<<Disclaimer: Verify this information before applying it to your situation.>>
I'd like to thank so many people for responding to my query about antigen
levels. (I'm having difficulty getting used to this list's practice of
responding to individuals, and not to the list. It's certainly harder to be a
lurker that way! Can I ask why people don't respond to the list?)
Let me summarize the responses, as some people asked that I forward the
information. For those that might not remember, I asked for advice about
antigen levels and ideas for why my daughter still had levels of 115, four
months after her biopsy when she had levels of 285.
Most people suggested that it takes at least a year, maybe even 2 years, for
antigen levels to drop to normal. Although zero was the goal, anything under
20 was considered pretty good I was told.
As to how she may be getting gluten in her diet, most people said it was
almost impossible to be entirely gluten-free. There were going to be
problems, particularly with cross contamination. Some great suggestions that
I hadn't thought of: her vitamins (I have to check on that one), toothpaste,
crumbs in the drawer. Other good suggestions that I had previously considered
but others might find helpful: use organic foods as they are better labeled;
avoid play-dough and wooden spoons and cutting boards.
A great suggestion was to organize the kitchen shelves differently. This one
made me want to go "duh!" Currently, I have my daughter's gluten free foods
segregated in one cupboard. (Rice pasta, gluten free cookies, etc.) Instead,
someone suggested that I should look at it the other way around -- the gluten
foods should be in one cupboard and all the rest should be together.
(Regular rice and sacks of beans shouldn't be anywhere near the regular
pasta.) I'm not convinced that things have been cross-contaminated that way,
but it certainly makes more sense.
In any case, I just want to thank everyone for being so helpful. And if
anyone has anything to add, please send more suggestions!
Lee
* Support summarization of posts, reply to the SENDER not the CEL-KIDS List *
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