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I am very impressed with the many thoughtful responses.  You folks are so knowledgeable.  
   
  I have used a sports cream (Preform) to deaden pain for the last two nights and it worked. That may settle that it is Peripheral Neuropathy.  I have also upped my Vit. D a bit more. I checked all my sources of B-12 and find I am getting lots of both.  It could be too much, so I am going to stop the sublingual one that isn’t as absorbable into the tissue.  I am buying a blood monitor to check my sugar levels for a couple weeks (maybe 2 – 3 times a day.  My Dr. has ordered some blood tests to check for certain proteins to determine if there is a disease cause.  I think with all these wonderful suggestions, I should be able to find the real culprit.  
   
  Thank you so very much.  Sue
   
   
  Summary of responses for burning feet:
   
    
   If it's particularly on your soles and toes, it may be an athlete's foot infection. When left untreated, it can affect nerves and feel deeper than just the skin.  
   it sounds very much like my mother's peripheral neuropathy - caused by nervous system damage due to gluten intolerance.  
   My feet are burning HOT every night - but NOT burning, like stinging or tingling.  I make my side of the bed (sheets) in my own funny way because I MUST be able to get my feet out on demand. Sleeping in a sleeping bag (zipped shut) is a bit of a nightmare for me! My family laughs as I routinely pull out all those tucked-in sheets first thing on a hotel bed. 
   
  I have been this way for years.....  10-15???  I was diagnosed with CD 15 months ago, and maybe my "hot feet" is a little less intense since being GF, but I hadn't really noticed any change and am just thinking about it now that you've brought it up.
   
  I used to almost always get up in the middle of the night (in our hot Fresno summers) to go sleep on the floor because I had so heated up my side of the mattress and could find no place to lie that didn't seem burning hot. That was MUCH better this last summer when I was GF.  AND I am 51.
   
  I am supposed to take a baby aspirin daily for high platelets ("thick blood") and I take Calcium and other supplements, but no pharmacy meds. Well they are - extra Vit A and Vit D, flax seed oil, fish oil, multi-vitamin, and fiber.
   
  Do you waken with hands tingly-numb (can't feel with them, and they feel "big" like your lips after a shot at the dentist) ?          
   
  4.  Sorry to hear that you may have peripheral neuropathy. I found out about gluten sensitivity because of my PN. I am glad to say that I have had great relief from pain with the GF diet. I was beginning to have trouble walking when I figured out the gluten connection. 
   
  How long have you been gluten free? The improvements I had were slow in coming and 4 years later I still think there are small improvements. 
   
  What kind of B12 do you take? Is it methylcobablmin? Methylcobalamin is B12 that is ready for your body to use. Cyanocobalamin must be converted to methyl and not all people can do this. 
   
  Have you been tested for diabetes? A fasting blood sugar is not good enough to rule out diabetes as the 1 and 2 hour post meal blood sugars become abnormal 5-10 years before the fasting sugars show a problem. That is why so many T2DM's already have diabetic complications by the time they are diagnosed. (sort of sounds like getting a CD diagnosis) If you are interested in reading more about diabetes  http://www.phlaunt.com/diabetes/
   
  Some supplements have been shown to help with diabetic PN.
   
  Here is a link to some of the causes: http://millercenter.uchicago.edu/learnaboutpn/typesofpn/index.shtml
   
  I hope you find relief,
   
    
   This may be a long shot...but you don't have any type of vascular issues like raynauds, do you?   

5.    I use a product called Biofreeze, which is a pain relieving 

gel. Doesn't help all the time, but does much of the time. I bought it 

from a web site called myfootshop.com. It cost about $12, including 

shipping. They also have a 1-888 number. 

I suppose many have asked if you've been tested for diabetes. You may 
  also need a bigger shoe size. Shoe size goes up as we age
   

6.  My wife is an oncology nurse and she suggests the Tamoxifen is the

 cause of your peripheral neuropathy which can also be symptoms of celiac disease

 and Sjogren's Syndrome, both of which I have along with the neuropathy

 which is mainly in my forearms. Strange.

 

7.       You might consider having your fasting glucose checked. 
  8.  Glad to hear that I am not the only one. Mine began years ago when I had Gastroparesis which is associated with CD.  The GP is gone but I sometimes stilll have the burning feet. And I take vitamins and they have not made any difference. In fact a week ago I ran out and due to the bad weather I have not been able to replace them, the burning feet have not returned but I know that sooner or later it will begin again and last for a few weeks.
  Whatever the cause it would guess it is something else.

 
  9.  Although your serum B12 is 1001, it does not tell you what is in your tissues. There is really no perfect test for that. Because you have neuropathy, you may want to switch to methylcobalamin. 
   
  A fasting blood sugar of 90 may truly be too high. The best time to test the fasting blood glucose in when you first get up in the morning. By the time you get to the doctor's office hours later, it will probably be lower. Because of your PN, your doctor may be willing to run a glucose tolerance test. If not, you can buy an inexpensive meter and check your own blood sugar 1-2 hours after meals. The link I sent you has some great info about testing for diabetes. The reason I mention this is that my fasting blood sugars in the doctor's office were always "normal" in the 80- 90's. I recently bought a monitor and have found that my blood sugar upon awakening is 110-140 and my post meal spikes go as high as 200. I have now  lowered my carbs to see how much of a difference that will make on my blood sugar.  I see my doctor about this next week. I don't want diabetes, but I really don't want diabetic complications. 
   
  Here is a paper that talks about other supplements http://www.thorne.com/altmedrev/.fulltext/11/4/294.pdf
   
  
  
  10.  One other thought. Have you had your vitamin D level tested? Apparently there is a neuropathy link. http://www.theendocrinologist.org/pt/re/endocrinologist/abstract.00019616-200711000-00008.htm;jsessionid=HtrFW9Pp5h5G4LtLhCJQhTS3nJ7g7qzb9Zswtm1lVGMGKbms1DFY!-809317659!181195629!8091!-1 
   
  Vitamin D is in the news a lot lately. Turns out most of us are deficient or sub-optimal when it comes to vitamin D. Although "normal" level is thought to be 30ng/ml or over, the vitamin D experts are saying 50ng/ml or even higher is optimal. You can read more at The Vitamin D Council.

 
  
  
   
   


Oh Bread, bless thy white glutenous face
  Savior of the human race
  Staff of Life you're said to be
  Oh Bread me thinks you're killing me!!!

       
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