<<Disclaimer:  Verify this information before applying it to your situation.>>

I am posting this message for the benefit of someone in my local
support group.  She is in her fifties, was an undiagnosed celiac for
most of her life, but was diagnosed and has been GF for about seven
years.

In the last year or so she has been experiencing neurological
problems:  unsteady gait, weakness of hands and limbs, and muscle
spasms.  Recently she was hospitalized as a result of these problems.
MS and other common disorders were ruled out.  Her doctors (internist,
GI specialist, and neurologist) have been unable to determine what
is causing the symptoms.  Medication has helped her symptoms the last
few weeks, but she wants to track down the root cause of those
symptoms.

The symptoms may be related to a change in diet, as she has been on
the Weight Watchers plan for the last year or so.  She's very
meticulous about avoiding gluten, and quickly reacts to it on those
rare occasions when she accidentally ingests any gluten.

Joe Murray brought this topic up last December, when the list was
much smaller.  In part, he said:

> I am wondering if members of the list have had significant muscle
> weakness associated with CD that has not responded to the GF
> diet....Has anyone out there had a good response of severe fatigue
> symptoms to either dietary or other therapy, conventional or
> unconventional?

With the list so much bigger now, I'd like to ask this same question
again.  If you have or had neurological symptoms such as I described
above, even though you were on a GF diet; and then found or received
treatment which eliminated or relieved these symptoms, could you
send me the details privately?  If the treatment was prescribed by a
doctor, could you also send me the name and location of the doctor?
In a week or so I will post on the list a summary of what I learn
from the private messages I receive.

--- Jim Lyles ([log in to unmask]) ---
--- location:  southeast Michigan, USA ---