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Subject:
From:
"I. STEPHEN MARGOLIS" <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Thu, 4 Nov 1999 00:34:42 -0500
Content-Type:
text/plain
Parts/Attachments:
text/plain (47 lines)
Deri,

Seems to me one of the problems is we don't know about CP and Aging and we
need to find out.  We find our CP bodies go through severe and unexpected
"traumas."  Between 15 to 46 a number of us have symptoms, events, and
changes to our bodies that medical and therapeutic procedures may ease and
usually don't sufficiently remedy.

When we go to doctors there's often a gap between what they know and what we
present them.

Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages escape me
at this hour, experience "accelerated aging?".  Kyle and I had our "onsets"
at 46.  He was athletic, I wasn't--though very active.

I sense we need to restate CP to include the likelihood of further injury
and difficulties if only to be more watchful and aware of possibilities.  We
much need more and better "medicine," better informed doctors.

I assess you're questioning whether the phenomena of CP and Aging exists or
exists distinct from Aging.  To me CP speeds up and aggravates wear and
tear, then impedes full repair and worsens matters over time.  Remedies
elude.   Whatever we call it, something's happening, and it isn't all in our
minds.

Steve M.


From: Deri James
Subject: Re: Use it or loose it??
Date: Thu, 4 Nov 1999 04:31:02 +0100


I'm not entirely convinced by the arguments for 'Ageing with CP' being an
entirely separate issue than just 'Ageing'. Of course physical abuse, be it
inflicted from over doing sports when
young, incorrect dietary habits, substance abuse, or an abusive spouse, will
come back to haunt us as we age, just as they would anyone.

It is hard to gauge which problems are purely CP related.
<snip>

Cheers

--
Deri James

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