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Subject:
From:
Karen Cockrell <[log in to unmask]>
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Date:
Sat, 4 Feb 2012 15:14:20 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

Just a question - have any of you been diagnosed with colagenous colitis  
(another auto-immune condition) after suffering through a gluten  ingestion?  
On Oct. 21, my husband and I ate dinner at a Mexican restaurant  in Mesa, 
AZ (where we are spending the winter). I ate cheese enchiladas, which  have 
been a mainstay for me since I was diagnosed 14 years ago.  After  having 
eaten probably hundreds of cheese enchiladas at restaurants in every  state 
west of the Mississippi, with never a problem, I woke up on Oct. 22 very,  very 
sick.  Every sign of gluten ingestion, but where?  Called the  Mexican 
restaurant.  Turns out they put flour in their enchilada sauce to  thicken it - 
I'd never heard of that - and no one I've talked to since then has  either.  
But, the upshot of this is that I didn't get well.  I was  still sick three 
months later - don't flame me - I was so sick I couldn't figure  out how to 
get to a doctor's office.  I finally was able to get my self  together and 
saw Dr. Michael Mills in Phoenix - very good  gastroenterologist.  A week 
ago he did an endoscopy and colonoscopy with  biopsies.  Told me this past 
Thursday that I had colagenous colitis and  would call in a prescription for me 
- said I could probably manage the condition  with a few diet changes - 
yikes! more diet changes? - and medication.   Unfortunately, the prescription 
he called in for me was for the generic form of  Entocort.  And even with the 
generic and some help from my insurance, a 90  day prescription was going 
to cost me two thousand dollars.  The  prescription didn't get filled - I 
don't have two thousand dollars and if this  was going to be a lifetime thing, 
we'd be talking eight thosand dollars a year -  no way when you're living 
mostly on Social Security.  So bottom line to his  too long email is - does 
anyone else out there have this colagenous colitis and  how do you manage it.  
I would appreciate any help I can get.  I will  summarize.
 
Thanks,
 
Karen in Mesa, AZ
Home is where we park it.

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