannot talk and has a lot of trouble with
>>communication for many reasons.
>>
>>A number of years ago we stopped feeding Kristofer orally and moved to a
>>peg and Gtube/button.  However after moving this way he continued to have
>>problems with aspiration pneumonia.  And the only thing that was still
>>there to cause a problem was the saliva.  As a result of a number of
>>trials(failed) and other investigations (including a fundoplication) we
>>found that it was the saliva.
>>
>>Therefore we then had a bi-lateral sub mandibular salivery gland excision
>>and tympanic neurectomy.  In our case we have had fantastic results
>>(surgery was Dec 1995) and can say that it has not caused him any untoward
>>results.
>>
>>Kristofer still has adequate salivery production and occassionally still
>>dribbles ( usually involved with response to drugs or seizures).
>>
>>If you need more information, just let me know..
>>
>>Regards
>>
>>Jim
>>>I joined this list because of my daughter who is ten and has fluctuating
>>>cp.  I have questions for this group and I am hoping you would please be
>so
>>>kind as to help me with them.  The first right now is that I am thinking
>of
>>>having salivary reduction surgery done for her.  I have always been
>against
>>>it before.  But now that I have heard they can change the direction of
>>>gland and put them down the throat.  I tried robinal with her and it
>seemed
>>>to make her pasty and tired.  She is in the fourth grade and I don't think
>>>the drooling is helping with her social issues.  She speaks and walks with
>>>a hand held but not by herself.  Any info or opinion you can give me I
>>>would appreciate.  I am concerned about the pain and recovery but also
>>>maybe in the long run she would rather not have to deal with the excessive
>>>saliva anymore either.  It gets on her papers and her hair always has to
>be
>>>tied back because it will stick to her chin and all the other reasons.
>>>thanks so much,
>>>Shawn
>>
>>
>>Jim Challenor
>>
>>e-mail: [log in to unmask]          "Never Give In,
>>snail:  PO Box 742 Lismore.                  Never Give Up,
>>        NSW.2480. Australia.                        In The End You Will
>Win"
>>Phone:  61 2 66252394                                            "Unknown"
>>Fax  :  61 2 66252394
>>Mobile: 0418 669618
>>

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