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Joanne,  Hi!  I just read this summary of symptoms.  I had been away on
vacation in July and did not get a chance to respond to your survey.  If you
are interested, here are how the symptoms played out for my twin celiac sons:
Symptoms                     Joseph                 Thomas
  Diarrhea/Frequency          often                sometimes
  Steatorrhea              do not know            do not know
  Weight Loss                  yes            no real gain in 2 yrs
  Irritability/Anger           yes                   some
  Nausea/Vomiting          some nausea            some nausea
  Failure to Thrive        not really                 yes
  Fatigue/Lethargy             yes                    yes
  Muscle Waste/Weakness        yes                    yes
  Gas/Bloating                YES!!!            yes but not a lot
  Rash/Itching/DH              no                     no
  Abdominal Pain/Cramps        YES                    YES

They were both diagnosed July/August 1996.  Joseph is also diabetic,  so he
HAD to eat.  Thomas' symptoms were not as obvious as far as distended stomach.
He just wasn't eating a lot and the lab tests did not lead us to the right
diagnosis.  We think he must have been suffering for about 2 years since his
weight had gone up just 2-3 lbs in that time frame(looking back  at old
records).  Joseph was easier to diagnose since he had to eat, and we had
substituted bread for his dairy part of his diabetic diet so see if dairy
products were the cause of his bloating.  It brought on stronger symptoms, and
obvious swelling in his upper intestine for the upper GI that he had done.
His weigh loss was pretty bad at diagnosis time and so was the diahrea.
Well, I have got to go- get them at school.. So If this is of any interest to
you.......
Mary in Kansas
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