Kat,

Anther case in point.  Its my understanding that there are aesthetics
that you DO NOT give people with cerebral palsy because our neuro-
muscular junctions are altered.  The take home less for me is that the
medical community IN GENERAL does not know how to deal with CP
and needs to be educated.

Jim Fee


On 01/16/2012 02:38 PM, Kathleen Salkin wrote:
> Hi, Jim,
>
> So sorry about your horrible experience.  I didn't go through one as bad as
> yours, but when I had surgery back in 2001, they gave me an anethesia that
> knocked me out for 3 days - or at least that's what I remember (or not).
>   My friends and family all swear that I was talking and seemingly
> functional but those three days are forever wiped from my memory.  What was
> a three-day planned stay turned out to be six days and I was pretty out of
> things for a few weeks after that.   I will never ever voluntarily go
> through back surgery again.
>
> Kat
>
> On Mon, Jan 16, 2012 at 1:23 PM, James Fee<[log in to unmask]>  wrote:
>
>> Hi All,
>>
>> I am just coming out of a chapter of my life that has been the second most
>> horrendous of
>> them all.  On October 11th I had a cervical spinal fusion.  The surgeon
>> noticed "considerable"
>> swelling and left the interbation tube in place.  I was in ICU for three
>> days when an attending
>> took it upon himself to remove it.  My airway promptly swelled closed
>> completely, I had to be
>> reinterbated and I bleed from the nose and mouth.  After that I remained
>> in a drug induced comma for 14 days.  I finally had to have a trach, and a
>> feeding tube placed.  All the while (so
>> I'm told by my wife) the nurses were running around trying to learn how to
>> "treat" me for my
>> cerebral palsy and were perturbed that I was on meds. for it, nor was I
>> having therapy in a
>> rehab facility.  I was supposed to be in the hospital for a total of 4
>> days, I was actually there for 28 days.  I wasn't allowed to eat or drink
>> ANYTHING by mouth, because tests "indicated" that I
>> would aspirated EVERYTHING.  I was sent home with the feeding tube still
>> in me, whereupon I
>> took it upon myself to begin eating normally without any dire
>> consequences.  The residual effect of all this is that one of my vocal
>> cords is now paralysed and I don't know if I'll ever get it back.
>>
>> I'm curious to know if anyone else has encountered such ignorant nonsense?
>>
>> Thanks,
>> Jim Fee
>>
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