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From:
Pam Newbury <[log in to unmask]>
Reply To:
Pam Newbury <[log in to unmask]>
Date:
Tue, 16 Jul 2019 13:45:45 -0700
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<<Disclaimer: Verify this information before applying it to your situation.>>

The NIH is doing a study of an enzyme to break down gluten. They are
looking for qualified participants. For details, go to
https://www.celiacshield.com/

While I am glad to see that they are researching products helpful to
celiacs, I think they are asking participants to consume too much gluten:
1/2 slice of bread daily for six weeks. They don't say if this product is
intended to prevent symptoms and damage from incidental gluten or to allow
celiacs to eat a regular diet. Either way, I think a lot of participants
will drop out because they are too sick to continue, especially those on
the placebo. This will make results harder to evaluate.

I wish the celiac research community would learn that you can't do research
on CD the same way you do other types of research, where everything has to
be standardized and the same. All celiacs are not alike. They do not
respond to gluten in the same way; they do not show symptoms in the same
way. A celiac who has been on the diet for many years will have a much more
healed gut than one who is only a year out from their diagnosis. The healed
celiac won't show symptoms as soon, and their reactions may be more subtle.

A gradually increasing amount of gluten, starting with a very small amount,
would work much better than just throwing celiacs into the depths of the
glutenous ocean all at once.

I think other promising products that have been tested have fallen victim
to this same problem. Some that failed their trials might have worked had
this variability been taken into account.

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