<<Disclaimer: Verify this information before applying it to your situation.>> Educational Lobbying March 19th -- DDNC Digestive Disease National Coalition (DDNC) 2001 Public Policy Forum This annual event brings together digestive disease patients, physicians, nurses and industry representatives for 2 days of educational programs and legislative activities. Goal: 1. To brief participants from around the country on federal health care legislation and policy 2. To educate members of Congress on issues of concern to the digestive disease community Dates: Sunday,March 18 (optional) and Monday,March 19 Where: Washington Court Hotel 525 New Jersey AveNW Washington DC20001 202-628-2100 To RSVP yourparticipation: 1. Make your own hotel reservations with the Washington Court Hotel if needed. DDNC has reserved a block of rooms. 2. Complete the attached RSVP form and fax to the DDNC at 202-546-7105 3. There may be some financial support for patients to attend forum. Schedule: Sunday, March 18 -- Washington Court Hotel 4:00 -- 6:00 Issues Briefing -- Presentations and discussion on digestive disease research, patient access to care issues, hepatitis, colorectal cancer and other DDNC priorities -- Dr Allen Speigel, Director of the National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) -- invited speaker 6:00 -- 7:30 Reception (also a time for people representing CD/DH to get together) Monday, March 19 -- Make Your Voice Heard on Capitol Hill (on Capitol Hill -- TBA) 8:00 -- 9:30 Continental Breakfast (no GF pastries. Juices, fruit and coffee available) Preparationfor Congressional Visits 10:00 -- 12:00 Morning Congressional Visits -- Teams consist of patients, physicians, and nurses will meet with their senators, representatives and congressional staff 12:30 -- 2:00 Capitol Hill Luncheon with Guest speaker (usually will include things acceptable to a GF diet) -- The following people have been invited to speak o Senator Hilary Clinton (D-NY) o Senator Herb Kohl (D-WI) o Congressman Charlie Rangel (D-NY) o Congresswoman Anne Northup (R-KY) 2:30 -- 4:00 Afternoon Congressional Visits 4:15 DebriefingSession There may be some financial support available from DDNC for patients to attend the forum. Digestive Disease National Coalition Please RSVP For The 2001 Digestive Disease National Coalition Public Forum Washington DC, March 18-19 Fax: 202-546-7105 Name: _____________________________________________ Address: _____________________________________________ _____________________________________________ _____________________________________________ Phone: (______) _______ - __________ Fax: (______) _______ - __________ Email: _________________________________________ Are you a patient,parent of a patient, physician or nurse? ______________________ What DDNC MemberOrganizations are you affiliated with? Gluten Intolerance Group and Celiac Disease Foundation Please fax this form to the DDNC at (202) 546-7105 Submitted by: Gluten Intolerance Group (GIG) 15110 10th Ave SW, Suite A Seattle, WA 98166-1820 Telephone: 206-246-6652 Fax: 206-246-6531 Website: www.gluten.net Email: [log in to unmask] Executive Director: Cynthia Kupper, C.R.D. Nancy Seattle, WA USA