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Subject:
From:
George & Gayle Kennedy <[log in to unmask]>
Reply To:
George & Gayle Kennedy <[log in to unmask]>
Date:
Sun, 17 Mar 2002 10:05:41 -0500
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<<Disclaimer: Verify this information before applying it to your situation.>>

#16

>I'm the mom of 2 possibly 3 celiacs, and married to another.
>
>With Maura, the first signs we saw [though we didn't know it then]
>were when she started solids, and suddenly dropped from being at the
>top of the weight charts to not even being at the bottom. No one
>suggested celiac, though, and she wasn't diagnosed until last summer.
>[Husband was diagnosed last spring, his gastro suggested testing the
>kids as well]
>
>With Aidan, we've had allergy problems since day one. I was nursing,
>and had to be VERY careful about what I ate -- he didn't have
>problems with me eating gluten, but DID react to dairy. When he
>started solids [very late, 2 years old], he had numerous reactions --
>dairy, seafood, most everything. He started wanting to eat ONLY
>breads. So with him, I suspect that SOMETHING was off with his system
>from the start.
>
>With Breanna, now 3 months old, I've noticed that on the occassions
>that I have anything with gluten, she gets a severely upset stomach.
>So I suspect she's going to test positive too, and am trying to avoid gluten.

>I've looked at the pregnancies, and birth experiences on all three.
>Maura was a rough pregnancy and birth. Aidan was an easy pregnancy
>and rough birth. Breanna was easy pregnancy and easy birth. So if
>there was some trigger point pre-natal, it makes no sense -- the
>child who reacts worst is the one who had NO trouble with pregnancy
>or birth.
>
>I had a severe flu while pregnant with Breanna, but don't recall
>similar with either Aidan or Maura. More emotional stress with
>Breanna than with either of the other, due to  various outside
>circumstances [not the least being the adjustment to runnign a gluten-
>free household].
>
>So, no good answers for you, but I would NOT expect [celiac in a
>newborn to be the result of] stress during pregnancy.

#17

At 8:28 AM -0500 3/12/02, [log in to unmask] wrote:
>I have the links for the articles about non-Classic Celiac and neurological
>disorders if you are interested in them. As difficult as it is to convince
>full-blown Celiacs that they must be gluten free, it is nearly an impossible
>task for most people to comprehend the potentially substantial deleterious
>effects of a staple food substance in the face of no diagnostic tests
>indicating a problem. I wonder if I will live to see the day the government
>admits the folly of their poisonous Food Pyramid.

#18

>  I am 77, diagnosed
>celiac at 71, but clearly having had it for years, probably since my first
>pregnancy at 19.  I was born in England.  My brother, 1 1/2 years older than
>I, was diagnosed with celiac AT BIRTH by my parents, who were both MD's.
>However, at that time it was not known that gluten was the culprit.  Michael
>was fed fat -free food, rice and bananas (and no doubt good healthy wheat
>bread!); he suffered from a constantly bloated stomach, horrible cramps, and
>was very thin though he reached 5' 10" and was quite a long-distance runner.
>He had a terrible time in WWII because of dietary restrictions and died in
>his forties from a lymphoma.  I never knew that celiac is in any way
>hereditary.
>
>Now, what is interesting and perhaps related to what YOU say is that just a
>few years ago my aunt, then in her 90's, told me that my mother, who had 3
>children, John, Michael and myself, had a really rotten pregnancy with only
>one child--Michael.  She was sick for 9 months but had no trouble at all
>with the other two of us.  This surely indicates that the child was celiac
>in utero??  And a side-light on this one is that my father (recall--he was a
>doctor--attributed the whole celiac thing in our family to the marriage of
>my mother's mother to her first cousin.


Ed. comment - I was completely healthy during the pregnancy with our
celiac son.

#19

>I have always felt our third son was born as a celiac. He was a 9
>lb. baby.   His first day was filled with diarrhea.  I was nursing
>him. Every diaper was dirty until he was 3 months old.  His little
>bottom bled and was raw.  He then had sporadic diapers that were NOT
>dirty.  He did not double his weight by 4 mo., and had eczema on his
>torso at 6 mo.  After weaning him at about 12 -14 months, things
>became worse.  His irritability was horrendous
>and the fat started to disappear on his thighs.  His skin was rough
>all over and the skin on his back began to bleed about 17 mo. I kept
>changing diapers, 8-10 a day.
>     At 18 mo. we heard about celiac and tried the diet on our own.
>A remarkable change was noticed by the end of the first day.  We
>blood tested after 6 wks on the diet and it was still positive for
>gluten antibodies, although the fat was returning on his thighs
>already.  We did not biopsy as he had already begun to drastically
>improve.  He was lactose intolerant for 7 long months.
>     It never occurred to me that he may have had a trigger....I
>totalled my car when I was 6 1/2 mo. pregnant.  We were both fine,
>although false contractions (Braxton-Hicks ?) began the next week
>(normal for 3rd baby?) and didn't cease until we induced labor and
>he was born three months later.
>     We both come from European backgrounds.  I feel that
>breastfeeding may have saved his life, though I wonder how things
>might have been different had I been GF during pregnancy or while
>nursing.   I doubt we'll ever know the answers, but firmly believe
>he was always a Celiac.  He is the only one in the family we know of.


ED note: Isn't it amazing the details women remember about their
babies, the medical problems of each one, and the reactions to
changes in diet, etc.?








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