Hi Everyone, As most of you know by now, I will not be receiving an intrathecal baclofen pump in LOndon. The team did a double blind placebo controlled study, and found that the placebo worked just as well as the baclofen did... This is only because, both times I was given a lumbar puncrture, the neurologist hit a nerve. Even though I knew the second day was the real baclofen (was just weaker than usual), I could not differentiate b/w that pain and the pain I would have on a normal day. I wrote that down on all of my pain rating scales they were giving me to do. So I did not think the testing was all that fair, especially with the doctor inflicting pain. I have been taking antiinflammatories for 2 days vand morphine every 1 and a half hours and still feel like crap. Even worse, my own Mom CAME HOME TO TELL ME THAT IF THIS DID NOT WORK, THE PAIN MUST ALL BE IN MY HEAD. She does not tell this to her father who has phantom limb pain, but she will tell it to her daughter. IT hurts wors than the pain does. My physiatrist in Ottawa was kind enough to make a long distance call and talk to me. He asked if I had questioned the the team about that, and about other intrathecal medications, but was told no. The physiattrist said that at this point, he wants to find the best meds for me, and then find a way to get them into a pump-- I will be less tired, etc. He assurred me that the pain was not in my head... but I was so hurt w/ my Mom's comments. Any comments, suggestions, etc. Jenn PS Sorry if I sent two of these, but the message is not coming through.