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From:
Jim Lyles <[log in to unmask]>
Date:
Mon, 14 Jul 1997 23:50:02 EST
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<<Disclaimer: Verify this information before applying it to your situation.>>

Miscellaneous Notes:
--------------------

Look Beyond Celiac Disease:  Sometimes we become so focused on celiac
disease, that we assume all problems are related to it.  But that is
often not the case.  We are saddened to report that Judy Fearncombe, a
former member of our group who moved to Georgia, died a few months ago
of colon cancer.  I'd like to share the following information,
condensed from a note from Doris Fearncombe, Judy's mother:

If there is one lesson to be learned by Judy's illness and death, it
is to not overlook other causes for problems just because you have
celiac disease.  They say Judy must have had cancer in the colon for
over a year before she had surgery--and all the time the thoughts were
on celiac disease.  Her colon was completely filled in one area, and
six of fourteen lymph nodes were malignant when they did the surgery
last August.  Eventually it spread to the liver and all of the
abdomen.  The problem is they didn't do a colonoscopy early on because
everything was focused on celiac disease.  So the message is:  Keep an
open mind, don't assume that every problem is due to celiac disease.

                            -=-=-=-=-=-=-

Don't Miss This Magazine:  The July 1997 issue of _Taste of Home_
magazine has a lot of recipes that are gluten-free (GF), or can be
very easily adapted to be GF.  There are many summer salads and
desserts.  It comes out every two months, so this issue should be
available for a while.  Check at your local grocery store, or if you
miss it you can always try looking for it at the library.--Vicki Lyles

Here is a list of the recipes which are either GF or easily adapted to
be GF:

   Strawberry Lemonade             Summertime Main-Dish Salad
   Yogurt Fruit Dip                Meat Loaf Hamburgers (with a GF
   Lemon Pudding Cake (for two!)      bun, of course)
   Superstar Spinach Salad         Chicken Salad on Cantaloupe Rings
   Fruity Summer Cooler            Roast Beef and Potato Salad
   Banana Custard Pudding          Chocolate Chip Pie
   Brown Cow Punch                 Grilled Turkey Tenderloin
   Potato Pockets                  That Good Salad (without the
   Cucumbers with Dressing            croutons)
   Cheesy Potato Bake              Homemade Ice Cream
   Cattleman's Spread              Anytime Cucumber Slices
   Dilled Pork Roast               Zucchini with Dill
   Onions au Gratin                Fried Onions and Apples
   Roasted Tomato Soup             Red Potato Bundles
   Catfish Jambalaya               Italian-Style Walleye
   Wild Berry Freezer Jam          Mozzarella Dip
   Kookie Cookies                  Blueberry Sauce Supreme
   Stars and Stripes Parfait

                            -=-=-=-=-=-=-

What's in a Name?  Life is full of little ironies.  Did you know that
Phyllis Brogden, chairperson of the Greater Philadelphia Celiac-Sprue
Support Group, lives in Flourtown?  Do you think celiacs would be
welcome in Wheaton, Illinois (pop. 57,000)?

                            -=-=-=-=-=-=-

New Cookbooks:  The Houston Celiac-Sprue Support Group announces a new
cookbook by Carol Fenster, Ph.D., entitled _Special Diet Solutions:
Healthy Cooking Without Wheat, Gluten, Dairy, Eggs, Yeast, or Refined
Sugar_.  It is available from Savory Palate, Inc., (800) 741-5418.
Single copies are $19.95 plus $3 shipping.  Discounted group orders
are available.  This new cookbook (190 pages) is extremely suitable
for all celiacs and celiac diabetics.  We recommend you first read
thoroughly the Glossary of Ingredients and the appendices, which
address baking with alternative sweeteners, dairy substitutes, egg
substitutes, and wheat-free flours; hidden sources of dairy products,
corn, soy, and yeast; and food exchanges.--Janet Rinehart and Karen
Tipton in Houston<1>

_Great Gluten Free Goodies_ was written by Rebecca Riley, a
professional chef with a recently diagnosed celiac son.  The index
gives some insight into the recipe selection of items that are
initially removed from our diet, as it includes items such as
quickbreads, coffee cakes, muffins, pies, quiches, tarts, cookies,
cakes, and desserts.  Write to Promo Works, Recipes from Rebecca's
Kitchen, PO Box 372, Yarmouth, ME 04096.  The cost is $5.95 plus $1.00
for postage.--Michael Jones<2>

                            -=-=-=-=-=-=-

Boar's Head Products:  So you can't find Boar's Head Products?  (They
have several gluten-free items.)  Then call Bruce, their distributor,
at (248) 414-9998.  He will tell you what stores in your area carry
their products.--Ruth Clarey

                            -=-=-=-=-=-=-

The University of Utah is recruiting participants for a study to
detect genes that may predispose individuals to celiac disease.  They
request that sibling pairs (brothers/sisters) and extended family
members--cousins, aunts, etc.  (even distant cousins) volunteer for
the study.

The previous requirement to be biopsy-proven has been relaxed.  They
now desire samples from any pairs that are confident that they are
gluten intolerant.  They will pay to have the blood drawn.

Note that their address has changed slightly.  If you are willing to
contribute a blood sample and answer a short questionnaire, please
contact Jeff Black, University of Utah, Genetic Epidemiology, 391
Chipeta, Suite D, Salt Lake City, UT 84108; phone:  (800) 444-8638,
Extension 15075; fax:  (801) 581-6052; E-mail:
[log in to unmask]<3>

                            -=-=-=-=-=-=-

Shopping Guide Reminders:  The next edition of our shopping guide will
come out this fall.  As in the past, it will be automatically sent to
all current members of TCCSSG.  Non-members who want to buy an updated
copy should send in their request in October.  The anticipated cost is
$10, postage included.  Checks should be made payable to TCCSSG and
mailed to TCCSSG Shopping Guide, 34638 Beechwood, Farmington Hills, MI
48335.

The next edition of the CSA shopping guide is due out in July.  The
cost is $8, postage included.  Make your check payable to CSA/USA, and
request the Cooperative Gluten-Free Commercial Products Listing #3.
Mail your request to CSA/USA, Inc., PO Box 31700, Omaha, NE
68131-0700.

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