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From:
Susan Carmack <[log in to unmask]>
Reply To:
Susan Carmack <[log in to unmask]>
Date:
Sun, 17 Mar 2002 19:24:45 -0800
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<<Disclaimer: Verify this information before applying it to your situation.>>

Hi Celiacphiles,
I received some great answers to my question:

What would you do if the next door neighbour's daughter who is in her 30s
is getting her gall bladder out in April....

Thank you everyone for helping me out.

I had sucess with a lady in our Church she had exploritory surgery she
thought she had cancer. she went on a celiac diet and her symptons cleared
up. she had the uper GI confirming the fact. Fred phillips chemist

Not everyone has Celiac disease, and it is not as common as it may seem.
She may have food allergies causing her problems (the girl next door). If
she has seen her doctor, had a Hydascan, and Ultrasound that proves a
diseased gallbladder, then I do hope she gets it out. However, a
gallbladder can be diseased and not even show evidence on films. I know
believe me! It is hard to convince people take my son he is in college away
from home it is his first year, so anyway I was just diagnosed last year I
suspect he has this as well. He refuses to get checked until he gets out in
3 more years, so what should I do? I love him, but I cannot force him to
have the blood test. Good Luck!


All the more reason we need to promote "awareness," walk for celiac this
spring. My experience matches yours, others do not want to hear about it.
It is such a shame because one feels so much better on the gluten free diet.
I am so interested to hear about the case of agoraphobia at age 30. My
Mother had it all her life, and I have wondered whether it could be among the
many things that go along with celiac disease. She was never diagnosed
celiac, but I suspect I inherited it from her. We'll have to live with a lot
of uncertainty for a time. Betty, CT

very frustrating isn't it...I see people all the time
in my massage practice who present with many of the
gluten sensitivities, but grains are the last thing
they want to give up...they would sooner give up parts
of their bodies rather than their diet!!!

You have done all you can do. Some people just don't want advice from any
source, even from the best and brightest specialists in the field let alone
a friend or neighbor. You just have to detach from the situation and hope
that they come to the right conclusions on their own at a later time. We
each have our own path in life - some take a direct route and some take the
long way around. There is no 'right' way for everyone; think how boring
life would be if we all did everything exactly the same way. Remain cordial
with your neighbor but don't offer any more advice unless he/she asks for
it. It's his or her choice even if you disagree.

I would say that if you put the information out there for them to see, you
have at least done your part. The rest is up to them. My experience with
this is that a lot of people just turn off when they hear that they can be
better, but that they have to do all the work themselves. They don't even
want to think that they will never get to eat a cinnamon roll or a Little
Debbie ever again, and they are not willing to make that kind of sacrifice.
So they end up staying sick and wanting the doctor to make it better.
At least they have information now, so they can ponder it at their leisure.
Maybe if they roll it around in their minds for a while, it may take effect.

Sometimes I wonder if wheat has something in it that really is addictive.
People just don't want to let go of it.

I'm just writing to give support. I am lucky to be alive because Don Wiss
decided to tell me about celiac disease when I was part of the yeast-list
e-mail group. Every since then I've stuck my neck out several time to tell
people with certain problems like fibromyalgia about celiac disease. I
usually get a cold response even though I'm sure fibromyalgia was one of
the many symptoms I had. Most people will say it is not a good thing to
give people advice if they do not ask for it. That won't stop me though.
If I know someone is suffering and that they might be able to get better
from a gluten free diet, I will tell them. Unfortunately in most cases,
their doctor won't tell them anything about diet so they don't believe it.
In the case of your neighbor, it's unfortunate that they probably will not
listen but I admire you for your efforts.

You did your best to help this person, so, she is free to do what she wants.
You can force her dont you?
So, your conscience should be at rest.

Hi- Coincidentally, I just sent along some info on celiac to someone I know
who had gallbladder trouble and also has agarophobia! She also has short
stature, scoliosis and osteoporosis, and her daughter was just diagnosed
with MS. She was receptive to the idea but whether she'll act remains to be
seen. Her daughter was not about to give up anything in her diet. Some
people are very resistent to the idea of changing their diet, even if it
might mean feeling better. I guess you really have to hurt bad enough, long
enough, to want to change.

I will continue in another message.......

*Support summarization of posts, reply to the SENDER not the Celiac List*

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