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#8

>Your question is a fascinating one, and though I cannot provide a
>great deal of
>insight, I can give you my thoughts about my children and myself.
>I was a quite small baby (<6lbs) that refused to gain weight. My
>mother breastfed
>me for the first three months, but since I was not gaining, switched
>me to formula.
>She said that I screamed for the first six months of my life. (I'm
>guessing that
>was due to colic). As a young child I had a fair bit of
>stomachaches, vomiting,
>etc. I also had a lot of autistic symptoms as a child, and still, as an adult.
>Autism often responds to a gf and casein free diet. I did not
>discover my problem
>with gluten until age 34. I will never again eat it, as it makes me
>both mentally
>deranged and physically quite pained. I also cannot eat dairy or corn.
>
>Now, the interesting part. I believe both of my children, now ages 2
>and 4, were
>born with celiac. They were both large babies, so in that sense they don't fit
>the stereotype. They also gained weight just fine. They were extremely colicy,
>When the first baby was 6 mo. old, and I was nearly dead from
>exhaustion, I did the first elimination diet and discovered the
>problem with dairy. I did think about wheat but was so addicted to
>it I didn't want to consider the possibility of allergy to that, so
>did not test it. When the next baby was born and similar
>problems, though somewhat milder, ensued, I knew to cut out dairy.
>My children also both have a terrible problem with corn. I found
>this out before the elimination diet, actually, because the
>connnection between my eating, say, popcorn, and theirnearly
>screaming in pain the entire next day was too obvious not to get.
>
>When they got into toddlerhood, we kind of left the diet restrictions behind
>because the symptoms were not as bad. I even let them eat popcorn, which they
>loved. My daughter, however, was complaining every day that her tummy hurt,
>virtually from the time she could talk, until we made the big diet
>change. My son
>developed chronic diarrhea. When I went off wheat for a trial almost
>a year ago,
>the changes were so dramatic, I knew I was onto something. I took my
>son off wheat and the diarrhea went away. Gave him rye and it came
>back.
>
>Now, what triggered my CD and my childrens'? My thought is that it
>could be that
>having a mother who has CD might make it possible to be born with
>it. Or, perhaps
>those individuals with excess genetic risk due to two copies of the
>sensitizing
>genes do not even need a trigger, while others who are less
>predisposed do. I know that researchers propose a
>'gene-dosing-effect' because they note that individuals with certain
>genetic configurations have several times the risk of developing the
>disease as do others. My mother does not want to consider that she
>might have it, but I would not be surprised at all if she does. It
>could be some kind of interaction between immune substances between
>mother and child, or possibly when the mother continues to eat
>gluten, it gets passed to the baby while in utero and/or when
>breastfeeding. I do believe I read in an abstract lately that gluten
>comes through in breastmilk. I know that corn and dairy do in such a
>way as tocause symptoms, so why not gluten?
>
>AI doubt that there could be that strong an effect
>of the psychological state during pregnancy, though, surely even
>though we may not understand it all, there is some. My pregnancy
>with my son was very emotionally roller-coaster-like, as I was not
>yet married and there was some doubt as to what would happen. My
>pregnancy with my daughter was during a more secure and 'normal'
>emotional state, yet, both children had the dairy, gluten, corn
>problems from birth, as, I believe, did I.

#9
>Celiac is genetic, but not everyone with the gene "gets" the disease
>(thus there must be other mitigating factors).
>Adenovirus #12, possibly #5 and #9, have been linked to Celiac
>Disease (a potential catalyst, and viruses can be passed through the
>placenta, as well as through breast milk).
>
>Vitamin K issues. Vitamin K is produced in the gut, by the natural
>flora/bacteria found there. State laws mandate many things be done
>to a newborn (like the silver nitrate in the eyes, and Vitamin K
>injections). Our oldest got the Vit K injection, and she started
>reacting from the very beginning of her life, to the gluten I was
>eating (we breastfed). To us, she was just a colicky baby. Looking
>at it now (hindsight being 20/20, we didn't know then what is so
>obvious now), she was a baby in severe pain from gluten and casein
>being passed through Mommy's milk (Mommy had leaky gut, probably due
>to undiagnosed, asympotomatic Celiac). OK, so our theory on the Vit
>K goes like this: she gets the injection of the synthetic form of
>Vit K, and because she already has strike one -- the CD gene -- the
>immune system reacts to the injection of the foreign substance
>(which is supposed to be naturally from the gut, not synthetically
>shot into the thigh) by doing *something* to the intestines.
>Not being too clear on the working of either the normal gut or the
>Celiac gut, beyond the layman's stuff, and the quasi-medical stuff I
>read online, thru the listserv and beyond, I cannot really speak to
>exactly what happened here with the Vit K and how it is screwed up
>my baby's belly. Suffice it to say, she was the only one of our
>children to get that (or any) shot, and she is the ONLY one of the 3
>kids who has Celiac Disease. The other 2 might carry the gene, and
>in later years, maybe they will have another mitigating factor bring
>about the symptoms, but now, the oldest (8yo) is the same size as my
>5yo (blame it on the malnutrition from 3+years of undiagnosed
>Celiac, which stunted her growth), and the baby (2yo) and the 5yo
>are "normal" and do not display any physical or behavioral symptoms
>that the first child did while ingesting gluten.
>
>There it is, nutshell and all. The whole family is pretty much GF
>(my husband, eating out through work, is not as GF as the rest of
>us, and I like to drink beer, which unfortunately is not GF). And we
>do not use any dairy products -- no casein, no cow's milk. All 3
>kids are allowed products with corn in them only once a week (Sunday
>is "treat" day, and it's really hard to find GF junk food that is
>corn-free, otherwise, we would eliminate corn entirely). My middle
>child is reactive to soy, peanuts and oranges, and up until
>recently, the baby would not touch grains of any kind, wheat, rice
>or anything, except GF homemade chocolate cake (she calls it
>"noklat") . This kid is a major choco-holic!!!! As you can see,
>there are more food issues in our family than just the celiac/gluten
>ones.

#10
>Dr Lendon Smith, in his book FEED YOUR KIDS RIGHT, has a very
>interesting suggestion.  After a child is fed, wait ten min and then
>check the anus, if it is red....THE CHILD IS ALLERGIC TO WHAT SHE
>WAS JUST FED.
>In newborns, the baby reacts to what the mother ate.
>In older babies, give the new food in a small amt on an empty stomach.
>It is amazing how fast and accurate this test is..



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