<<Disclaimer: Verify this information before applying it to your situation.>>

Request for Participants in Celiac Disease Study

Amy L. Adams (Masters of Nutrition Candidate, Bastyr University) and Dr.
Elizabeth Kirk (Nutrition faculty, Bastyr University and University of
Washington) are recruiting volunteers recently diagnosed (in the past three
months) with celiac disease for a scientific survey study.  We are studying
the pre-diagnosis diets of people recently diagnosed with celiac disease to
determine whether nutrient and food group intakes differ from the general
United States population.

We hope you will consider being a part of this study!

Participation Requirements:

1)    You must be 18 years of age or older to participate.

2)    You must have been diagnosed with celiac disease in the past three (3)
months with an intestinal biopsy.

3)    You must have lived in the United States during 11 of the 12 months
prior to your diagnosis with celiac disease.

4)    You must answer survey questions based on your diet during the 12
months prior to your diagnosis.  For example, if you were diagnosed on
February 17, 2010, you will answer questions in the survey about your diet
from February 17, 2009 - February 16, 2010.

By participating in this online diet history questionnaire (DHQ-Web), you
will be asked about your diet 12 months prior to your diagnosis with celiac
disease.  The questionnaire will take approximately one hour to complete.
You will be able to pause the questionnaire and come back to it at a later
time (by logging back in) as long as you complete the questionnaire by the
end of the study period, June 30, 2010.

To participate in the survey, you must email the researchers at
<mailto:[log in to unmask]> [log in to unmask]  You will
receive the study ID, your respondent ID and password, as well as
instructions on how to access the online questionnaire (DHQ-Web).  Email
will only be used to assign respondent IDs and passwords, answer participant
questions, and remind participants of the study period's closing deadline.
Survey results will be linked only to the respondent ID and not to any other
identifying information.  The email account will only be accessed by Amy
Adams and Dr. Elizabeth Kirk during the study period.  All emails and the
email account will be deleted after the study period. 

After completing the survey, results linked to each respondent ID will be
sent electronically to the researchers.  Because you will not enter personal
information in the online questionnaire (other than gender, and the month
and year of your birth), and we will not link respondent IDs to any other
identifiers (from email), the survey results will be anonymous.

This is a voluntary study.  At any time, you may choose not to complete the
survey or participate in the study.

Risks, Stress, and Discomfort

There should be no risks, stress, or discomfort to you during this study.
Survey results are anonymous and will not be linked to the identity of the
participant.  Participants may contact Lizbeth Adams, Ph.D., Director of the
Bastyr University Office of Research Integrity with questions about rights
as a human participant in research at 425-602-3416.

Questions

Please email Amy Adams with any questions about this study at the study's
email address:  <mailto:[log in to unmask]> [log in to unmask]
Dr. Elizabeth Kirk can also be reached at  <mailto:[log in to unmask]>
[log in to unmask]

If you would like to participate, please email
<mailto:[log in to unmask]> [log in to unmask]  Let us know
that you have read the above materials, meet the participation requirements,
and would like to be a participant.

Thank you so much for helping to increase scientific knowledge about celiac
disease!


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