<<Disclaimer: Verify this information before applying it to your situation.>> My original post asked for the recommended tests as part of one's annual medical checkup since I have been gluten free for nearly 3 decades with no particular attention paid to my Celiac condition. The good news is that we seem to be pretty healthy after decades of being gluten free and following a well rounded healthy diet. I hope the links come through ok as I have had problems in the past with extra characters. Summary: Several responders requested a summary as they in the same situation as me. 1. <www.napervillegi.com> Look under "Care for patients with celiac disease". It's the first item after the support group info... [this is Dr. Holland's website and is essentially the same as #2.] 2. Listserve post by Dr. Holland Sent: Monday, March 01, 2004 6:00 PM, Subject: Re: Yearly checkups You can search the archives for this post with this link <http://listserv.icors.org/archives/celiac.html> 3. From Canadian Celiac Association website - <http://www.celiac.ca/EnglishCCA/ereference.html> Gluten: Dietary Devil? "Dr. Anisha Lakhani, a clinical Assistant Professor at UBC, Faculty of Pharmaceutical Sciences, authored this paper in the August 2007 (vol.23, #8) edition of Pharmacy Practice. Dr. Lakhani concludes, "Patients who are closely followed by a coordinated, multidisciplinary healthcare team will most likely derive the most benefit. Pharmacists, as members of the team, can have a significant impact in assisting in the care and counseling of patients with CD." We acknowledge Pharmacy Practice who granted permission to reproduce the article. " <http://www.celiac.ca/pdfs/Pharmacy_Practice_08-2007.pdf> 4. From <http://www.celiac.com/articles/68/1/Tips-for-Celiacs---by-Ann- Whelan/Page1.html> Tips for Celiacs - by Ann Whelan The following article was published in The Sprue-nik Pres, Volume 9, Number 1 January 2000, Published by the Tri-County Celiac Sprue Support Group, a chapter of CSA/USA, Inc. serving southeastern Michigan. [Go to the website for the full article. Here is a partial extract:] "Have an annual physical exam that includes a complete blood count (CBC) and stool testing, according to Dr. Joseph Murray of the Mayo Clinic. He thinks you should have thyroid testing every other year, but if you already have thyroid disease, more frequent testing might be advantageous. The experts also say you should have serology antibody testing once a year to test for compliance with the gluten-free diet. A positive result almost always means some gluten has been inadvertently ingested. Dr. Murray says you then have to: Check your diet, check your diet again, and check your diet a third time. He also recommends taking one good multi-vitamin a day that includes 100 percent of the recommended daily amount of B-complex vitamins, iron, folate and other vitamins and minerals. Whatever other supplements you take will depend on your own personal needs. You will need to investigate the possible gluten content in everything you ingest, including (and especially!) vitamins and medications. We have to be careful of everything that goes into our mouths, but especially of anything we take every day." 5. I've been wondering the same thing and have a history somewhat similar to yours. I have been strictly gf for the past 15 years and was dx by bloodwork and had never had any follow-up celiac testing. I just had a "celiac disease panel" run by my endocrinologist and all was clear; my dr. said that "all my numbers looked good, no evidence of celiac damage." The panel included the tests for tissue transglutaminase antibody, Iga, immuoglubulin A, and gliadin antibody (Iga). My doctor didn't go over the testing for this line by line b/c nothing showed any pathology. I was particularly interested to know whether I had the Iga deficiency, but it showed negative, and the doctor said that this "opens you up to a whole different world of autoimmune problems so it was good that I don't have that." At any rate, those were the tests done. I plan to have him go over this in more detail at my next appointment. 6. You should have the gluten blood test every year to make sure that your levels do not show any gluten. You should also have a cbc panel and a white blood cell count test as well as a sed rate. For people with celiacs disease their sed rates are sometimes higher which can mean gastritis or an irritation of the stomach lining. Also every two years you should be getting scoped especially if you are over 50. Upper and lower GI. 7. I have also followed a gf diet for 21 years. I never had follow up tests. Recently I had a nodule in my stomach and they needed to biopsy it. While they did they did the celiac biopsy and it came back healed. I think if I did not need the stomach biopsied I would not have done any follow up testing because I knew I was 100% gluten free. Finally, please respect the copyrights of published materials quoted in this summary. Barb * Send administrative questions to mailto:[log in to unmask] * Archives are at: Http://Listserv.icors.org/SCRIPTS/WA-ICORS.EXE?LIST=CELIAC