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St. John's University Cerebral Palsy List
Date:
Thu, 14 Feb 2002 19:06:49 -0800
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Jenn, sorry you have to go through this hassle. Maybe
I can put a postive spin on it for you. You can now
look forward to another day of being pain free as one
of those days you will recieve the bacoflen.
Joanne
--- Jennifer Zubko <[log in to unmask]> wrote:
> For those that don't know:
>
> Definition of a placebo controlled trial:
>
> I go into the hospital for three days. On one of
> those days  I am given
> lumbar puncture with real baclofen, on the other day
> with saline. I  still
> do pain/spasticity scoring walking, videotaping etc.
> IQ don't know which
> drug they are giving me.
> There is a washout day in between the two
> injections-no lumbar puncture is
> given. I have to tell the team when I was given the
> baclofen, and when I
> was given the saline. I also have to see a
> psycologist, etc. If I FAIL, I
> will not be given the pump, bsasically, and the
> intrathecal baclofen
> helped me so much.
>
> Jenn


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