Hi Bobby, My physiatrist and even my gp coin the term post cerebral palsy syndrome - outlining medical issues related exclusively to the secondary effects of cerebral palsy - particularly those with regard to aging with the condition. Guess us folks in the boonies are right on top of things :) Cheers! Carla Bobby Greer wrote: > Steve and all, > > My server is finally working now, so I can respond. > > These "use of lose it posts got me to thinking. The people with polio > coined the phrase, "Post-Polio Syndrome" to denote the destruction of > healthy muscle fibers remaining in atrophied muscles. Polio, per se, did > not "cause" this destruction, rather it was brought on by active over-use > of already weakened muscles. > > Maybe we should begin to speak of a Post Cerebral Palsy Syndrome in > a like manner? > > What do you guys think?? > > Bobby > > >Deri, > > > >Seems to me one of the problems is we don't know about CP and Aging and we > >need to find out. We find our CP bodies go through severe and unexpected > >"traumas." Between 15 to 46 a number of us have symptoms, events, and > >changes to our bodies that medical and therapeutic procedures may ease and > >usually don't sufficiently remedy. > > > >When we go to doctors there's often a gap between what they know and what we > >present them. > > > >Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages escape me > >at this hour, experience "accelerated aging?". Kyle and I had our "onsets" > >at 46. He was athletic, I wasn't--though very active. > > > >I sense we need to restate CP to include the likelihood of further injury > >and difficulties if only to be more watchful and aware of possibilities. We > >much need more and better "medicine," better informed doctors. > > > >I assess you're questioning whether the phenomena of CP and Aging exists or > >exists distinct from Aging. To me CP speeds up and aggravates wear and > >tear, then impedes full repair and worsens matters over time. Remedies > >elude. Whatever we call it, something's happening, and it isn't all in our > >minds. > > > >Steve M. > > > > > >From: Deri James > >Subject: Re: Use it or loose it?? > >Date: Thu, 4 Nov 1999 04:31:02 +0100 > > > > > >I'm not entirely convinced by the arguments for 'Ageing with CP' being an > >entirely separate issue than just 'Ageing'. Of course physical abuse, be it > >inflicted from over doing sports when > >young, incorrect dietary habits, substance abuse, or an abusive spouse, will > >come back to haunt us as we age, just as they would anyone. > > > >It is hard to gauge which problems are purely CP related. > ><snip> > > > >Cheers > > > >-- > >Deri James