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From:
George & Gayle Kennedy <[log in to unmask]>
Reply To:
George & Gayle Kennedy <[log in to unmask]>
Date:
Sat, 16 Mar 2002 10:18:16 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

>#3

>y first and only child, an 11 year-old daughter, was born celiac, although
>not diagnosed until age 3.  There is no question for me at all, in
>retrospect, that her many physical and behavioral problems starting at birth
>were caused by celiac disease, and the changes in her upon beginning the
>diet were positively dramatic.  I was very happy and calmer than I had ever
>been during my pregnancy, but I had an extremely protracted (49 hour) labor.
>I am convinced that the stress of birth was the trigger factor for my
>daughter.  I have read that the stress of pregnancy, or of labor and
>delivery, can trigger celiac in adult women.  Why wouldn't birth be a
>possible trigger for some newborns?

#4

>Both of my sons are celiacs as well as myself.  We were recently diagnosed.
>My sons are only 11 and 8.
>Looking back now, I believe BOTH my sons were BORN as celiacs.  My younger
>son had severe "colic" from birth until the age of 5 months.  The colic
>included bloating, gas, abdominal pain, diarrhea and vomiting.  He was also
>hospitalized off and on for "mysterious" immune system problems.   I had a
>happy pregnancy with only a  few health problems on my side.
>My older son did not show any symptoms other than being EXTREMELY hyper (it
>seems like it was from in utero also).  He was put on hyperactivity
>medication at the age of three and has always had trouble maintaining his
>weight.  He has been diagnosed as having ADHD, Obsessive Compulsive Disorder
>and an Anxiety Disorder in addition to having Celiacs Disease.  (We're
>hoping a gluten free diet will alleviate some of his other problems.)
>
>Please don't blame yourself for "causing" your son's celiac disease.  Both
>my sons have it and my pregnancies were very happy times for me.  I had
>proper prenatal care, a loving husband and supportive family.  The sites
>that I have read in researching Celiacs Disease says that a trigger CAN
>cause symptoms to appear, NOT that it HAS to happen in order to become
>active.

#5
>Let's say that strong emotional upset can cause CD - and I do not
>know that for a
>fact. If he was so genetically susceptible to celiac that your emotional upset
>triggered it while he was still in the uterus, then I would bet that
>if you had
>been calm and serene, he would still have gotten celiac when he got
>emotionally
>upset at starting kindergarten, or if a kid bullied him at the
>sandbox repeatedly,or during final exams.
>It is normal for a loving mom who is in tune with her child to feel
>guilt if that
>child has problems. Guilt is a mother's way of life! It is nature's
>way of making
>sure we worry about our kids, so that we take good enough care of
>them that they
>survive- in caveman days if you did not worry about your kid and
>watch over him a
>lion would eat him. We are not so far removed from that
>historically. So you are
>very properly genetically programmed to worry!  I am so glad that the
>two of you discovered what you need to do to stay healthy. You are so lucky.

#6
>I have a toddler who was diagnosed with CD at 18 months, however she
>was a preemie, born at 36 weeks and weighing only 4lbs 11 oz, she
>was 4lbs 4oz when she came home.  I had a very stressful pregnancy
>and she was early because of my high blood pressure.  She was always
>very sensitive to what I ate when she was nursed and showed signs of
>CD when she started to eat solid food, unfortunately it took me
>several months and a new doctor to get someone to listen to me.  I
>think you have a point about being born with CD.  There is no-one in
>our immediate family that has CD although I was born and raised in
>Scotland, had a grandfather with pernicious anemia and who was short
>and always skinny, and I myself often wonder if I have it.

#7

>Your observations are very interesting and very close to what I
>experienced with our daughter.  She was very "hyper" in the womb too
>and was definitely born with celiac.  She was breastfed but when I
>ate dairy, she would react from day 1.  She also began slowing her
>growth pattern dramatically when she began solids at around 7
>months.  I was very happy during her pregnancy but was a working
>mother with two small boys at home so I was stressed.  I think that
>is what triggered her celiac. She did not exhibit a lot of symptoms
>except chronic constipation and crabbiness.  She was thin but tall
>for her age.  She was a very fussy baby too and now in retrospect I
>realize that she was in pain all of the time.  I would be crabby too
>if that were the case.  She was diagnosed at 7 years old after an
>immunization triggered her celiac full blown.  She began losing
>weight rapidly and broke out in a rash all over her face.  We had
>food allergy tests done that came up high for gluten and we put her
>on a gf diet and the rest as they say is history.  She is now a
>different child - happy - no problems at school unless she cheats on
>the diet.  She exhibits ADD like symptoms.  That is how we know she
>has gotten gluten.  She does not get the typical symptoms which
>makes it hard for her to see the connection.  But recently, she saw
>first hand how much this affects her.  She was gf and studying
>something which took her 10 minutes to learn.  She began cheating
>for about 1 month.  When she had to study something of the same
>length again, it took her all day (literally) and she still could
>not remember it.  She she was cleared of the gluten, she was able to
>memorize the material in 10 minutes again.  It was an epiphany to
>her!  She could not believe that breaking her diet affects her like
>being on drugs.  She is 12 and studying this in school now.  It
>really brought it home for her. Now we have to see if she will stick
>to it.
>My husband is the "carrier" genetically and I am not.


















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