Kendall, feel free to use my comments.
Linda
On Mar 14, 2008, at 1:00 PM, Kendall D. Corbett wrote:
> With all your permission, (deleting identifiable attribution of
> course), I'd like to be able to use the "gist" of this discussion in
> an ethics presentation I'm participating in in a conference next
> month. It would probably be used to supplement course work in
> disability studies where an ethical component is included.
>
> This gets to the heart of a matter my parents were given a "choice"
> in when I was an infant. The underlying condition that caused my CP
> was hydrocephalus, and back in 1960/1961 the success rates of treating
> hydrocephalus were pretty low. The surgeon that treated me approached
> my parents and said that they could treat the condition, or "let
> Nature take it's course," which would have led to my death. Lucky for
> me (the verdict's still out for the rest of the world), my parents
> elected to treat the condition. Life may have been easier for my
> parents had they taken the other road, but it's a decision my dad
> couldn't make because of the ethical code he subscribes to.
>
> The first time I went to a national convention for the association of
> University Centers I work for, I became acquainted with a woman who
> has a son with Down Syndrome. She and I had listened to a
> presentation on "preventing birth defects." The model put forth for
> prevention was therapeutic abortion, which in her words, "doesn't
> prevent disability, it prevents my son!" So, for those of you who are
> offended, or are about to be offended, count me in.
>
> On Fri, Mar 14, 2008 at 10:01 AM, ken barber <[log in to unmask]>
> wrote:
>> that is where you get to when you consider any life
>> less than sacred.
>>
>>
>> --- Trisha Cummings <[log in to unmask]> wrote:
>>
>>> Hi Kyle,
>>>
>>> What I am curious about is when she says they
>>> saved her baby without
>>> her knowing - Is she saying - she would have had
>>> them not save the baby?
>>> While it is true that CP rates are up because they
>>> can save babies
>>> earlier and earlier - it ends up being a moral
>>> question - Deciding who
>>> lives and who dies. Unless you are clairvoyant one
>>> can't predict how the
>>> child will turn out - I mean Amber was projected to
>>> be much more
>>> seriously disabled than she is. One should
>>> understand from the moment
>>> one is pregnant that a fat healthy baby may well not
>>> be the outcome -
>>> and if you are not able to accept anything but the
>>> Gerber Baby- you need
>>> to be neutered. Because you are seriously too stupid
>>> to have children in
>>> the first place. Plus then the first time you
>>> exhibit a defect - they
>>> should kill you. So anyone with anything other
>>> perfect health buys the
>>> farm? Ouch, no Roosevelt - no Hawking.
>>>
>>> Trisha - who also thinks she about to
>>> be offended - very
>>> offended at that
>>>
>>> -----Original Message-----
>>> From: Cerebral Palsy List
>>> [mailto:[log in to unmask]] On Behalf
>>> Of Cleveland, Kyle E.
>>> Sent: Friday, March 14, 2008 8:53 AM
>>> To: [log in to unmask]
>>> Subject: Re: not what if/ and rate of CP not the
>>> same
>>>
>>> Let me get this straight--I want to be absolutely
>>> sure I understand what
>>> you're implying here. "Saving" premature babies in
>>> order to bring them
>>> into the ranks of the living is problem? So medical
>>> science should not
>>> be used to protect and preserve a life if that life
>>> is too fragile to
>>> survive without it? =20
>>>
>>> I daresay that many of us on this list would not be
>>> here if that were
>>> the case. Would it have been better to let us all
>>> perish because, after
>>> all, life with a kid with disabilities is going to
>>> be more difficult
>>> than raising a healthy child, right?
>>>
>>> There are a bunch of us on this list whose parents
>>> were advised to
>>> "institutionalize" us as small children because we
>>> would never walk,
>>> talk, or have cognitive abilities greater than the
>>> average grapefruit.
>>> I think as a group we've disproved that notion.
>>>
>>> I think I am about to be offended. I hope you can
>>> change my mind.
>>>
>>> Kyle
>>>
>>> -----Original Message-----
>>> From: Cerebral Palsy List
>>> [mailto:[log in to unmask]] On Behalf
>>> Of [log in to unmask]
>>> Sent: Friday, March 14, 2008 8:21 AM
>>> To: [log in to unmask]
>>> Subject: Re: not what if/ and rate of CP not the
>>> same
>>>
>>> First off I was not saying... what if... I mentioned
>>> the fact that the
>>> dr's=20
>>> did not tell me they were saving my child. I was
>>> mention the stem cell
>>> thing=20
>>> so if any of you had saved your cord blood you may
>>> want to check into
>>> it. I=20
>>> think all they did was give him his blood back but
>>> it did not say... so
>>> you=20
>>> would have to look into it.
>>> =20
>>> As to the rates of CP.... they were the 1 birth
>>> problem that was way
>>> down=20
>>> 'UNTIL' 20 or 30 years ago when doctor started
>>> 'saving' and
>>> experimenting and=20
>>> making millions of preemies and their families. The
>>> rate were down
>>> because of=20
>>> better prenatal care but then when they started
>>> adding the smaller and
>>> smaller=20
>>> babies back to the living the rates of CP when right
>>> back up.
>>> =20
>>> Just a thought-
>>> Kristina
>>>
>>>
>>>
>>> **************It's Tax Time! Get tips, forms, and
>>> advice on AOL Money
>>> &=20
>>> Finance.
>>>
>> (http://money.aol.com/tax?NCID=3Daolprf00030000000001)
>>>
>>> -----------------------
>>>
>>> To change your mail settings or leave the C-PALSY
>>> list, go here:
>>>
>>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
>>>
>>> -----------------------
>>>
>>> To change your mail settings or leave the C-PALSY
>>> list, go here:
>>>
>>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy
>>>
>>> -----------------------
>>>
>>> To change your mail settings or leave the C-PALSY
>>> list, go here:
>>>
>>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>>
>>>
>>
>>
>>
>>
>> _____________________________________________________________________
>> _______________
>> Looking for last minute shopping deals?
>> Find them fast with Yahoo! Search. http://tools.search.yahoo.com/
>> newsearch/category.php?category=shopping
>>
>>
>> -----------------------
>>
>> To change your mail settings or leave the C-PALSY list, go here:
>>
>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
>>
>>
>
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's redundant!)
>
> The reasonable man adapts himself to the world; the unreasonable one
> persists in trying to adapt the world to himself. Therefore, all
> progress depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
-----------------------
To change your mail settings or leave the C-PALSY list, go here:
http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
|
