Greta,
    You're welcome. As an adult with CP who is also an MSW and who worked
with both able bodied and disabled children in the  past, I am intrigued by
your research and look forward to the day when you can summarize and post
your results.
Susan
----- Original Message -----
From: "greta von der luft" <[log in to unmask]>
To: <[log in to unmask]>
Sent: Sunday, January 30, 2005 9:10 PM
Subject: Re: dissertation research


> Hello,
> Thank you very much for your suggestion. I have contacted the moderator of
> the listserv asking for his permission to post a message there as well. If
> you have any other ideas, please let me know.
> Thank you again,
> Greta
>
> >From: Susan Moskowitz <[log in to unmask]>
> >Reply-To: "St. John's University Cerebral Palsy List"
> ><[log in to unmask]>
> >To: [log in to unmask]
> >Subject: Re: dissertation research
> >Date: Sat, 29 Jan 2005 12:19:24 -0500
> >
> >Greta,
> >     Although the C-Palsy list does have some subscribers who are parents
> >of
> >children with cerebral palsy, most of the subscribers are adults who have
> >CP. There is another list called CP Parent which is focused on giving
> >parents of children with CP a forum to support each other in their
efforts
> >to raise their children. Since you are seeking child subjects, with very
> >specific characteristics, I think you might have more success recruiting
> >from the CP Parent list. That list can be found at www.cpparrent.org .
> >Good luck with your research!
> >Susan
> >----- Original Message -----
> >From: "greta von der luft" <[log in to unmask]>
> >To: <[log in to unmask]>
> >Sent: Friday, January 28, 2005 3:03 PM
> >Subject: dissertation research
> >
> >
> > > Hello,
> > > My name is Greta von der Luft.  I hold master's degrees in physical =
> > > therapy and special education. I have practiced ten years as a
pediatric
> >=
> > > physical therapist. I am now a PhD Candidate at Temple University, =
> > > Philadelphia, Pennsylvania. I am studying self concept in children
with
> >=
> > > cerebral palsy for my dissertation research to partially fulfill the =
> > > requirements for a PhD. Temple University's Institutional Review Board
=
> > > (IRB) has approved of my dissertation research. I would like to use
this
> >=
> > > listserv to introduce my research. Additionally, I would like to  =
> > > encourage parents of fifth and sixth grade children with spastic =
> > > diplegic cerebral palsy and average intelligence who reside in the mid
=
> > > Atlantic region to contact me to help me with this important research
=
> > > endeavor. But first, please let me briefly introduce the topic, its =
> > > significance, my research, what I would like parents to do, and how I
=
> > > will share the results.=20
> > >
> > > Introduction: As you know, self concept is how a child views himself
and
> >=
> > > herself and how s/he evaluates his/her capabilities academically =
> > > (reading, math, general school) and non academically (physical =
> > > appearance, physical capabilities, social relations with
parents/peers).
> >=
> > > There is much inconclusive research involving children with
disabilities
> >=
> > > due to poor methodology.
> > >
> > > Significance: A positive self concept is needed to succeed and have =
> > > positive relationships in the education, health, business, and social
=
> > > arenas. We do not know if children with cerebral palsy have positive
or
> >=
> > > negative self concepts. Additionally, we do not know if we (health, =
> > > educational, and vocational areas) are serving children with cerebral
=
> > > palsy in the best method possible which would promote their self =
> > > concepts or not.
> > >
> > > My research: I am trying to fill this need by conducting my
dissertation
> >=
> > > research under the supervision of Temple University's IRB. This will
be
> >=
> > > done by first cross validating the Self Description Questionnaire-I =
> > > (SDQ-I) which is the most valid and reliable tool for use with =
> > > preadolescent children without disabilities. The cross validation will
=
> > > involve performing data analysis to find the reliability and validity
of
> >=
> > > the tool when it is used with children with CP. If the tool is found =
> > > valid and reliable for use with children with CP, then I will look for
=
> > > associations between self concept, gender, physical impairment, and =
> > > educational placement.
> > >
> > > Parents: I would like parents of fifth and sixth grade children with =
> > > spastic diplegic cerebral palsy and average intelligence to contact me
=
> > > for more information on the research and to schedule a research
session
> >=
> > > if they are interested. Because of geographic limitations, the parents
=
> > > need to reside in the Mid Atlantic region as I will need to meet with
=
> > > them and their child at a place that is convenient for all. The
research
> >=
> > > session would take 30-60 minutes to complete and would involve:
> > >   1.. introducing the research topic in greater detail=20
> > >   2.. signing informed consent and informed assent forms=20
> > >   3.. completing a demographic form that has no identifying
information
> >=
> > > (e.g. gender, race, educational placement)=20
> > >   4.. interviewing the child using the SDQ-I asking him/her how s/he =
> > > feels about himself/herself academically and nonacademically.=20
> > >   5.. observing the child move for five minutes to complete a =
> > > standardized functional assessment tool=20
> > >   6.. giving the child a nominal gift thanking him/her for his/her =
> > > participation
> > > Results: When the study is complete, I will share a group summary of
the
> >=
> > > results
> > >   1.. With the listserv=20
> > >   2.. With the parents and children who participated.
> > > If you would like more information or are interested in this study, =
> > > please contact me.
> > >
> > > Contact Information:
> > > Greta von der Luft
> > > email [log in to unmask]<mailto:[log in to unmask]> or =
> > > [log in to unmask]<mailto:[log in to unmask]>.
> > > phone 610 240 9520=20
> > >
> > >
> > > Thank you so very much for your time and consideration,
> > >
> > > Greta von der Luft BS, MSPT, MEd, PhD Candidate
> > >