I think there will come a day when science will figure out a way to use nano-computers to help those with cp.
walking is a balancing act, Case is young, he won't get hurt beyond scraped knees and hands. when he gets to his 40's is when he'll need to be concerned.
mag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Tamar Mag Raine
[log in to unmask]
www.cafepress.com/Tamarmag
Lots of new art & designs ~ come and look!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
----- Original Message ----
From: Linda Walker <[log in to unmask]>
To: [log in to unmask]
Sent: Sunday, April 8, 2007 1:16:34 AM
Subject: Re: surprise!
Case's operation went well but I and his parents did a lousy job of
preparing him for the rehabilitation. We were naive. I partly blame
the doctor for not preparing us better and so does Case as he had a
lot of pain when the casts came off at first but that is gone
now. Compared to the way they used to do these surgeries it was a
piece of cake. No scarring because of entering the site with a
needle. He stands much taller and his feet no longer turn in and his
heels are down. At 8 1/2 he feels his heels for the first time. That
took some getting used to on his part. Now he wears regular shoes and
his DAFO's only at night but when I put them on him I can tell the
tone is already coming back some. This CP is no fun. He is working
hard to strength train and they have an Access surf program here in
HI and he does that and will start paddling soon as well. He also is
playing tennis and does jujitsu so his schedule is pretty full. He
swims regularly also. He's recently really gotten reading and has
become a book worm. Well he is just an all round wonderful person
like the people on the list. He still falls pretty regularly and I
worry about him hurting himself. Can't quite figure out why he falls
so much. He uses crutches and a wheelchair when necessary.
At 08:23 PM 4/7/2007, you wrote:
>Thanks, Linda! How is Case doing?
>
>How are you?
>
>Mag
>
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>Tamar Mag Raine
>[log in to unmask]
>www.cafepress.com/Tamarmag
>Lots of new art & designs ~ come and look!
>~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
>
>
>----- Original Message ----
>From: Linda Walker <[log in to unmask]>
>To: [log in to unmask]
>Sent: Saturday, April 7, 2007 11:07:47 PM
>Subject: Re: surprise!
>
>I am so happy for you. I was wondering how that was working as you
>and Case were having surgery the same month. I'll let Case know about
>this. He also wondered how you are. This is very good news.
>
>At 07:37 PM 4/7/2007, you wrote:
> >Dear Friends,
> >I have good news! Many of you know that due to severe pain from
> >severe tightness in my legs, due to several car accidents in the
> >1990s, I have not been able to walk. Last year I was in even worse
> >shaape as I hurt my hip, and it was so tight it hurt to get in the
> >car because the seat in the car was the wrong angle. So, I was in a
> >lot of pain, and ever-increasing pain medication did little to help.
> >I tried Feldenkrais, Massage, Acupuncture, hot tubs, PT, nothing
> >worked. Xrays finally showed that my hip was so tight that it was
> >pulling everything out of alignment. I was seriously depressed. Then
> >I remembered the spasticty clinic in Berkeley. I was finally able to
> >get in to be evaluated by the PT's, they couldn't do anything with
> >me because everything caused me so much pain. They recomended I try
> >the ITB pump, aka the Baclofen pump. It has an 87 percent positive
> >response in folks with CP, 95 percent positive response in people
> >with SCI. Before they open you up to put in the
> > pump, they test it, by injecting Baclofen into the spine. It
> > worked very well for me, so in December 2006, I had the surgery.
> > And now, three months later, I am walking with a walker in
> > PT! After I get more practice walking on different surfaces, they
> > will give me a walker to take home. On thursday, I walked about 30 feet...
> >
> >So, that is one thing, another thing is I have fixed up my website
> >and have added many new paintings, so, go have a look and let me
> >know what y'all think. Of course, I'd like you to purchase
> >something if you see something you like. My prices are fair,
> >remember that most of the price goes to cafepress who provide the
> >items, print them, ship them, so I usually earn just a couple
> >dollars on most, though not all items. Each design comes on many
> >different items in a range of prices. if you have trouble seeing
> >things, press Control and the Plus symbol on your numeric keypad.
> >this will enlarge the page. New items I'd like to point out are
> >postage stamps. Yes, these are real U.S. postage stamps with two of
> >my designs on them. Also of note, is my award-winning poem; The
> >Cerebral Palsy Lady. Also Breast Cancer Awareness tee-shirts, and
> >anti-RFID real i.d. act tee shirts. If I sell 200 breast cancer
> >tees, I'll donate 100.00 to Susan Koman foundation. So, tell all
> >your friends to
> > visit my website!
> >http://www.cafepress.com/tamarmag
> >
> >Love,
> >Tamar
> >
> >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >Tamar Mag Raine
> >[log in to unmask]
> >www.cafepress.com/Tamarmag
> >Lots of new art & designs ~ come and look!
> >~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >
> >
> >
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> >
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>
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>
>
>
>
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>
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>
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