<<Disclaimer: Verify this information before applying it to your situation.>> I too have been experiencing the same problem with weight loss. Weighed 96 fourteen years ago when diagnosed. After going on the diet weight increased to as much as 106 about 10 months ago. Then I gradually began losing weight, became very ill in April 1995 and am now back down to 95. Adhere strictly to a gluten free diet. The doctors don't seem to be concerned about this loss, but there must be a reason???? If the doctors are not concerned I guess there's not much else to be done. It is very frustrating . . . one can't help but wonder if there's something lurking in the body that someone should investigate further. Frustrated.