please remove me from the listserve

> -----Original Message-----
> From: Carla MacInnis [SMTP:[log in to unmask]]
> Sent: Thursday, November 04, 1999 2:09 PM
> To:   [log in to unmask]
> Subject:      Re: Post Cerebral Palsy Syndrome
>
> Hi Bobby,
>   My physiatrist and even my gp coin the term post cerebral palsy syndrome
> -
> outlining medical issues related exclusively to the secondary effects of
> cerebral
> palsy - particularly those with regard to aging with the condition. Guess
> us
> folks in the boonies are right on top of things :)
>
> Cheers!
>
> Carla
>
> Bobby Greer wrote:
>
> > Steve and all,
> >
> >         My server is finally working now, so I can respond.
> >
> >         These "use of lose it posts got me to thinking. The people with
> polio
> > coined the phrase, "Post-Polio Syndrome" to denote the destruction of
> > healthy muscle fibers remaining in atrophied muscles. Polio, per se, did
> > not "cause" this destruction, rather it was brought on by active
> over-use
> > of already weakened muscles.
> >
> >         Maybe we should begin to speak of a Post Cerebral Palsy Syndrome
> in
> > a like manner?
> >
> >         What do you guys think??
> >
> > Bobby
> >
> > >Deri,
> > >
> > >Seems to me one of the problems is we don't know about CP and Aging and
> we
> > >need to find out.  We find our CP bodies go through severe and
> unexpected
> > >"traumas."  Between 15 to 46 a number of us have symptoms, events, and
> > >changes to our bodies that medical and therapeutic procedures may ease
> and
> > >usually don't sufficiently remedy.
> > >
> > >When we go to doctors there's often a gap between what they know and
> what we
> > >present them.
> > >
> > >Do we say Anee at 15-20, Denise at 23, Mag, Carla, names and ages
> escape me
> > >at this hour, experience "accelerated aging?".  Kyle and I had our
> "onsets"
> > >at 46.  He was athletic, I wasn't--though very active.
> > >
> > >I sense we need to restate CP to include the likelihood of further
> injury
> > >and difficulties if only to be more watchful and aware of
> possibilities.  We
> > >much need more and better "medicine," better informed doctors.
> > >
> > >I assess you're questioning whether the phenomena of CP and Aging
> exists or
> > >exists distinct from Aging.  To me CP speeds up and aggravates wear and
> > >tear, then impedes full repair and worsens matters over time.  Remedies
> > >elude.   Whatever we call it, something's happening, and it isn't all
> in our
> > >minds.
> > >
> > >Steve M.
> > >
> > >
> > >From: Deri James
> > >Subject: Re: Use it or loose it??
> > >Date: Thu, 4 Nov 1999 04:31:02 +0100
> > >
> > >
> > >I'm not entirely convinced by the arguments for 'Ageing with CP' being
> an
> > >entirely separate issue than just 'Ageing'. Of course physical abuse,
> be it
> > >inflicted from over doing sports when
> > >young, incorrect dietary habits, substance abuse, or an abusive spouse,
> will
> > >come back to haunt us as we age, just as they would anyone.
> > >
> > >It is hard to gauge which problems are purely CP related.
> > ><snip>
> > >
> > >Cheers
> > >
> > >--
> > >Deri James