As far as I'm concerned, Kendall, present away! I think the folks on
this list who actually "have" the disability described as "CP" are all
of one accord. Our parent's chose the Hard Road. In my heart I thank
them for that decision every day.
Kyle
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf
Of Kendall D. Corbett
Sent: Friday, March 14, 2008 1:01 PM
To: [log in to unmask]
Subject: Re: not what if/ and rate of CP not the same
With all your permission, (deleting identifiable attribution of
course), I'd like to be able to use the "gist" of this discussion in
an ethics presentation I'm participating in in a conference next
month. It would probably be used to supplement course work in
disability studies where an ethical component is included.
This gets to the heart of a matter my parents were given a "choice"
in when I was an infant. The underlying condition that caused my CP
was hydrocephalus, and back in 1960/1961 the success rates of treating
hydrocephalus were pretty low. The surgeon that treated me approached
my parents and said that they could treat the condition, or "let
Nature take it's course," which would have led to my death. Lucky for
me (the verdict's still out for the rest of the world), my parents
elected to treat the condition. Life may have been easier for my
parents had they taken the other road, but it's a decision my dad
couldn't make because of the ethical code he subscribes to.
The first time I went to a national convention for the association of
University Centers I work for, I became acquainted with a woman who
has a son with Down Syndrome. She and I had listened to a
presentation on "preventing birth defects." The model put forth for
prevention was therapeutic abortion, which in her words, "doesn't
prevent disability, it prevents my son!" So, for those of you who are
offended, or are about to be offended, count me in.
On Fri, Mar 14, 2008 at 10:01 AM, ken barber <[log in to unmask]>
wrote:
> that is where you get to when you consider any life
> less than sacred.
>
>
> --- Trisha Cummings <[log in to unmask]> wrote:
>
> > Hi Kyle,
> >
> > What I am curious about is when she says they
> > saved her baby without
> > her knowing - Is she saying - she would have had
> > them not save the baby?
> > While it is true that CP rates are up because they
> > can save babies
> > earlier and earlier - it ends up being a moral
> > question - Deciding who
> > lives and who dies. Unless you are clairvoyant one
> > can't predict how the
> > child will turn out - I mean Amber was projected to
> > be much more
> > seriously disabled than she is. One should
> > understand from the moment
> > one is pregnant that a fat healthy baby may well not
> > be the outcome -
> > and if you are not able to accept anything but the
> > Gerber Baby- you need
> > to be neutered. Because you are seriously too stupid
> > to have children in
> > the first place. Plus then the first time you
> > exhibit a defect - they
> > should kill you. So anyone with anything other
> > perfect health buys the
> > farm? Ouch, no Roosevelt - no Hawking.
> >
> > Trisha - who also thinks she about to
> > be offended - very
> > offended at that
> >
> > -----Original Message-----
> > From: Cerebral Palsy List
> > [mailto:[log in to unmask]] On Behalf
> > Of Cleveland, Kyle E.
> > Sent: Friday, March 14, 2008 8:53 AM
> > To: [log in to unmask]
> > Subject: Re: not what if/ and rate of CP not the
> > same
> >
> > Let me get this straight--I want to be absolutely
> > sure I understand what
> > you're implying here. "Saving" premature babies in
> > order to bring them
> > into the ranks of the living is problem? So medical
> > science should not
> > be used to protect and preserve a life if that life
> > is too fragile to
> > survive without it? =20
> >
> > I daresay that many of us on this list would not be
> > here if that were
> > the case. Would it have been better to let us all
> > perish because, after
> > all, life with a kid with disabilities is going to
> > be more difficult
> > than raising a healthy child, right?
> >
> > There are a bunch of us on this list whose parents
> > were advised to
> > "institutionalize" us as small children because we
> > would never walk,
> > talk, or have cognitive abilities greater than the
> > average grapefruit.
> > I think as a group we've disproved that notion.
> >
> > I think I am about to be offended. I hope you can
> > change my mind.
> >
> > Kyle
> >
> > -----Original Message-----
> > From: Cerebral Palsy List
> > [mailto:[log in to unmask]] On Behalf
> > Of [log in to unmask]
> > Sent: Friday, March 14, 2008 8:21 AM
> > To: [log in to unmask]
> > Subject: Re: not what if/ and rate of CP not the
> > same
> >
> > First off I was not saying... what if... I mentioned
> > the fact that the
> > dr's=20
> > did not tell me they were saving my child. I was
> > mention the stem cell
> > thing=20
> > so if any of you had saved your cord blood you may
> > want to check into
> > it. I=20
> > think all they did was give him his blood back but
> > it did not say... so
> > you=20
> > would have to look into it.
> > =20
> > As to the rates of CP.... they were the 1 birth
> > problem that was way
> > down=20
> > 'UNTIL' 20 or 30 years ago when doctor started
> > 'saving' and
> > experimenting and=20
> > making millions of preemies and their families. The
> > rate were down
> > because of=20
> > better prenatal care but then when they started
> > adding the smaller and
> > smaller=20
> > babies back to the living the rates of CP when right
> > back up.
> > =20
> > Just a thought-
> > Kristina
> >
> >
> >
> > **************It's Tax Time! Get tips, forms, and
> > advice on AOL Money
> > &=20
> > Finance.
> >
> (http://money.aol.com/tax?NCID=3Daolprf00030000000001)
> >
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>
>
>
>
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--
Kendall
An unreasonable man (but my wife says that's redundant!)
The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.
-George Bernard Shaw 1856-1950
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