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Reply To: | St. John's University Cerebral Palsy List |
Date: | Mon, 6 Mar 2000 22:11:42 -0500 |
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What a kid! It's so cool to hear a kid thinking of her parents needs. You
must be very bright, and head and shoulders above your peers in the
maturity department! Maybe look into a weekend retreat at a local camp
until summer comes--it would be fun for you, too.
Best to you Joy,
Laura
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> From: - Joy - <[log in to unmask]>
> To: [log in to unmask]
> Subject: Advice Needed
> Date: Monday, March 06, 2000 9:42 PM
>
> For those of you that don't know me, I'm 16 with spastic diplegia CP. I
> need help with bathing, dressing, transferring, and other such things.
My
> parents handle all of my care themselves. My dad ends up doing the vast
> majority of it, simply because of my height and his strength. I'm
worried
> about the effect this is having on my parent's marriage, and also on my
> parents. They have no time for themselves, and no time to pursue their
own
> interests. I love them, and I don't want to be a burden. Does anyone
have
> any suggestions as to how to get them to consider getting an aide to help
> with caring for me? I've mentioned it, and they always say that it's no
> problem, and that they do it from love. I know that's true, but what
they
> want to be able to do and what they can psychologically and physically
> handle are two completely different things. Does anyone have ideas as to
> how I can approach this and help them, without making them feel useless
or
> guilty? Thank you so much!
>
> ~Joy~
> [log in to unmask]
> http://www.geocities.com/joy0823
> "Never underestimate the power of stupid people in large groups."
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