CEL-KIDS is an open, moderated discussion List for those interested in the specific aspects of Celiac Disease (Coeliac Sprue), dermatitis herpetiformis, gluten intolerance, wheat allergy, as applicable to celiac children and their parents.
Discussions that are general in nature and applicable to all celiacs should be conducted on the sister List (CELIAC@listserv.icors.org).
The discussions include techniques for being a celiac child and the impact upon the entire family; tips on how to eat out of the house, how to cope issues, including coping with the behavioral changes sometimes brought on by gluten, how to survey the teenage years; youth recipes and tips on how to cook; and interaction between celiac children around the world. Information on what food is gluten free and what is not; and adult recipes should instead be posted to the sister CELIAC List.
To subscribe to this List, send in the body of an email to:
LISTSERV@listserv.icors.org
SUB CEL-KIDS YourFirstName YourLastName
Members of this list may also desire to join the CELIAC List (Celiac/Coeliac Wheat-Gluten Free List) (CELIAC@listserv.icors.org). It is an open, unmoderated discussion list for those interested in Celiac Disease Coeliac Sprue), dermatitis herpetiformis, gluten intolerance, wheat allergy, and coincident intolerances, such as casein or lactose intolerance. To join send the following in the body of an email to:
LISTSERV@listserv.icors.org
SUB CELIAC YourFirstName YourLastName
An initial understanding of the Celiac lifestyle and the GF diet is available at:
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi everyone!
I know back to school is here, so I wanted to send you all a blog post I just published with some advice for helping your child to navigate the start of the new year. I myself am not a parent, but I grew up with celiac (diagnosed at 7 in 2003) and thus had to navigate school with the disease. Here is the link:
<<Disclaimer: Verify this information before applying it to your situation.>>
I am in discussion with the Dayton area Boy Scouts about starting a gluten-free Cub Scout Den. My son is in second grade and is highly sensitive to cross-contamination. I am looking for other parents in the area who would like to join a Celiac-friendly gluten-free only Cub Scout den. Please send me an email if you would like to be a part of this.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi! Can anyone recommend a site or source that has a current and reliable list of gluten free art supplies? I'm not sure if the sites I've found are current or credible. My daughter who has Down syndrome and celiac disease is starting preschool in January. We've found that she is super sensitive to any type of gluten exposure / cross contamination because she only started improving on the new diet after almost a year when we finally removed her from daycare and completely eliminated gluten from our home. I
<<Disclaimer: Verify this information before applying it to your situation.>>
My little girl (age 2) was diagnosed with celiac disease 6 months ago. She’s STILL not improving on the GF diet (which is a whole other topic) and her daycare provider (home setting) is no longer willing to provide care for her. She’s nervous that my daughter is being exposed to gluten through cross contamination at her house and she’s overwhelmed with the stress of trying to clean and control all the crumbs from all the other kids who are eating gluten or carrying it in from their own homes.
<<Disclaimer: Verify this information before applying it to your situation.>>
The Portland Maine Celiac DH Support Group has organized a Kids Group Parent Meeting to take place in Portland, Maine. We need parents input and help implementing a Cel-Kids Group.
The meeting will be held on Saturday May 12th from 10am-11am at Martins Point Health Care.
<<Disclaimer: Verify this information before applying it to your situation.>>
Posted for Tina Duncan <[log in to unmask]>
CAMP GLUTEN FREEDOM
WHEN: June 26th 9am to June 29th 5:00 pm pick up
WHERE: Camp Jameson 2001 Bridgeport Rd Indianapolis, IN 46231
Camp Sponsors: Udi's, Schar & Gluten Free Living Now, Ltd.
Do you have a Gluten Free Child age 9-14?
If so .. this is the camp for them to attend. We will also accommodate the gluten free casein free diet and other food allergies and sensitivities upon request. Parents need to let us know the campers specific dietary needs two weeks prior to
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello,
I'm new and have some questions...
My daughter was diagnosed with celiac disease (in November 2011) when she was 22 months. We immediately went GF and it's been almost 4 months now. Her main symptoms prior to the diagnosis were vomiting, recurrent illnesses, tiredness, irritability, weight loss, distended belly, and iron deficiency anemia. There has been some improvement of symptoms over the last few months, but most of these symptoms are still very present or at least to some degree. The most noteworthy is that she just can't seem
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi and good for you for all you're doing. I can share that I was extremely diligent about avoiding gluten when my son was diagnosed. However..much later...up to 4 years later..I was finding out I was still "allowing" hidden gluten into his diet! Also, cross contamination is a likely concern (butter, mayo containers) as well as "hidden" culprits...such as VANILLA? Seriously....some VANILLA has GLUTEN?!? Of course, today there is MUCH more information online but I wanted to share our experience to ..hopefully allow you to avoid the pitfalls we went
<<Disclaimer: Verify this information before applying it to your situation.>>
In answer to your question of how long to see results:
My daughter, who also has Down Syndrome, showed immediate results on the GF diet. Diagnosed at 17 months, her symptoms were failure to gain weight and eczema (which no one thought had been related to celiac, but which cleared up immediately on the GF diet).
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi! I'm so sympathetic with you folks, trying to cope with celiac for a child. It's hard enough to deal with when it's adults who are responsible for their own health.
I would second the comments already made by the others, it's pretty hard to figure out hidden sources of gluten, such as the barley malt in rice krispies, etc., unless you're quite knowledgeable about food terminology. If you're in doubt, try to find a local support group (the national GIG/Gluten Intolerance Group may be able to help you, www.gluten.net).
<<Disclaimer: Verify this information before applying it to your situation.>>
My daghters gi said by looking at her blood work that her nubers are not that elevated so he is not certain that she does has celiac. So we decided to go ahead with the biopsy. It should be some time next week. I'm still waiting on the celaic panel blood work on myself and my two other children, I did get my daughters CBC back and it showed that she is slightly anemic, which is what it showed 6 months ago. They want me to start her on iron
<<Disclaimer: Verify this information before applying it to your situation.>>
If you have a postive blood test is the biopsy really necessary? Other than another positve test, what else can the biopsy show you? We head to the gi Dr. tomorrow so I'm sure he will answer all my questions but i was curious what your thoughts are? Thanks Robin
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello my daughter just had positive blood tests for celiac. She sees her gi on Tuesday. I have two other children that I am also going to have tested. Do all of your children in your family all have CD? Do all of their symptoms seems to vary in severness? Do they have other health issues? Sorry for all the questions I'm just trying to figure all of this out. Thank you.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi everyone,
Yesterday, my 10 year old daughter had a school activity (which I didn't know about) where they baked using flour. I know that she didn't eat any of it, but she seemed to have a reaction anyway. Has anyone else found that just being around flour and breathing it in possibly causes a reaction?
<<Disclaimer: Verify this information before applying it to your situation.>>
I recently heard that cinnamon honeycombs from Post cereals are gluten free. They say manufactured on equipment that processes wheat. Does anyone know if they're really gluten free?
<<Disclaimer: Verify this information before applying it to your situation.>>
All, if anyone can recommend a Pediatric GI doc in St. Louis who is sensitive to and understands Celiac, I would really appreciate it.
So far, I have been to TWO docs who have wanted me to put my daughter on gluten for 6 weeks then biopsy in order for them to 'confirm' her celiac diagnosis. Previous biopsies did not prove celiac but a strict GF diet has made her healthy. When she eats gluten, she vomits, has blood in her BM, gets rashes, etc. I am unwilling to take
<<Disclaimer: Verify this information before applying it to your situation.>>
Tricia,
My daughter's gastro doc says yes, symptoms can change after removal from the diet. My daughter was gluten intolerant as well as 'allergic' to milk. When we did a milk-challenge after a year free of milk, her original symptoms, vomiting, weight loss, diarrhea, did not re-appear. Instead, she got allergic colitis which took six months to get diagnosed because we had no idea it was the milk causing it until the colonoscopy showed it.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi -
We put our son on a gluten free diet at age 16 months after months of GI symptoms and weight loss. His blood work was negative and we decided not to do an endoscopy because he was so young and so underweight. Once he went gluten free his GI symptoms resolved and he finally started to gain weight. That was 2 years ago.
<<Disclaimer: Verify this information before applying it to your situation.>>
Our daughter never had GI symptoms for her celiac. She was just TINY, never grew and had sores all over her body. Her bloodwork was negative, endoscopy was 'inconclusive' and only gene testing showed a single celiac gene. (Gabby's adopted...so none of us share her genes). Gabby never had diarrhea, vomiting or anything else.
<<Disclaimer: Verify this information before applying it to your situation.>>
We live in Austin, but will go anywhere in Texas (Houston or Dallas or even a different state) to visit a "forward thinking" pediatric endo who will at least converse about CD, related delayed bone age and the need for growth hormones to help with catch up growth. Thank you; recommendations are very much appreciated!
<<Disclaimer: Verify this information before applying it to your situation.>>
I wonder if anyone has experienced this with their child. Mine was diagnosed May of 2008. His symptoms were gastrointestinal, as well as short stature. After we started the diet, the gastrointestinal symptoms went away almost immediately. We were anticipating big "catch up" growth but that has not happened. Granted we had a few "mess ups" with the diet early on, but those have gotten much better. Last TtG-IgA was 3, the best yet, though that was 6 months ago (we are due for one next week.)
<<Disclaimer: Verify this information before applying it to your situation.>>
A few months ago someone asked about honey kix and was told that they're gluten free. Does anyone know about Berry kix? The ingredients are nearly identical, but there are coloring additives.
<<Disclaimer: Verify this information before applying it to your situation.>>
My 3 year old son was just accepted to a 4 star daycare. This is by far my biggest challenge with dealing with childcare facilities on my sons food allergies. They are required to meet Department of Human Services guidelines and Child and Adult Food Program guidelines.
<<Disclaimer: Verify this information before applying it to your situation.>>
Can people share favorite protein bar recipes that are GF and peanut free and that a 4 year old will eat? That means it can't "look funny." Even better if it has chocolate from my son's point of view! My son really likes the Andi bars, particularly the chocolate ones, but we are fed up with the irresponsible business practices of the company and our local health food store will also no longer deal with them. He misses his protein bars and I'm willing to cook but I need some
<<Disclaimer: Verify this information before applying it to your situation.>>
At the bottom is a summary of the recipes that I received. We are going to try them out over the next few weeks! Also, I received several recommendations for other commercially produced bars including: Lara Bars, Comfort Bars, Think Thin Bars, nugonutrition dark chocolate crunch (www.nugonutrition.com), Can Do Kid Bars (www.iamacandokid.com ). I will examine these as well probably starting with Lara Bars since I know our health food store carries them.
<<Disclaimer: Verify this information before applying it to your situation.>>
My 7yo was diagnosed last May and his school has been great about taking steps to keep him safe. However, we had an exposure last week from a situation nobody had thought of before. In gym class(after lunch which is eaten in the gym), they were doing the crab walk and other activities on the floor. Then he went to music. Then he returned to his classroom where he accidently slammed his fingers in the desk. Then he sucked on his throbbing fingers to ease the pain. Ten minutes later
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All,
I recently called Knudsen to inquire about the natural flavors in their juice boxes. The juice boxes I called about had no gluten, however, their Sensible Sippers (mini juice boxes for toddlers) have gluten. I looked at the label in the store today - it must be within the "natural flavors".
<<Disclaimer: Verify this information before applying it to your situation.>>
Does anyone know if Celiac and Allergies are related? I'm thinking both are immune system issues.
My child with Celiac has had 2 hive / swelling reactions to amoxicillian (and something else). My child also has food allergies too. I'm debating on whether or not we should go for environmental allergy testing. We were recently in the emergency room with a badly swollen eye - diagnosed as allergy conjunctivitis.
<<Disclaimer: Verify this information before applying it to your situation.>>
Everyone has said the same thing: Dairy free/ Casein Free. So I am going to do it. I cant believe it could end up being something this simple after all the doctors and test we have been thru. So thank you all very much. I WILL POST IN A COUPLE WEEKS TO LET YOU KNOW IF WE SEE A DIFFERENCE.
<<Disclaimer: Verify this information before applying it to your situation.>>
I've received enough private emails about this to last me a lifetime. I'll apply to my situation as I see fit. If posts to me regarding this topic could stop, I'd appreciate it.
Regards,
JHM
* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *
<<Disclaimer: Verify this information before applying it to your situation.>>
Our local health food store pulled all of sami's products after questioning them about preservatives in their products that were not listed. There was a test done that revealed that there was a high percentage the preservative. Sami's says no --------------Test says Yes We stopped buying due to the lack of confidence in the truthfullness of their practices. Kyle
<<Disclaimer: Verify this information before applying it to your situation.>>
I posted this on regular celaic site also but wasnt sure if everyone checked both so I am posting this here also. My daughter is now six and has celaic for past yr and diabetes since August. She has two conditions that we cant find any releif for. Congestion and stomach aches. She goes to a GI and Endocrin Dr. We also have Been thru ENT, Diagnostic Center, Allergy and Immunology. No one can find a reason for the problems or relief for the symptoms. We havent given up but
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi Judi,
I just read your posting to Cel-Kids.
I was concerned when you mentioned Sami's Bread, particularly flax and millet. Awhile back there was a lot of controversy about the breads at Sami's as testing revealed very heavy gluten contamination on independent testing. It is not a dedicated facility and significant gluten was getting into their products.
<<Disclaimer: Verify this information before applying it to your situation.>>
I called Sami's about a month ago because I found archived references to Sami's products testing high for gluten and I had been buying some of their products for my son. They said when that controversy came up, they sent their bread for retesting themselves and got a score of 33 parts per million. This number is much lower than the test result a celiac group got when testing, but still over the 10 parts per million that is expected to be the "safe" guideline. We decided to stop buying
<<Disclaimer: Verify this information before applying it to your situation.>>
I have gathered a list of public school districts that serve a complete GF lunch for celiac students. Since I had many more respond that they wanted to also have this list, I am posting it to the listserve.
Dracut Public Schools - Dracut, MA West Bend School District - West Bend, Wisconsin Rochester Independent School District – Rochester, MN Belchertown Public Schools – MA Port Washington Saukville School District – Port Washington, Wisconsin Fairfax County, VA (County-wide school district) Ventura Unified School District - Ventura, CA Millard Public Schools
<<Disclaimer: Verify this information before applying it to your situation.>>
So, I read this, and here is what it says:
"Generally, children with food allergies or intolerances do not have a disability as defined under either Section 504 of the Rehabilitation Act or Part B of IDEA, and the school food service may, but is not required to, make food substitutions for them."
<<Disclaimer: Verify this information before applying it to your situation.>>
My understanding is that if the school receives federal funds, they are obligated to provide a GF lunch, but this is the loophole that many of them cite to get around the obligation/requirement.
IMO, the school lunches (at least at my daughter's school) are abominable; some variation of pizza and chicken fingers almost daily. We prefer to send her with a home lunch for that reason alone, so from my perspective, being GF is an advantage; she's getting a healthier lunch from home than she would at school. It isn't
<<Disclaimer: Verify this information before applying it to your situation.>>
I would like to gather a list of public school districts (K-12)that already provide a gluten-free lunch. I am starting the process of getting my son's school district to provide GF lunches with a 504 plan and realize it may be very helpful for them to know what other school districts they could model after as they seem totally in the dark when it comes to GF. If you child's school serves a GF lunch, please send me your school districts name (not the individual school name) along with city
<<Disclaimer: Verify this information before applying it to your situation.>>
I have been reading all the 'starting school' posts with interest. My son was diagnosed at 20 months old and will be turning 17 years old in a month. He is very sensitive to any gluten ingestion. We know because he was given a medication that had been gluten free and was relayed to us by the drug company that it was still gluten free. We received a follow up call (too late) from the drug company telling us not to take the medication because the formula had changed and
<<Disclaimer: Verify this information before applying it to your situation.>>
I would recommend having a meeting with the school staff (in fact, all people who would come into contact with your child including bus drivers, etc) that your child has celiac or just tell them your child i on a wheat free/dairy free diet. Do it right before the school year starts. If necessary, applying a label to the back of your child's shirt would also work.
I have to jump in here to disagree with the notion of wearing some kind label on your child. That sets a terrible example of labeling a kid in general. We want them to fit in, not the opposite. Call the principal and set up a meeting. Bring a bunch of laminated sheets w a picture of your kid explaining what celiac is, etc. Put your cell on it for questions. Avoid the hot lunch program. Good luck. Once you get assigned to a classroom meet w the teacher and all assts and other teachers interacting w your kid. ------Original
<<Disclaimer: Verify this information before applying it to your situation.>>
Go to this link & click on "getting along at school" it will solve all of your problems. I wrote the materials, so if you have any additional questions or concerns feel free to contact me again. http://www.csaceliacs.org/CelKidsNetwork.php Good Luck. Tami
-----Original Message----- >From: "[log in to unmask]" <[log in to unmask]> >Sent: Jan 29, 2009 12:08 PM >To: [log in to unmask] >Subject: Re: Starting School > >---------------------- Information from the mail header ----------------------- >Sender: Celiac/Coeliac Wheat/Gluten-Free Children List > <[log in to unmask]> >Poster: "[log in to unmask]" <[log in to unmask]> >Subject: Re: Starting School >------------------------------------------------------------------------------- > >< [More ...]
The Celiac Spruce website actually has letters you can print out and give to the teacher, principal, lunchroom staff, nurse, art teacher etc. It even has a letter you can give to the school for when there is a substitute. My daughter in addition to Celiac disease has dermatitis herpetiformis - so I printed all these letters and scheduled a private meeting with her teacher right before school started. I also met with the School Nurse, Assistant Principal, etc. My daughter's teacher briefed all
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi A great resource for starting school is the Children's Hospital, Boston DVD "Raising Your Celiac Child, Guidelines for a Gluten-Free Life." Not only does it walk you through a meeting with teachers and staff but it goes over all the little things you might not think of. you can check it out at www.childrenshospital.org/celiac
<<Disclaimer: Verify this information before applying it to your situation.>>
I have to agree as well. The key to successful integration of the GF diet is not to "spotlight" it. We've had tremendous success by simply partnering with the teacher, giving her some guidelines and practices to follow, but more importantly, by teaching our child to advocate for herself.
<<Disclaimer: Verify this information before applying it to your situation.>>
As a Kindergarten teacher, and a parent of a celiac daughter (19 months), I would agree that while it's important that school staff is aware, it's also so important that the child is most aware. At least aware enough to explain what foods to stay away from. While I've never had a student with celiac, my Kindergarteners with peanut allergies, etc. were very aware of their situation. Not only that, it was VITAL that communication with the parent was ongoing and open. I also had asked parents to notify the
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi, I teach at an elementary school and my son with celiac will be going to full day kindergarten this fall also (with lunch- yikes!). I have spoken with our principal about it and he wants me to come to a staff meeting and inform the teachers about his needs. He wants me to speak to everyone because all teachers do recess duty and lunch room duty is rotational, so his classroom teacher will not be with him all the time. He also suggested make a reference page for the
<<Disclaimer: Verify this information before applying it to your situation.>>
My son is now in 6th grade. March will be 10 years that he's been gluten-free. When he was in pre-school, I always put a sticker on his back--especially if he was going into a situation where the leaders would change half way through the day. It was just a visual reminder for them to think. I also sent a letter to school each year to all his teachers and administrators. (I've attached his kindergarten letter at the end of this email.) By the time Kevin got to Kindergarten, he
<<Disclaimer: Verify this information before applying it to your situation.>>
By looking at the boxes of honey kix, chocolate lucky charms, and berry berry kix, they appear to be gluten free, I have heard that general mills won't claim that they are gluten free, anyone have any experience with these? It would be nice to expand our cereal varieties, thanks, Jen
<<Disclaimer: Verify this information before applying it to your situation.>>
I called GM yesterday about Honey Kix. The woman said they contain no gluten ingredients. I asked if they were produced on a line that also handles a gluten containing product, like Wheat Chex. She said if it were, they would include on the ingredient label a disclosure that it may contain wheat(or rye or oats or barley as the case may be). She was emphatic that they don't try to hide gluten containing ingredients on their labels. I'm sometimes a little worried that the person I'm talking to may
<<Disclaimer: Verify this information before applying it to your situation.>>
I called GM last week about the Honey Kix and the woman I spoke to was very clear in that they are Gluten Free, she did say that they would not put it on the box because they are always changing recipes, and they dont' want us as consumers to get to comfortable.. So I have now been thru about 6 boxes in 2 weeks.. We have not seen any ill side effects and my non celiac kids and husband have been enjoying as well..
<<Disclaimer: Verify this information before applying it to your situation.>>
I have found out that Chocolate Lucky Charms that are produced IN CANADA (where we are) contain wheat... :(
Lisa Goldstein | Human Resources Manager | The Dover Group [log in to unmask] O - 514.420.6044 | F - 514.420.6144 | 3245 Boul. J.B. Deschamps, Lachine, Quebec, H8T 3E4
<<Disclaimer: Verify this information before applying it to your situation.>>
I have two daughters in elementary school who have celiac. My oldest was diagnosed in the middle of first grade and at the same time her sister was diagnosed while in preschool. I disagree about not telling the principal, etc. Our school principal has been amazing. He set up the 504 plan for my oldest (and my younger daughter when the time came). He held a meeting with the entire staff and I spoke at it explaining to the staff exactly what celiac was and what I needed them to
<<Disclaimer: Verify this information before applying it to your situation.>>
If you have a 504 plan the teachers are suppose to read it and follow it. And you can simply ask if he/she has read the 504 plan. If not, then you can explain it more if needed.
---------------------- Information from the mail header ----------------------- Sender: Celiac/Coeliac Wheat/Gluten-Free Children List <[log in to unmask]> Poster: Maureen O'Grady <[log in to unmask]> Subject: Re: kids starting school
<<Disclaimer: Verify this information before applying it to your situation.>>
I'm thinking the mother needs to let everyone know she has the problem, just as you would a diabetic child, so that this child can have the best opportunity not to be exposed to gluten. To me, it is worse to be celiac than diabetic, and I'm Type 1, because with sugar infractions you can give more insulin to get it down. However, my understanding, because no one in my family is celiac diagnosed, is that celiac patients have to go months to be free of the effects of gluten
<<Disclaimer: Verify this information before applying it to your situation.>>
Quote: Well, the school nurse needs to know because it is her job to educate the teacher and the other school staff about the issues of the children enrolled in the school. The principal has overall responsibility for the school, so he/she definitely needs to know and to able to take appropriate action if there is a problem. They need to know because the child's school experience is not limited to what happens in one classroom with one teacher.
Wow! You must have had some very bad experiences with being a Celi <<Disclaimer: Verify this information before applying it to your situation.>>
Wow! You must have had some very bad experiences with being a Celiac. Our kids are only young once and if I can make my child feel included in classroom parties, I'm going to for as long as I can. My son has been diagnosed for almost 2 years and had a great kindergarten and first grade experience. There are many other options for class birthday party treats. His teachers have been wonderful. They sent home a
<<Disclaimer: Verify this information before applying it to your situation.>>
I want to thank everyone for the information...I too will be in the same situation soon. My son will only be 3 starting school, so letting all adults know the situation is going to be very important...while I can (and will) teach my son the issues, he will not be old enough to truly know what to eat & what to avoid the adults around him will need to know to keep those things away.
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear fellow parents, My 6 year old son was diagnosed last August with celiac disease, and since the start of September we are on a strict gluten free diet. Somehow he did not react to it as fast/as much than I hoped. He still is not growing much, gained hardly any weight, and in the middle of december got a rash which looked like dermatitis herpetiformis. Since three weeks I changed the diet again to exclude all grains and starches (Specific carbohydrate diet), and his stool now at least looks
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi Christine, Please don't despair. It took 1 year for the diet to really take effect in my son. He only started to gain weight at his 1.5 year appt. after the diagnosis. There are days when he eats a ton and days he eats hardly anything. Recently my son shot up in height by about 3 inches, so he still looks super skinny, but he's gaining. It also takes at least a year for the celiac markers to go down. (from our exp)
<<Disclaimer: Verify this information before applying it to your situation.>>
My son was also diagnosed around this time (age 7). He is now 10 and really didn't fully start growing normally until he was almost 9, although there was slight improvement prior to that. You could look for other things but it really does take a long time.
<<Disclaimer: Verify this information before applying it to your situation.>>
I need some tips on how to communicate and what to ask at school about a child being a celiac. My child starts kindergarten next year and I am not sure what questions to ask or who to talk to (principal, teachers, school nurse or all?)? I know I can explain what celiac is, what it means etc -- but I need some school specific advice.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello,
I am going to try and make my own chicken bites tomorrow for my children. I didnt know if anyone had a speciific recipe or advice.
I was going to cut up the chicken in to small peices, crush potato chips in a bag with a little pepper and coat each peice well and bake on a baking sheet.
<<Disclaimer: Verify this information before applying it to your situation.>>
The Peninsula College of Medicine and Dentistry just issued the following news release:
'Sunshine vitamin' link to cognitive problems in older people Vitamin D linked to cognitive impairment
Researchers from the Peninsula Medical School, the University of Cambridge and the University of Michigan, have for the first time identified a relationship between Vitamin D, the "sunshine vitamin", and cognitive impairment in a large-scale study of older people. The importance of these findings lies in the connection between cognitive function and dementia: people who have impaired cognitive function are more likely
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All,
I searched high and low about 1.5 years ago to find a GF vitamin D supplement for my toddler. We found Drisdol drops - by Sanofi. We are out and I just discovered that Sanofi is no longer making these drops.
My child needs 1000 IU per day - so a multiple vitamin won't work.
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks to everyone who has responded. 42 responses and counting so far. Universally, all people (adults and kids) are getting more sensitive the longer they have been GF, so her experience is definitely typical. Some get extremely severe reactions and some still only have mild reactions, but more than before they got an actual diagnosis.
<<Disclaimer: Verify this information before applying it to your situation.>>
My daughter was diagnosed with CD in December 06 through biopsy. She was not having any symptoms (except she was small and I thought she had a big belly, but everyone else told me I was silly and it was low muscle tone). Because she also has Down syndrome, we tested her for celiac and it was positive. I remarked to the GI that I was surprised because she never acted like her belly hurt or anything. He said that maybe she felt bad all the time and she didn't
<<Disclaimer: Verify this information before applying it to your situation.>>
I am shocked. A public school (and most non-profit private schools) have no choice but to provide a gluten free diet for your child - it falls under federal law. You need to call the state board of education and speak to them. If they receive any federal funds for their lunch program they are risking losing it all if they don't.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello:
I am trying to get gluten free lunches in my local school district in Colorado. The district has asked me to find out other districts that have done this. Have any of you been successful in making this happen or are you aware of school district that have been accommodating?
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi, Wendy!
I live in Illinois, and I have NOT had ANY luck with my school district. I even asked if they would let me buy a microwave and keep it in their cafeteria kitchen so my little girl could have hot lunch (provided and paid for by me) warmed up for her once in a while.
<<Disclaimer: Verify this information before applying it to your situation.>>
I Think that we should all work on bringing the food that would keep our children healthy to their school, such as I has to consider allergic children and even overweight kids even if we would have to go to the supremecourt for it>
My 8 year old daughter with Celiac Disease was recently diagnosed <<Disclaimer: Verify this information before applying it to your situation.>>
Hi, My 8 year old daughter with Celiac Disease was recently diagnosed with Diabetes Insipidus and growth hormone deficiency. Does anyone's child with Celiac Disease have either of these disorders? thanks, Amy Strother
* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *
<<Disclaimer: Verify this information before applying it to your situation.>>
From: Margaret Weiss Masiello, RD Clinical Coordinator The Kogan Celiac Center Saint Barnabas Health Care System (973) 322-7260 (973) 322-7528 fax [log in to unmask] www.koganceliaccenter.com
The National Foundation for Celiac Awareness (NFCA) is seeking case studies of women who experienced infertility issues (trouble conceiving, miscarriages, birth defects, still births, etc.) prior to a diagnosis of celiac disease, and then after receiving a celiac diagnosis AND going gluten-free they were able to successfully conceive and maintain the pregnancy to term.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All!
I partly need to vent. But, I'm also looking for advice on how to handle.
Included in my child's school fees, breakfast and snack are baked into the price. Of course, there are no gluten free options. And even though my child won't be consuming the food, I need to pay the full price. Ok. I'm doing it.
<<Disclaimer: Verify this information before applying it to your situation.>>
Under the federal law and the school luch act the school must proved your child with a gluten free diet at not additional charge. Take a letter to the cafeteria manager from the doctor stating the need and why.
Karin -----Original Message----- From: Laura B. <[log in to unmask]> To: [log in to unmask] Sent: Thu, 2 Oct 2008 10:05 am Subject: Paying for kids food
<<Disclaimer: Verify this information before applying it to your situation.>>
Sounds like Laura might be at a private school though, and those are usually immune from such requirements. I don't understand why the school would state that "The other kids need to eat" as a reason for you to pay $10? Doesn't their parents' $10 cover the cost of the food they eat? I'm not sure I would give in to that- make them provide her something for the $10. There are bound to be others in your situation someday- pave the way to be easier for them and fight
<<Disclaimer: Verify this information before applying it to your situation.>>
Even if you are at a private school if they receive ANY funding from the Federal Gov't they may have to comply with the requirements. My daughter is at a private school and she can have GF hot lunch any day she wants. The head cook said they are required to provide for any special needs. I think the best approach is to try and do a bit of educating by bringing in a letter from your Doctor as well as some medical articles on celiac and how it is
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All!
I'm getting my daughter (with Celiac Disease) ready to go to school. The school likes to make their own play dough and would like the class to all use GF play dough.
They make play dough often.
Does anyone know of a VERY cheap source for rice flour (or other cheap GF flour) to use for play dough? I'm willing to buy in large quantities to get an even cheaper price.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All,
Sorry this took so long - I received a lot of great ideas and some very creative ones! I actually compiled a "raw" list of responses from everyone that came out to 19 pages long. I tried to attach the document to a message and the message was rejected. The message was also too long to cut and paste into this message. So, I summarized all responses.
If you scroll down you will see a temporary tattoo that says "Gluten free". I think this would be great to put on young children that cant tell yet if something would have gluten in it and for other people to be aware.
<<Disclaimer: Verify this information before applying it to your situation.>>
I have a 2 year old boy and a 3 year old boy. Neither are potty trained yet. I tried in December (before we found out they both are celiac) with both of them and for my eldest it seemes to be going well but he was pooping 5x a day and that was a big problem so I just stopped the training. my youngest was up to 10 times a day. So in Januray we found out they have gluten allergies and ever since then they have been down
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi We'll be vacationing in Estes Park Colorado, flying into Denver and driving through Boulder CO. Could anyone recommend a store where we could pick up GF groceries on our way. Thanks for your help. Peace Amy G - near Chicago, IL
**************Gas prices getting you down? Search AOL Autos for fuel-efficient used cars. (http://autos.aol.com/used?ncid=aolaut00050000000007)
<<Disclaimer: Verify this information before applying it to your situation.>>
I have two daughters with Celiac. My oldest was diagnosed when she was 8. She is 15 now. Lately, she has been ignoring the gluten free diet and eating things she should not. She doesn't have the same reaction as a teen she did when she was younger and thinks that now she's grown out of it. I know that teens sometimes do this because of adolescence and I also know that the reactions will come back as she gets older and she is still doing the damage. I'm very
<<Disclaimer: Verify this information before applying it to your situation.>>
Here are two articles related to teens and celiac diet decisions....
Gail
Bone in celiac disease.
Bianchi ML, Bardella MT. Bone Metabolism Unit, Istituto Auxologico Italiano IRCCS, via Ludovico Ariosto 13, 20155, Milan, Italy, [log in to unmask]
Chronic inflammation and malabsorption in celiac disease (CD) can cause bone metabolism alterations and bone mineral loss in children and adults. Bone status before and after gluten-free diet, epidemiology of fractures, and possible treatment options for CD-related osteoporosis are presented. Controversial aspects of this complication of CD are discussed. The relationship between bone derangements and
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi Everyone!
I'm sorry to ask this question again - but the last couple of times I saw this question asked, I asked for a summary and never saw anything. In case I missed it - my apologies.
I'm looking for lunch ideas (elementary school age) for kids with Celiac. The school has no possibility to heat things up so I either need to send things cold or in a thermos.
<<Disclaimer: Verify this information before applying it to your situation.>>
I love the thermos. If you fill it with boiling water for a few minutes then dump the water and add the hot food, the food will stay nice and hot until lunch time. (or cold if your'e going that route). We send soups, leftover rice pasta w/ sauce, leftover stews and yogurt smoothies (cold) in the thermos. Other staples: yogurt, sandwiches and bagels w/ GF bread, GF cornbread, quesadillas, GF pizza (everyone likes cold pizza), tamales from trader joes- heat in Am and wrap in aluminum foil. They're not
<<Disclaimer: Verify this information before applying it to your situation.>>
My 11 year old son's taste buds are constantly changing. We send him with gluten free chips/fritos/pretzels, rice cakes, popcorn, gluten free cookies, fruit, cheese sticks and no sugar chocolate pudding. Not the best - but he does not complain.
We tried the rolls, crackers and breads but they either got soggy or hard and he would throw them away.
<<Disclaimer: Verify this information before applying it to your situation.>>
Legally, school districts are required to provide a nutritionally balanced meal for our kids - just as the do for kids with every other type of food issue. I have never forced the issue, because I was able to get the cafeteria staff to heat up my children's meals along with all of the other students, but I am tired of paying for the food & then being charged for the meal again, just because they heated up the meal (pizza, hamburgers, chicken nuggets, etc... on the same days that
<<Disclaimer: Verify this information before applying it to your situation.>>
I make gluten free waffles in the weekend and freeze them, my daughter likes them in her lunches. Usually she has them plain, but sometimes she likes a bit of jam/jelly and peanut butter on them. The other thing she likes is cold toasted sandwiches, and toasted panini, usually with gf ham and cheese in them. She also likes toasted sandwiches with peanut butter. When the bread is toasted like that it seems to stay soft enough for her to eat.
<<Disclaimer: Verify this information before applying it to your situation.>>
We do all the sandwiches, rice cakes & peanut butter, apples & peanut butter, cold pizza, mac & Cheese in the Thermos, and we also do salads with chicken, strawberries & nuts, lettuce wraps with lunchmeat or chicken (Boston/Butter lettuce seems to work the best, it doesn't crack as easy as the others) and we do our own "lunchables" with gf crackers (we like Glutino), cut up cheese & salami.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi Everyone!
My 4 year old daughter was in an ice show this past weekend. There were multiple shows. I was nervous about her being alone in the locker room because of her Celiac condition. I was allowed to work in the locker room some of the shows in order to help make sure she would be ok - even though I was assured that there would be no problem.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi-
I was jsut reading anohter listmates e-mail about her daughter and nerve damage.
Ryan aften wakes up and says his feet hurt. But i dont think he knows what the word "numb" means when I ask him.
Ryan has had lots of bloodwork done in the past year and I am wonderign are there any other blood markers that might be high or low if you have nerve damage???
<<Disclaimer: Verify this information before applying it to your situation.>>
So my question is: Does anyone know of any popsicles that are NOT gluten free? Its been tough latley being summer and severasl moms have brought popsicles to the pool for the kids. Often the popsicles are losse with no labels
I always read every label before givign my son anythgin and often call the company of any new prodcuts to verify the gluten free status.
<<Disclaimer: Verify this information before applying it to your situation.>>
I posted yesterday about a blood test and I just wanted to thank everyone for their replies. I have learned a great many things and I wanted to make another post for some people that may have the same questions.
The answer to my question of do you need to be eating gluten to have the blood test done is, YES! You could have a false negative otherwise. Many people take this blood test yearly to make sure they arn't having any gluten snuck into their diets by toothpaste, etc.
<<Disclaimer: Verify this information before applying it to your situation.>>
Well we finally got into see my 2 year olds Doctor yesterday and I told him all of my child symptoms and that I have had him on a Gluten free diet for 3 months and he said "well it looks like he's Celiac." I then asked him what tests need to be done and he said "none, why put him through all the testing when you already know the problem is?" Well I said "so we know for certain and for the tax refund you can get for buying
<<Disclaimer: Verify this information before applying it to your situation.>>
Shannon:
Our doctor told us that our daughter needed to be back on a gluten- containing diet for at least 6 weeks before the tests and consuming at least the equivolent of 1 piece of wheat bread per day. Don't waste your money on the tests unless you are willing to put gluten back in the diet. I know it's no fun because then you have to start the diet all over again. The diet has made huge improvements for our daughter. Good luck!
<<Disclaimer: Verify this information before applying it to your situation.>>
Okay so I am adding another mystery symptom on to my list for my 3 1/2 year old son- Ryan. I don't think this has anythgin to do with Celiac but I have gotten good advice/info in the past so thought I would put this out there too- in case anyone else has experienced this.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All!
I need to give my child 500mg calcium supplement daily. Does anyone have a recommendation of something that a small child will eat (doesn't taste like chalk) and is of course GF?
Regards, Laura
* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello -
My son is 23 mos and recently diagnosed with celiac. In Dec he was on an extended course of antibiotics (18 days) and since then has been having episodic diarrhea with mucus in it. At first I was worried he was getting gluten somehow but I am starting to suspect he has candida. We are giving him large doses of probiotic and it is helping somewhat. Has anyone else ever experienced this? I have read online that people with celiac can sometimes have this problem.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello- We are going to a party this afternoon. I will check the label when we go but jsut wondering if anyone knows if popsicle brand spiderman popsciles are gluten free?
thanks!
* Support summarization of posts, reply to the SENDER not the Cel-Kids List *
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi Everyone!
I would like your opinion regarding a child with Celiac Disease.
In the situation that children are being invited to birthday parties and to friends houses, etc... Do you think (in the child's best interest) that it is better to:
1. Openly explain to others that he/she has Celiac Disease? And explain that he/she cannot eat certain foods (and why he/she will come prepared with their own food)?
<<Disclaimer: Verify this information before applying it to your situation.>>
My daughter has celiac and as of now we were told no other problems. We went thru numerous test before we finally found out she had celiac. She is extremely tall very healthy except for an excess of mucus wich we thought for years were allergies. Finally when no allergy medicine releaved her symptoms and we went to prob. 5 diff. dr.s did some one check for celaic. Her mucus is gone no more ear and sinus infections. She cleares her throat still alittle but Im nervous because I havent
<<Disclaimer: Verify this information before applying it to your situation.>>
Okay i will try and keep this as short as possible.
I jsut got hoem from the hospital with my 3 year old son so am very sleep deprived and not all with it so hope this all makes sense.
So Ryan is almost 3 1/2 and was diagnosed with Celiac Disease 18 months ago and has been on a gluten free diet and doing well. This past summer he complained of his legs being tired from walking often and I thought he bruised easily. He was slightly anemic.
<<Disclaimer: Verify this information before applying it to your situation.>>
Can anyone confirm that childrens benadryl (dye free) and childrens motrin is gluten free??
My 3 1/2 year old son has been taking it and tonight he seems to be out of it in his bed and today his tummy hurt and his feet hurt and he was tired from walking??? and gassy? and I thought well...? maybe the medicine? But he had a fever so maybe it is just related to that or a virus?
<<Disclaimer: Verify this information before applying it to your situation.>>
I found this link, which lists the Today Show guests: http://www.wkyc.com/news/news_print.asp?id=75691
Look under 10/17 at 9 -10 am, "Joy Bauer discusses gluten-free diets for kids." Thanks for the info, Ryan.
ryan blokzyl <[log in to unmask]> Sent by: Celiac/Coeliac Wheat/Gluten-Free Children List <[log in to unmask]> 10/15/2007 06:29 PM Please respond to ryan blokzyl <[log in to unmask]>
To [log in to unmask] cc
Subject : "GF Foods for Kids" segment on The Today Show
<<Disclaimer: Verify this information before applying it to your situation.>>
Does anyone know can a defiency in lactase enzyme cause the villi to be blunted? My 3 year old son jsut had an endoscopy and it showed the villi are blunted.
My son has a lactase deficiency and has been gluten free for 18 months. We took him off lactose for the first 6 months after being diagnosed but then added it back and he seemed fine for 6 months.
<<Disclaimer: Verify this information before applying it to your situation.>>
Does anyone have a child with Celiac that asks/insists to drink sometimes 12- 14 ounces (usually milk) and then throws it up almost immediately? My 4 year old child will drink this much in a 30 minute period and then vomit.
While it does seem like a lot - I know that I've never thrown up after drinking a little too much volume.
<<Disclaimer: Verify this information before applying it to your situation.>>
Has anyone used this wheat free and gluten free dough (playdoh) by colorations? do the kids like it? I was thinking about gettign soem for my sons 3 year old class room?
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello-
My son is 3 years old and going to preschool this year. I am very nervous about sending him and the gluten issue. I know play doh has gluten in it and some of the pastes and of course any art projects which uses food.. I am wonderign what else i need to watch for: stickers? crayons? paints? Should I get a list of all the products used and call the companies??
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi All, I wanted to share with you Ron Hoggan's new DVD "Smarten Up!" This DVD was extremely helpful to me in understanding the behavioral issues and learning difficulties related to gluten intolerance. I have a 6 year old daughter that has been GF now for 6 months and exhibited much of the symptoms he refers to in his DVD. We are now seeing much improvement. His DVD gave me so much hope that within the next 6 months even more improvement is forthcoming on gf diet. Those of us
<<Disclaimer: Verify this information before applying it to your situation.>>
What do you do for your kids to help them through any gluten accidents? My four year old was given a whole hot dog bun at Parent's-night-out last Friday (I won't go into the fact that we mentioned and left notes emphatically stating he cannot have anything made with wheat, etc....). This is the first time he has had such a large amount since taking him off of gluten. Tylenol is helping with the muscle aches, but is there anything else I can do for him?
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks everyone for your input! Each and every idea was greatly appreciated! I knew there was no magic cure, but it's good to know there are a few things we can do to ease the symptoms when it happens again. For those of you interested, I've compiled the responses at the end of my message.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi,
I would like to know of any summer camps for children that are sensitive to celiac kids needs. Of particular interest are any camps located in the southeatern US. Thank you.
Gail in SC
* Cel-Kids Web Page: http://www.enabling.org/ia/cel-kids *
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks for all the replies. I did turn up camps I had not learned about previously. It is interesting that these camps cover the East Coast, the West Coast and places in between. Some people sent information about camps that were sensitive to the needs of celiac kids. But I was compiling data on celiac specific camps. So, these other camps are not listed. But given the number of celiac specific camps and those that are sensitive to the needs of celiacs, our kids have a lot of great camping
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi all!
I am preparing information about summer camps for my support group. I have data for the 2 GIG camps, one at Camp Kanata in NC and one at Camp Sealth in WA. I have the Great GF Escapes camp in TX. I have Dr. Fine's camp at Camp Shaver in NM. And finally I have Camp Celiac in RI.
<<Disclaimer: Verify this information before applying it to your situation.>>
There is going to be a gluten-free family camp in New Mexico this summer! I attended last summer with two of my children and had a great time. Both adults, children, and teens would enjoy this camp.
All the details are available at www.intestinalhealth.org/camp, but I thought I would post the highlights:
<<Disclaimer: Verify this information before applying it to your situation.>>
My son has been diagnosed with celiac disease in Oct. 2006. I have learned alot by searching the internet, but would not mind some information from mothers with children in the same age group with celiac's. Our Dr's are not very helpful. They do not have much knowledge on this and it seems that I am the one that has to teach them. My children have been very sick for 3 years and now when I take the one in with CD I am asked what meds he can have.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi , This is my first post. My daughter cannot have gluten and we just discovered allergic to milk, eggs, soy and peanuts. Her birthday is Jan. 4 and don't know what to do for a cake with all the additional restriction. Anyone have any ideas or know substitutions for milk and eggs that aren't derived from soy? Ant other yummy dessert would help also. In addition was wondering about gf shampoo and conditioner. Looks like Neutrogena has a few but not sure if the list I have is recently
<<Disclaimer: Verify this information before applying it to your situation.>>
My original post:
I have been concerned about my 12 yr. old's moods, fatigue, and lack of concentration even though he has been on the gf diet for 2 years. Recently I read that may be a vitamin b12 deficiency. The vitamins he currently takes have very little b vitamins in them. I take 500 mcg of b12 everyday- is that too much for a 12 yr. old?
<<Disclaimer: Verify this information before applying it to your situation.>>
I have been concerned about my 12 yr. old's moods, fatigue, and lack of concentration even though he has been on the gf diet for 2 years. Recently I read that may be a vitamin b12 deficiency. The vitamins he currently takes have very little b vitamins in them. I take 500 mcg of b12 everyday- is that too much for a 12 yr. old?
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello, I suspect my 21 mo. old daughter has a gluten intolerance or sensitivity, or perhaps celiac disease. It runs in our family. She developed runny stools about 3 months ago, and though she is still growing, she has very little desire to eat. Then, about 6 weeks ago, she developed hives which she has had every day since. I've noticed that when she ingests wheat, her hives get worse. I have so many questions! First, I had my daughter's stool tested by Enterolab with their Gluten Sensitivity Stool Test.
<<Disclaimer: Verify this information before applying it to your situation.>>
My son also had poor growth even after removing gluten/wheat from his diet. We began working with a nutritionist who opined that he was enzyme deficient. Our GI confirmed that this was a possibility. My son has made wonderful progress with the use of enzymes and vitamin supplements -- all of which were approved by my pediatrician. The name of our nutritionist is Kelly Dorfman and she is located in North Potomac, Maryland. She has a website. Laura
<<Disclaimer: Verify this information before applying it to your situation.>>
Lesli,
I was just catching up with the Cel-Kids list group and saw your post. There could be other issues that are preventing your son from normal growth. I just did a Google sear ch on "slow growth in children" and I am sending you information from just the first site that came up.
<<Disclaimer: Verify this information before applying it to your situation.>>
I am a mother of a preschooler with Celiac Disease. I just learned I am pregnant again and wonder if there is information on whether I should try a GF diet while pregnant to help the new baby? I consider this because my preschooler suffered and didn't grow much in the womb (she is a twin). I also felt like it was the pastas and wheat products that made me violently sick the whole pregnancy. Anyone have information?
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi, Our son was recently diagnosed with gluten sensitivity as well as multiple food sensitivities and elevated antibodies to yeast which apparently can go along with the gluten sensitivity. The food and yeast tests were done by Enzyme-Linked Immunosorbent Assay (ELISA) . Previous skin scratch tests were negative for food allergies
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi.
I'm somewhat new to this board and have a question. My 5 year-old son was diagnosed with CD after a blood test and not having information from the pediatrician prior to the GI appointment, we took him off all gluten for about 2-3 weeks. He made an amazing recovery -- rapid weight gain, no abdominal pain, considerably less distention, less irritable, happy, and energetic. It was just amazing. After seeing the GI, we put him on gluten powder for 4 days which resulted in a positive biopsy. Now that
<<Disclaimer: Verify this information before applying it to your situation.>>
I am sorry it has taken me so long to summarize but I wanted to have a resolution to report. I had asked if anyone had any advice/knowledge about getting the school district to pay for my son's GF pizza which they prepare for him (on a seperate, clean baking sheet, using dedicated utensils I provide). In the past I provided the pizza AND paid for a school lunch the days he ate them.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi: My 5 year old son has Celiac Disease. He will be going to Kindergarten next year. His Pre-School years in the same school were very stressful. We've had quite a few "accidents". I have a meeting with the Principal next week and want to stress how important it is for everyone to be more careful. I feel like I am exaggerating when I explain what Celiac Disease is. Can anyone explain the 504 in a simplified version? Thank you for any help you can provide.
<<Disclaimer: Verify this information before applying it to your situation.>>
Is anyone aware of a Celiac kids group in Vancouver, BC or Lower Mainland, BC? I have a 7 year old who would probably like to meet others in his age range who also have Celiac. Thanks.
* Support summarization of posts, reply to the SENDER not the Cel-Kids List *
<<Disclaimer: Verify this information before applying it to your situation.>>
My 7 year old son and I have recently been diagnosed w/ Celiac. I am looking for some easy hot meals I can drop off for him at school and other comfort food products and snacks that I can pick for him from the grocery store. I live in Vancouver, BC Canada. Is there anyone living in Vancouver or surrounding areas that have suggestions. It seems the Thai Kitchen soup mixes are gluten free. He enjoys these. Thanks in advance.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi, My Family all just had stool tests done by Entero Labs,and they came back showing that my Husband, and 2 sons (6yrs & 3yrs) are all gluten intolerant. My 6 yr old has been tested for ADHD and given that diagnosis, and I am really hoping that removing gluten from his diet will help him with it. We(the whole family) have been off Gluten since 1/20/06 and I am wondering how long it take to see some results. They are very energetic, and run circles around the house every
<<Disclaimer: Verify this information before applying it to your situation.>>
On Wednesday, the Celiac related lists at StJohns will be moving to a new home.
We have been hosted at StJohns since November 1994 as part of their outreach program to the community. The issue of supporting the Internet has been an annual item of discussion for the last few years. Recently the University announced that all StJohns list would stop on 1 February 2006.
<<Disclaimer: Verify this information before applying it to your situation.>>
On Wednesday, the Celiac related lists at StJohns will be moving to a new home.
We have been hosted at StJohns since November 1994 as part of their outreach program to the community. The issue of supporting the Internet has been an annual item of discussion for the last few years. Recently the University announced that all StJohns list would stop on 1 February 2006.
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks to all 25 people who shared their experiences with this issue of behavior/mood problems in kids with unrecognized Celiac. Everyone said "YES" to my question about whether my grandson's mood shifts and temper tantrums could be related to gluten ingestion. In fact, according to the 25 responses to my question "irritability is the hallmark sign of Celiac disease in children."
<<Disclaimer: Verify this information before applying it to your situation.>>
Thank you so much for all the support,advise,and ideas I recieved I have a few to try. It was a great help realizing that I am right doing what I am to look after my children and knowing that most of us trying to be gf are in the same boat, that theres a lot of people that just don't get being gf,and most support comes from the internet. I think that 90% of mother in laws are the same. I feel greatly stronger and more determined to do whats
<<Disclaimer: Verify this information before applying it to your situation.>>
I've had similar problems with people just not understanding that children can not have gluten in their diet mine is my mother in law my children have been gluten free for about 1 year and I talked to her about it explained the seriousness gave a short list of foods she could give them. She still ask me if they can have gluten yet and insists on giving them foods they are not allowed. She loses every list I give her and says well I didn't know if they were
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi Jeannie
my daughter who is now 8 years old has been gluten free for about one year. Before that she was a very collicky baby wouldn't have any solids until about one then had a number of emotional, learning and behavioural problems.She was an uncontrolable child who had bad mood swings. She has a allergy to gluten found through a blood test. Within one week of being gluten free we saw a difference in her behavour all the moods emtional ups and downs,bully her sibblings, problems of sleeping bloated
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi: I had a horrible incident with my son's pre-school.
His class had a Thanksgiving Feast and wanted to make food to bring home. The teacher contacted me and I ordered some gluten-free mixes for bread and cookies. My son came home with a beautiful box of banana bread and other treats. He was so proud of what he made and couldn't wait to taste it.
<<Disclaimer: Verify this information before applying it to your situation.>>
My husband and my two oldest daughters are all being looked at for possible Celiac, my husband because of long term irritable bowel syndrome which has responded to a gluten free diet, one daughter from chronic inability to gain weight and the other for many stomach/allergy and ADD related issues. All have been to many regular and alternative doctors with no or limited success.
<<Disclaimer: Verify this information before applying it to your situation.>>
My 7yr. old son still wets the bed. He is only 38lbs, 42" tall. He was diagnosed 2.5 yrs ago and has been GF, is healthier but with no growth catch up. I think his body just hasn't grown enough to get past this issue, but the growth seems so slow! The Dr.s say just wait for puberty and he should have a growth spurt. I am not satisfied with waiting! Wondered if anyone else can shed some light on this? Thanks.
<<Disclaimer: Verify this information before applying it to your situation.>>
I just had something brought to me by my mother - sorry if I am slow catching on, but I figured if I am slow - some of you may be too. Pass Over! My mother went and bought my daughter food from the jewish bakeries in her city. Delicious! Fantastic! Gluton Free!
<<Disclaimer: Verify this information before applying it to your situation.>>
I'm looking for a gluten free bread receipe.Can you just replace the normal flour with gluten free baking mix?Or do you need a special recipe(I've made the flour mix up myself using rice flour, potato starch,tapioca starch).Any help would be apreciated, with thanks Olivia.
<<Disclaimer: Verify this information before applying it to your situation.>>
hello, I'm needing some help in finding a baking mix that is gluten/wheat free, but I need a big bag of it so I can make bread,biscuits,cakes,pizza bases etc for my 3 girls.I would properely need about 5kg a week.I can't find any that is a reasonable price.Does anyone know of somewhere I can get some? I live in Hamilton N.Z. With thanks Olivia.
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks for all the responses to my fruit snack question...looks like there are a lot of good choices out there...I've grouped them by manufacturer with the number of responses in ( )....only consistent bad ones was Brachs (so I would stay away from them) since they are not on dedicated lines.....
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello listmates,
Looking for recommendations for any fruit snacks (you know, those processed little bits of jelly candy in 'fruit' flavors) that are gluten free....my son LOVED them before he was diagnosed 6 months ago...he is now doing great and would love to add something back into his diet that is safe...but I am not sure if any are safe...
<<Disclaimer: Verify this information before applying it to your situation.>>
My Katie is very sensitive to gluten and she can eat most fruit snacks safely. I would have to go to the store and check what brands I do buy for her since I have none on hand. The last ones I got for her were Curious George (the "monkey snacks" as my 3 yo calls them), but I don't know what brand they were.
<<Disclaimer: Verify this information before applying it to your situation.>>
First, sorry this is so long, I was unable to send it as attachments so I pasted everything into this e-mail.
I did not receive any copies of formal 504 plans. I am including a draft of the 504 plan accommodations that I am requesting for my daughter (see bottom). Please understand that has not been put into final form and may not be formatted correctly for a 504 plan. If anyone does have a formal plan I would still love to compare plans. You can go to www.allergysupport.org and
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi all. My son is now 6 years old and was diagnosed with Celiac 2 years ago. He's been having a great year and has been very positive about his life for several months. However, last night, 5 minutes after putting him to bed, he walked into my room and said "Mom, I don't want to be gluten free anymore". When I asked him about it he told me that he misses eating Goldfish and that at snack time in kindergarten all his friends are eating them....he remembers how much
<<Disclaimer: Verify this information before applying it to your situation.>>
hi all!
Our next Central NJ ROCK (Raising Our Celiac Kids) meeting will be held next Thursday, April 7th at 7 pm at the Monmuth County Public Library, Symmes Road, Manalapan, NJ. We will be having general discussion on the gluten free diet and enjoying pasta from bionature and brownies by Foods by George and more.... Also, details regarding our ROCK Walk, Spring Lake, April 30th and our Day at the Races, Monmouth Park, June 26th will be discussed.
<<Disclaimer: Verify this information before applying it to your situation.>>
I am working on a sample 504 plan for a child with celiac. Does anyone have a 504 plan they would be willing to share (without the child's name, of course)? I would like to put together several examples of 504 plans for parents. Unless this information is somewhere and I've missed it??? Thanks, Tania Greenville, PA
<<Disclaimer: Verify this information before applying it to your situation.>>
Plans are underway to hold the 4th Annual Walk for Celiac Disease on April 30th in Spring Lake, New Jersey. Proceeds from this fundraising event will once again benefit the Univ. of Maryland Center for Celiac Research.
Details to follow.....
* Cel-Kids Web Page: http://www.enabling.org/ia/cel-kids *
<<Disclaimer: Verify this information before applying it to your situation.>>
I got a number of responses with your opinions regarding treatment of allergies, Celiac testing, & behavioral changes youve seen in your children.
In addition to probably having Celiac and being found allergic to yeast, peanuts, soy, lentils, eggs, wheat, dust & some pollens, he was also prone to severe hypoglycemic-type episodes where he would be in an absolutely hysterical state if he hadnt eaten in a number of hours. Thank goodness that has cleared up dramatically since removing the allergens & gluten (I was told that removing allergens would
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks for all the feedback "Marilyn" told me about a yahoo group for vegetarian gf - I have since joined and the postings have been helpful so far. (Go to groups.yahoo.com to find the group.)
"Susan" gave me many suggestions about using Quinoa, chickpeas and chickpea flour, beans and sunflower seeds. She also suggested taking iron and B12 if the kids decide to go vegan.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi My two kids aged 12 and 15 want to become vegetarians. I'd love to hear from any gluten-free vegetarians to give me some suggestions as to how to combine the two. Peacefully, Amy G, Chicago, IL area USA
* General celiac discussions should be sent to CeliacMAELSTROM.STJOHNS.EDU *
<<Disclaimer: Verify this information before applying it to your situation.>>
I am looking for a good Pediatric Gastroenterologist(and if you know of a great allergy doctor up on the latest techniques, that would be great too,- I know many of your Celiac kids also struggle with allergies) in Arizona. With our insurance, we cannot go outside AZ without paying a hefty fee. I am new to the list and have read all the archives. I think my Mother-In- Law has also posted this question to the general Celiac list. Some background: My 3 1/2 year old was having extreme behavioral
<<Disclaimer: Verify this information before applying it to your situation.>>
Happy New Year everyone..
Well, the resounding consensus to my question on Stonyfield yogurt was 'it you are not absolutely sure, DON'T EAT IT!!!!'....
Below are some of the recommendations and comments. I bought some Yoplait Yumsters yesterday and they are OK...the best part for my son was that the containers had a fire truck on the side....
<<Disclaimer: Verify this information before applying it to your situation.>>
Happy New Year everyone!!!
We are leaving on a trip to LA after the new year. Just wanted to see if anyone had any restaurant recommendations for us (our 2 year old has CD)..we will be in Santa Monica, Redondo Beach, and the Corona (riverside county) areas.
<<Disclaimer: Verify this information before applying it to your situation.>>
Happy New Year everyone!
Quick question on stonyfield yogurt (makers of Yo-baby yogurt that my son LOVED before being diagnosed)....I went to their website and they say the following:
"Does your yogurt contain gluten? Though we dont add gluten, there is an immeasurable amount of gluten in our yogurt, which comes from the processing of the fruit and flavors with a grain alcohol. The only flavors we can be absolutely certain have no traces of gluten are our nonfat, lowfat and whole milk plain yogurts."
<<Disclaimer: Verify this information before applying it to your situation.>>
Sorry, this is it! I'll forward any additional responses I get.
**** Bob's Candy Canes are GF **** Peeps are GF. They are those marshmellow treats that use to come out every Easter in the form of chicks. Now they have them for EVERY holiday. I just bought christmas tree peeps and passed them out to my daughters class. ****
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks for all the great suggestions on daycare/preschool cooking projects. Here is a summary. Happy cooking! **** -Make blue Jell-O in a thin layer on a pie plate, pretending that it is a lake, decorate with cool whip 'snow,' gumdrop 'trees,' etc. -Decorate Pamela's cookies with GF icing and candies. -Spread peanut butter on a pinecone, roll in birdseeds and hang for local wild birds to feed. **** Easiest Cookies Ever
<<Disclaimer: Verify this information before applying it to your situation.>>
Does anyone know what holiday treats are gluten-free? I'm sure that my child will be given candy canes, at a minimum. I'd like to have some GF alternatives ready, or some recipes for traditional foods that are not GF. Thanks - I will summarize.
<<Disclaimer: Verify this information before applying it to your situation.>>
My daycare provider currently cares for children 18 months to 4 years. She and the kids previously enjoyed cooking projects, especially around the holidays. Does anyone have ideas for what kinds of gluten-free cooking crafts they can do together? Thanks - I will summarize.
<<Disclaimer: Verify this information before applying it to your situation.>>
Our 7 year old son has Celiac Disease and I am looking for lunch ideas for school. He will eat gogurt/yogurt, peanut butter & shredded cheese. There is no opportunity to heat food, so it has to be cold. Sandwiches are out because the bread is dry. Unless I can heat the bread, he won't eat them. Thank you. Donna <mailto:[log in to unmask]>
<<Disclaimer: Verify this information before applying it to your situation.>>
Thank you to all who responded - over 100 responses. My son does have a place to heat food in the microwave at school. There are no hot lunches served at school - so he prefers to take a "cold lunch" (or in a thermos) like his friends. I have lost all the info I received, so I am doing this from memory. There is a listing in the archives from August & September 2004. For Breads try - Mana from Anna, Montina flour (from Amazing Grains website); Kinnikinnick bread
<<Disclaimer: Verify this information before applying it to your situation.>>
I have a 8 year old daughter who has Celiac. She has been on a GF diet for one year now, so we are getting the hang of it. I don't have a lot of time to experiment with baking and I was wondering if anyone has a good cookie recipe that I need to make several dozen of? Thank you Amy
<<Disclaimer: Verify this information before applying it to your situation.>>
Thanks to all who so generously replied - I received 25 responses altogether.
The overwhelming majority of people suggested "going with my gut" (pun intended in most cases!), and keeping him gluten free for now.
Many people said their children's symptoms were very similar to Carter's, and many had no known family history of celiac, so diagnosis took a long, painful time.
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear All thanks for your responses, as there were so many I will try to highlight some of the information I received, with much gratitude.
Dr. William Sears (world-renowned pediatrician) has actually done a fair amount of research on the interactions between food and behavior. You may want to look for some books by him. He specifically addresses food allergies and
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi everyone,
Thank you for all the wonderful responses to my 'terrible 2' issues I am having with my son with CD. I think just knowing that we are not the only ones that have gone through this has helped us tremendously. I couldn't respond to everyone but definitely wanted to note that every single one helped...THANKS!!!
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello- I am trying to wade through conflicting theories on whether it is a good idea or not to put my 10-month-old son on a gluten-free diet. (This would be in addition to dairy-free, as he seems to have a milk allergy.)
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear Listmates: Thank you to everyone who responded to my inquiry re: gf fajita marinade. As kids so often do, she changed her mind and wants something else. Here are the responses and two very delicious sounding recipes! I've decided to try these for dinner some time - they sound very yummy! Peacefully, Amy G Chicago, IL area (USA)
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi List-
I have noticied alot of discussion lately in regards to kids with CD having behavioral problems.W too have experienced this with our 8 yr old daughter, she was diagnosed with CD 4 years ago.
Our developmental Pediatrician just sent us this article this summer and she was quite excited to see something published that showed a link between the two. She has seen our daughter for a few years and has had great difficulty in diagnosing her. She has some ADD symptoms, but not enough to call it
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi My celiac daughter wants to have fajitas for her birthday dinner. Does anyone know of a gf fajita mix? If not, do you know of a recipe for a gf fajita marinade? Thanks. Peacefully, Amy G Chicago, IL area (USA)
* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear whomever this reaches, My son was recently diagnosed Celiac, we found this out whilst investigating possible ADHD or Bi- polar disorder, I was wondering if these associated disorders are common with Celiac disease or if gluten allergy can even be the cause of, if so can I expect any dramatic changes in my sons behaviour?, and if so , how long before we notice any change?, he has been on the diet about one week now, he still has bad days but not as bad, I don't know if
<<Disclaimer: Verify this information before applying it to your situation.>>
I see a lot of Girl Scout camping outings in my future -- does anyone have good GF recipes they have used for "camp" meals? (You know, the kinds of things you can cook on a stick or in foil or in a big pot over a fire?) Many thanks -- I'll post a summary. (P.S. S'mores taste even better WITHOUT the graham cracker!)
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello fellow CD parents,
I am at my wits end and in need of some help. My 2 1/2 year old son was diagnosed with Celiac about 6 weeks ago. We are having behavioral issues with him now and I am not quite sure how to deal with it. I am hoping you may have some 'pearls of wisdom' that might help me through this.
<<Disclaimer: Verify this information before applying it to your situation.>>
We like making pizza in our family, and I want my daughter to be able to eat it too. Anyone have any recipies for pizza dough? We have a bread maker, and that's what I usually use to mix the dough. Kris
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi,
I am having a hard time finding confirmed gluten free hot dogs for my two year old. I've tried hebrew national (that are on the CSA GF list) but he is having a bit of reaction to them. The ingredients look ok but not sure if there are contamination issues. Any suggestions for 'kid-friendly' GF hot dogs?
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi, I just got a question from the preschool teacher about using stamp pads for a craft project. The projects involves the kids using their thumbs to make prints on paper. Does anyone have information about stamp/ink pads and whether there is any gluten concern?
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear friends:
The Central NJ ROCK (Raising Our Celiac Kids) group will hold it's first meeting of the season on Thursday, Sept 23 at 7 pm at the Monmouth County Public Library in Manalapan on Symmes Road. We welcome parents of celiac children, adult celiacs, family and friends who want to join us to share ideas about living a happy, healthy gluten free lifestyle.
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear All, Dana is now turning 6 and was diagnosed with CD 4 years ago. She is doing great! She is under a strict GF diet but we were lucky enough to have the needed support both at home and at school. We are planning now a great adventure: My wife and me, together with our 3 kids (Sharon, Dana and Mark) are heading to Disney next November. Here in Argentina we know what to buy and where to eat, but USA is s different country, isn't it? I need
After Sun Treatment Alcohol-Free Antiseptic Cleanser (Discontd) Alcohol-Free Toner Anti-Cellulite Treatment Anti-Residue Shampoo Blackhead Eliminating Astringent Blackhead Eliminating Daily Scrub Blackhead Eliminating Treatment Mask Body Clear Body Lotion (Discontinued) Body Clear Body Scrub Body Clear Body Wash Body Emulsion Body Lotion Body Oil Clean Conditioners- All Clean For Color- Color Defending Foam (Discontinued) Clean Replenishing Instant Shine Detangler (Discontinued) Clean Shampoos- All Cleansing and Makeup Removing Towelettes Clear Pore Cleanser/Mask Clear Pore Oil
<<Disclaimer: Verify this information before applying it to your situation.>>
I guess I wasn't clear in my questions, a lot of people didn't understand that my concern is her touching my face/make up and getting it into her mouth or me kissing her and it getting into her mouth.
Here are the responses I got from a number of people. Thanks to everyone who responded!
<<Disclaimer: Verify this information before applying it to your situation.>>
Please tell me if I am being silly or not. Do any other mothers' worry about their makeup contaminating their CD kids? I have been making sure that my base, powder and lipstick is GF. I was using Cover Girl but they will no longer give status of their makeup. Does anyone know of another pharmacy/grocery brand that is safe?
<<Disclaimer: Verify this information before applying it to your situation.>>
My daughter is 3 and we are getting ready for preschool this fall. I know that envelopes, stamps, etc. that must be licked contain gluten. I am wondering about self-adhesive stickers (and foamies). I have tried contacting several companies and have been told they are unsure whether gluten is in the adhesive.
<<Disclaimer: Verify this information before applying it to your situation.>>
My daughter starts preschool this fall. I know most play-doh has gluten in it. Does anyone know of a gluten-free play-doh that can be purchased? (I know there are recipes...) Thanks, Tania Pineo
* General celiac discussions should be sent to CeliacMAELSTROM.STJOHNS.EDU *
<<Disclaimer: Verify this information before applying it to your situation.>>
Our 3 1/2 yo son was just diagnosed with celiac disease. We are already GF at home because his father has celiac disease, but we would welcome help with the following issues:
1. a sample letter or good way of educating the daycare/preschool, friends, etc.
<<Disclaimer: Verify this information before applying it to your situation.>>
We just returned from two short trips - one to San Francisco (where we stayed in a hotel with a kitchenette) and the other to Traverse City, Michigan (where we stayed in a hotel that said they had a kitchenette, but really only had a small fridge - no freezer - and microwave oven. However, we have relatives there so we could use their gluten-filled kitchen - another first for us). We considered both trips to be successful since our celiac daughter did not get very ill - only a
<<Disclaimer: Verify this information before applying it to your situation.>>
Our 4 and a half year old daughter has been on the GF diet for 7 months. Her moods have improved greatly but still has days of many temper tantrums which are possibly caused by gluten contamination. These temper tantrums can last for an hour and she goes into a raging state in which it is impossible to calm her down. Afterwards she is sugary-sweet and extremely good natured. It is like a Dr Jeckll and Mr Hyde episode and we are at wits end dealing with these. We are
<<Disclaimer: Verify this information before applying it to your situation.>>
My daughter was diagnosed at 1 and 1/2 with celiac disease. We try very hard to follow a strict gluten free diet. She is 6 years old now and very healthy. The biggest frustration we have is with cross contamination. My daughter is quite sensitive, so we see reactions in terms of her moods quite quickly, along with tummy complaints and looser bowel movements. We are trying very hard to find a gluten free hot dog right now. We have found many that in terms of ingredients seem to be
<<Disclaimer: Verify this information before applying it to your situation.>>
Many of you suggested allergy testing. What kind of allergy testing is best and who should do it? GI docs or allergist? Has anyone heard of the ALCAT test?
Also, thank you all so much for your responses to my question about my daughter's very tentative diagnosis. We have an appointment with Dr. Fasano at University of Maryland next month and I now feel more informed about what to ask him.
<<Disclaimer: Verify this information before applying it to your situation.>>
My son is off to "Bug Camp" at our local children's zoo next week and I need ideas for gluten-free "spider legs."
The teacher, a wonderful woman who has taught celiac kids before and understands their special requirements, told me that one of the most popular projects of "Bug Camp" is when they make cookie spiders and she asked if I could possibly send along safe substitutions for the usual ingredients. I can make GF cookies, frosting and find candies for the decorations, but I can't figure out what to
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi there..I live in Colorado Springs and I was wondering if there might be anyone else in the same area. I'm thinking of starting a ROCK group but am new to this and was hoping to have some help :). If you live in the springs or know anyone who does would you let me know, if you are interested.
<<Disclaimer: Verify this information before applying it to your situation.>>
My daughter is 3 1/2 years old and we have a very tenuous Celiac diagnosis. I would like to know if anyone else has experienced similar issues. She grew normally until she was one. Then from 1 - 2 she only grew 2 inches and 2 pounds. At age 3 she started complaining of stomach aches. (not very bad but almost everyday.) She also is fairly moody and doesn't have a bowel movement everyday but those are very tenuous "symptoms". I realize they may just be her. Her growth picked
<<Disclaimer: Verify this information before applying it to your situation.>>
thanks to all -- many of you have come across taco seasoning that is not GF. I'll send in a substitute for the sloppy tacos. She probably won't mind this -- she is very accepting of the diet. We are fortunate that either (A) she never gets exposed the gluten (yeah, right!) or (B) she has very mild reactions (once in awhile there is inexplicable diarrhea or stomach ache). There is a camp sleep-over Thursday night, so I know she won't want to have an upset stomach for that.
<<Disclaimer: Verify this information before applying it to your situation.>>
Tomorrow's lunch menu at my daughter's day camp is "sloppy tacos" -- tortilla chips and taco meat. No one at camp can tell me the ingrediants. I don't think I have ever seen an (unflavored) tortilla chip of any variety that has wheat or any other gluten-containing ingredient in it. Of course, the taco meat may be more suspect, but once again, I don't think I've ever seen taco meat that had ingredients that were off-limits. I'm tempted to let her eat it, but am still concerned. What would you
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello all. My son suffered from stomach aches, bloated tummy, bowel accidents, foul smelling bowel movements that floated (classic symptoms) for about 3 years. Our family doctor suggested he be tested for celiac disease, and so we had the IGa and Igg tests done. he came back strong positive (34) for Igg, normal for Iga. The doctor told me he had celiac disease and recommended a gluten free diet and follow up with a specialist. We immediately started the GF diet, and saw improvement right away. Six weeks into this,
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi, I'm Anastasia and one of my twin nephews is autistic, he is a gorgeous little boy and very affectionate, unfortunatly he is allergic to wheat, gluten, yeast, dairy, strawberries, and some starches. He goes wild whenever he sneaks those things and it's getting increasingly hard to keep them away from him now that is is 5, and his twin brother isn't allergic to anything, He has started stealing food at his kindy, from his brother, off other restaraunt tables, etc, anywhere he can get it, he is not under
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello all.
My 2 ½ year-old son has been gluten-free for over a year. Unfortunately, we were told to make him gluten-free before his biopsy in April 2003. He was gluten-free for three weeks prior to his biopsy and for four weeks prior to his blood work.
<<Disclaimer: Verify this information before applying it to your situation.>>
My 4 year old is celiac and soy allergic. Until recently, Jamba Juice fruit smoothies were one of his favorite treats. But now the company has introduced a diet version of their shakes that contains Splenda (artificial sweetner) and since then he has had unpleasant reactions to every smoothie he has had. Once he was given a diet smoothie by mistake, and had a nasty reaction - cramping, diarrhea, nausea for 3 days, so I suspect his ongoing reactions are due to cross contamination in their blenders.
<<Disclaimer: Verify this information before applying it to your situation.>>
While one listmate reported that she and her daughter were unable to tolerate any brand of marshmallows I received no responses that anyone has had difficulty with this particular brand. Some suggestions were that perhaps the corn syrup or modified food starch were problem ingredients for my son. Turns out that it is the gelatin that is problematic for my son. Gelatin in Hy-Vee marshmallows is derived from pork, to which my son is allergic. I never would've made the connection were it not for listmate Carol who happened to
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi group,
Does anyone have any experience with this Iowa City peds GI? We live in Des Moines. Dr. Grothe left our practice in November and now Dr. Gregory is leaving as well. I called Omaha and was told they could see my kids in August. Dr. Bishop is able to see them in June. I'm looking for insight as to what it's like to work with him. Also, does anyone have any tips on (or pitfalls of) having your kids see a peds GI who is several hours away
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi group,
Has anyone had problems with these? The last three times I've made cereal treats my son has had diarrhea, been irritable and unable to sleep. The cereals I use in the treats he is able to eat without incident several times per week. This product is listed in the CSA Commercial Products Listing as being gf. Thanks for the feedback.
<<Disclaimer: Verify this information before applying it to your situation.>>
Has anyone with DH noticed a reaction to Enviro Kidz Peanut Butter Panda Puffs or Koala Krisp cereals and also their new Crispy Rice Bars? They are clearly labeled gluten free, however, my 3 year old seems to be extremely sensitive. We just discovered after weeks of searching that she was reacting to Arrowhead Mills Buckwheat Flour. The company says they use gluten free ingredients and they are very dedicated to washing their lines between runs but that they do make several other gluten containing flours and that it would
<<Disclaimer: Verify this information before applying it to your situation.>>
If you have celiac kids and/or are part of a support group which includes celiac youth, please read/respond to the following (if you have not already done so). Thank you VERY much! You can email us directly at [log in to unmask]
Hello! Our names are Mo and Shira from MoShi Strategies and we are working in partnership with the greater Celiac Community to do a needs assessment and possible curriculum development on a childrens support group curriculum. We are also researching the need for a parent support element to the curriculum. We
<<Disclaimer: Verify this information before applying it to your situation.>>
Fort Worth ROCK will be have its April meeting and Easter Egg Hunt on Saturday April 10th at 10:00 am.
Location: UICI
9151 Grapevine Hwy (Hwy 26) North Richland Hills, TX
The Easter Egg hunt will be held in the grassy areas behind UICI and we will also have our usually meeting with lots of goodies. Please remember to bring a basket or bag for your children to put their eggs in.
<<Disclaimer: Verify this information before applying it to your situation.>>
Our family is fairly new to gluten-free holiday cooking. Does anyone know of a gluten-free whole ham for Easter. We've tried contacting several companies with no response. We would like to cook one ham for the whole family instead of a separate portion for our six year old celiac.
<<Disclaimer: Verify this information before applying it to your situation.>>
My 19 month old daughter was recently diagnosed with Celiac Disease. She has been on a GF diet for just over one month. My concern is regarding what appears to be joint pain around her hip area. We first noticed this about three months ago, right around the time we started looking into her bloating and lack of weight gain. Initially we thought she had pulled her muscle, or bumped into something while playing. But it has not gone away, and appears to be getting worse. She is very uncomfortable
<<Disclaimer: Verify this information before applying it to your situation.>>
3rd Annual Int'l Walk for Celiac Disease in Spring Lake, New Jersey to benefit University of Maryland's Center for Celiac Research Sunday, May 23rd North Pavilion 9::30 registration 10:300 Walk begins Join us as we walk up to 4 miles along the picturesque boardwalk of Spring Lake overlooking the ocean and beach and enjoying the company of many people with this lifelong disease. Gluten Free Vendors, refreshments, door prizes!! Great prizes for top fundraisers include NFL tickets, dinner gift certificates, and much more!!
<<Disclaimer: Verify this information before applying it to your situation.>>
We complain so much when we are dismissed or treated poorly by companies. Well I want to tell you all about a great experience my celiac daughter had today.
My daughter is 8 years old and has been diagnosed celiac for 5 years. The diet is second nature and she really is a great sport about things she cannot eat. Her school had a magazine fundraiser and as one of the prizes for the number of magazines she received a candy necklace. I called the number on the necklace to
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi to all I am sorry if this is a repeat. I have tried several time to send my summary but have not seen it come through. I will send the bulk of the responses in a Word Document to any interested parties. I will gladly send them to you. The attachment of responses are very interesting and informative. I also have 2 people who offered to help any one with questions. you can email me for their names as well. I know now that you can send posts that
<<Disclaimer: Verify this information before applying it to your situation.>>
I am sending this again and in 2 parts. I now it is rather long but I feel all the comments made are valuable to anyone dealing with the public schools.I am sorry for any inconvenience.
Here are the results of the survey.There were a total of 67 responses.
<<Disclaimer: Verify this information before applying it to your situation.>>
I forgot this one thing: "There are several common misconceptions about the criteria for eligibility for 504 Plans. Section 504 does not require a child to have a learning disability or for a physical disability to impact the child's academic ability. For example, a student who is in a wheelchair (physical disability) who is earning straight A's (no learning disability) must be provided with a ramp to access the school. Similarly, a student with Celiac Disease (and yes, it does qualify under the definition of physical disability) who earns straight
<<Disclaimer: Verify this information before applying it to your situation.>>
Hello all. I will try to keep this brief. I would sincerely appreciate any help. I'm a bit lost right now.
My son is two years old. In January 2003 he was diagnosed with milk and egg (white and yolk) allergies. In May 2003 he was diagnosed by endoscopy with CD. We keep a gluten-, milk-, egg-, peanut-, tree nut-, shellfish-free house. All foods in the kitchen are on the gf list provided by the Celiac Sprue Association and I have read every label in the event of a manufacturing
<<Disclaimer: Verify this information before applying it to your situation.>>
R.O.C.K. Raising Our Celiac Kids
SUPPORT GROUP FOR KIDS WITH CELIAC DISEASE Thursday, February 19, 2004, 7:00 p.m.
The Central New Jersey chapter of R.O.C.K. (Raising Our Celiac Kids) is hosting a support group meeting on Thursday, February 19 at 7:00 p.m. the Monmouth County Library Headquarters, Symmes Road in Manalapan, New Jersey.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi to all, I would appreciate if you can all take a moment to respond to this quick survey regarding schools and celiac. your input is greatly appreciated.
How supportive are schools in meeting the needs of students with Celiac Disease?
The Greater New Haven Celiac Children's Group is conducting a survey to determine how aware parents are about 504 Plans* and to determine what accommodations schools make for children with celiac disease. How aware is the education community about Celiac Disease? How aware are parents of their children's rights
<<Disclaimer: Verify this information before applying it to your situation.>>
I'll be talking in Palm Desert, CA this Saturday, January 24 at 1 p.m. -- the topic is "Living and Loving the Wheat-Free/Gluten-Free Lifestyle" -- I'll be covering a lot of the state-of-the-art research, too, as well as the subject of raising happy, healthy, gluten-free kids. I believe the talk is free.
<<Disclaimer: Verify this information before applying it to your situation.>>
ORIGINAL EMAIL QUESTION: Our 12-year old daughter has missed enough school over the years due to health-related problems that she has real gaps in her education. She was diagnosed with celiac last April, and still is not 100%. Most recently, in October, she was diagnosed with acid reflux as well, and has taken Nexium (40 mg) for two months. Since her symptoms and diagnosis with reflux, she has missed so much school that we have decided to homeschool her or seek homebound schooling to fill in her educational gaps and
<<Disclaimer: Verify this information before applying it to your situation.>>
Our 7th grade daughter was diagnosed with celiac last April. She seemed to be doing a little better on the GF diet (i.e. she would have a good day every week or so), but began to have strong stomach acid pains in October and has been on Nexium (40 mg) for two months and is about to try a lower dosage. She has missed approximately 1/4 of her school days this school year (and many more classes, as she is worse in the mornings and therefore goes to school late
<<Disclaimer: Verify this information before applying it to your situation.>>
Do you think it would be OK to give my 5 year old daughter with Celiac an occasional bath using Aveeno Soothing Bath Treatment (Colloidal Oatmeal 100%?) She has severe eczema from time to time.
Thank you for your opinions on this and I will summarize.
<<Disclaimer: Verify this information before applying it to your situation.>>
Our 2 1/2 year old girl has just been diagnosed with celiacs. She has a nine month old sister that we will continue to feed food with gluten until she is 2 or so and then probably have tested. I guess we could just use some encouragement ... what really works for breakfast, when traveling, good bread recipes ... etc Thanks
<<Disclaimer: Verify this information before applying it to your situation.>>
I am looking for a gluten-free glue stick. I know Elmer's glue is okay, but for young children, glue sticks are so much easier. If anyone knows a brand name, let me know. I've contact several companies with no response about their products as of yet. Thanks, Dawn PA
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi everyone...I just wanted to introduce myself.
I am new here and I have a little two year old that has celiac disease along= with severe allergies to milk protein (casein).
I do have a quick question about this Halloween. Does anyone have any tips about trick or treating that you all do? I got some tips about going around giving candy that she can eat to the houses and then when we come they will give that to her but we recently moved and know no one here. Any
<<Disclaimer: Verify this information before applying it to your situation.>>
Several people wanted to know how to get the pamphlet for adults working with GF kids. I made a mistake in my original email, it was put out by Gluten Free Living. I have made copies and provide one to teachers, camp counselors, afterschool program staff, etc. I would suggest that you contact them at [log in to unmask] to find out how to get a copy.
<<Disclaimer: Verify this information before applying it to your situation.>>
Hi all.
Just thought I'd pass on a success story in the hopes that it might help another child who has to drink a barium preparation for an upper GI. This morning we put powdered Tang in the barium mixture and my 23-month old son drank plenty without any coaxing. He is usually not a big fan of "new" drinks. According to CSA's cooperative food listing Tang is gf. Hope this helps someone.
One person suggested I NOT do the book for child of the week so he didn't feel like he was different, I have thought about hat and will leave it up to him. Either way I will share it with the class as one parent said she
<<Disclaimer: Verify this information before applying it to your situation.>>
I wanted to let everyone know about a positive experience I have had with my son's school nurse and his teacher. Jeremy just began Kindergarten. Before school started I spoke with both his teacher and the nurse about managing his diet and my desire for him to have as positive an experience as is possible in school. I asked the nurse if I could keep some GF food in her freezer and she agreed no problem. I gave his teacher a copy of the Gluten Free pantry pamphlet for adults
<<Disclaimer: Verify this information before applying it to your situation.>>
HI,
WITH THE HOLIDAYS COMING UP DOES ANYONE HAVE A GOOD SUGAR COOKIE RECIPE FOR TODDLERS? I HAVE A 21MONTH SON WHO HAS CELIAC AND HE LOVES SWEETS. ANY SUGGESTIONS WOULD BE GREAT.
THANK YOU, C MCGINLEY RICHMOND, RI
* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *
<<Disclaimer: Verify this information before applying it to your situation.>>
Dear Listmates, I need your help. I know that many of you are bold adventurers who don't let your celiac get in the way of your lives, but we are not.
Can you please share your secrets for fear-free travelling with me?
We are contemplating our first trip away from home since our 12-year old daughter was diagnosed with celiac last April. Frankly, I am terrified. She is hyper sensitive not only to gluten, but also to canola oil (and possibly has other food allergies -- we are checking into