<<Disclaimer: Verify this information before applying it to your situation.>>
Hi all - Thank you all for your feedback to my questions.
FYI - These are the responses I rec'd regarding my original post as follows:
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Dr Fine is the Medical Advisor to our Celiac Support Group. There are some
150 of us who have known him since long before he went into his current
practice. Some of us believe that he can probably walk on water, but in
reality, we recognize him as not only an expert in the field, but a fine (no
pun intended) young man to boot.
You may trust the man with your health.
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I was diagnosed by Dr. Fine, and he also conducted my gene studies which
show I carry two genes. My internal medicine dr. also had me see a gastro
dr. for follow up since Dr. Fine only takes patients for consulation by
telephone, not in person. The gastro said that if Dr. Fine's testing
showed positive for Celiac, there was nothing to be gained by doing the
biopsy. Dr. Fine is an excellent researcher, and I'm sure that you can
find many posts regarding him in the list archives. I've seen a number of
posts regarding him and his research.
==========================
I was a subject in Dr. Fine's study almost two years ago, spending almost a
week at Baylor. I finally got a diagnosis and valuable help which I had
searched for in vain from my regular doctors. Dr. Fine is a fine fellow,
very compassionate. My daughter got tested by him simply through the mail
and also is gluten sensitive although she does not have CD like me.
Hopefully by going on a gluten free diet now, she can prevent damage to her
colon.
Do not let your doctors who don't understand CD test you. I did this and
regretted it. I would recommend you get in touch with Dr. Fine, who is
really an expert in this area.
Good luck to you!
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Wait until after the tests your doctor has ordered to see if you need his
tests. If it comes back positive you do not need any more tests.
I had a doctor tell me that CD was much too rare, I could not have it. It
took two more years before a University hospital knew what was happening.
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Yes, his tests are accurate, I went 18 yrs without a diagnosis and am on
the diet 28 yrs now. Had lots of damage and lots of other food allergies
and intolerances but with L-glutamine and culturelle probiotics, can eat
more now. I am still allergic to a lot of food. Don't expect miracles
overnight. It takes time to heal, maybe up to a year or more depending on
how lousey you felt and how much damage the gluten or milk did.
I never had a biopsy and I do not care to, after going g/f, the diarrhea
went away and that was good enough proof for me. I got tired of getting
invasive testing with no results and no apparent reason for my troubles.
========================
For the first "test" for $100. ++ you will find out that you are
one of app. 40% of the population that is "gluten sensitive".
Along with the-- results-- of the first "test" comes the HOOK that
if you want to find out if you have celiac disease please send in
another , I believe, $300. and they will send you the results you
were originally looking for. I suggest you get a blood test from
the university of Maryland first (free) and if necessary the
endoscopy to confirm if the results come back positive. My opinion
only.
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I have had myself & my son diagnosed after getting lab results from
EnteroLab. I highly recommend Dr. Fine's testing. The print out results
come with recommendations that were very helpful to my son. Neither my
GP nor my GI specialist would have given us as much information as we got
from EnteroLab and this wonderful site.
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