<<Disclaimer: Verify this information before applying it to your situation.>> Hi Debi~ Well nothing like hearing of anothers trials & tribulations to make you feel like your problems are not so bad. Interestingly enough I was feeling quite bad about having been diagnosed w/ sprue & diabetes within a year of each other in my late 30's-- others chimed in that from where they were sitting- having had these diseases since childhood, I was *lucky* to have that many years free of it. When you put it in that perspective...... I guess I am. I have a great deal of sympathy for parents of kids w/ both disease because this is hard! You have to kind of "be the pancreas" for another individual while under the influence of growth hormones...... and quell the small intestine. Jeesh! As if parenting in & of itself were not hard enough. So I applaud your ability to hang in there & try to ride the wave till some semblance of stability occurs. diabetes is one of those tricky diseases, and some stuff you just can't measure...... such as stress and activity levels. You can't weigh stress, but it sure packs a lot of weight in the bg department. You wrote: Well at least I am not alone, I am sooo tired of trying to give my daughter foods that will accomodate her diabetes (insulin dependent since age 1) while adhering to a gluten-free/ lactose free/casein(maybe) /no hydrogenated fats /no soy ..and try to keep her Glucose levels stable! Arg. >>>>All the added stuff has to be *hellish* to try to navigate in the real world (outside of the safe zone of your kitchen). You have my full sympathy. You must spend a lot of time in the produce section of the store! Maybe you can apply to the Guiness Book of world records for "read most labels". Ok having to decipher the fine print & know if something is safe is a real pain in the patutti, but at least you should get some kind of credit and recognition for this valiant effort. Her blood sugars fluctuate from 3mmol/L and jump to 26mmol/L >>>Ouch--26 = 468 sky high! Then the other day she has 2 major hypo-glycemic reations in a 4 hour span... ate all her meals but could not hold them down, other times she doesn't eat her meals, gets sick to her stomache and glucose levels are super high... no ryhme no reason except perhaps malabsorption I don't know!!! >>> That is a major problem. I would go see the endo (hopefully a pediatric endo) Schedule an appointment NOW-- you'll need it in 5 months! But seriously- there must be a way to have this dubbed more serious & bump the appointment sometime sooner. Squeaky wheels get the grease. Make a fuss & get in to see the doc. Endocrionologist's are so busy here that it is at least a 5 month wait for a 10min. appt. .. since her Dx of celiac we have not yet seen the Diabetic spec. , nor gastro.... she has had incurred kidney damage (ERF stage 11),so we are afraid to give her to much protein in case it "taxes" her kidney's yet we are afraid to give her too many carbs in case her intestines can not handle it.... >>>You did not mention her age. At any age, if she has kidney damage etc.... and having such wild fluctuations..... something needs to be adjusted. If she's older, she may be a pump candidate. (I can fwd a good article on that) You need to have specific guidelines on the kidney care..... If they won't budge on an appointment, next time she has a hypo, bring her into the emergency room. One way or another..... don't let this go on for any length of time. I understand the canadian medical system is different than US, but you have to find a way to creatively get what you need. Don't back off till you do. I love my daughter more than life itself and would give anything to have her happy and healthy . I would give my life for her........ She is My Hero ... >>She's fortunate to have you on her side! YOU are probably HER hero! I find myself standing in my kitchen just totally perplexed . food is becoming the enemy! HA ha ha.... it does seem that way does it not??!! Sorry for the vent, I was about to implode! I'm glad you did! That's what we are here for..... I was beginning to wonder if this list was still functioning! I bet we all of have lists of things we are *dealing with* specific to this disease combo, but nobody's talking! ~fran