Hello,
Thank you very much for your suggestion. I have contacted the moderator of
the listserv asking for his permission to post a message there as well. If
you have any other ideas, please let me know.
Thank you again,
Greta

>From: Susan Moskowitz <[log in to unmask]>
>Reply-To: "St. John's University Cerebral Palsy List"
><[log in to unmask]>
>To: [log in to unmask]
>Subject: Re: dissertation research
>Date: Sat, 29 Jan 2005 12:19:24 -0500
>
>Greta,
>     Although the C-Palsy list does have some subscribers who are parents
>of
>children with cerebral palsy, most of the subscribers are adults who have
>CP. There is another list called CP Parent which is focused on giving
>parents of children with CP a forum to support each other in their efforts
>to raise their children. Since you are seeking child subjects, with very
>specific characteristics, I think you might have more success recruiting
>from the CP Parent list. That list can be found at www.cpparrent.org .
>Good luck with your research!
>Susan
>----- Original Message -----
>From: "greta von der luft" <[log in to unmask]>
>To: <[log in to unmask]>
>Sent: Friday, January 28, 2005 3:03 PM
>Subject: dissertation research
>
>
> > Hello,
> > My name is Greta von der Luft.  I hold master's degrees in physical =
> > therapy and special education. I have practiced ten years as a pediatric
>=
> > physical therapist. I am now a PhD Candidate at Temple University, =
> > Philadelphia, Pennsylvania. I am studying self concept in children with
>=
> > cerebral palsy for my dissertation research to partially fulfill the =
> > requirements for a PhD. Temple University's Institutional Review Board =
> > (IRB) has approved of my dissertation research. I would like to use this
>=
> > listserv to introduce my research. Additionally, I would like to  =
> > encourage parents of fifth and sixth grade children with spastic =
> > diplegic cerebral palsy and average intelligence who reside in the mid =
> > Atlantic region to contact me to help me with this important research =
> > endeavor. But first, please let me briefly introduce the topic, its =
> > significance, my research, what I would like parents to do, and how I =
> > will share the results.=20
> >
> > Introduction: As you know, self concept is how a child views himself and
>=
> > herself and how s/he evaluates his/her capabilities academically =
> > (reading, math, general school) and non academically (physical =
> > appearance, physical capabilities, social relations with parents/peers).
>=
> > There is much inconclusive research involving children with disabilities
>=
> > due to poor methodology.
> >
> > Significance: A positive self concept is needed to succeed and have =
> > positive relationships in the education, health, business, and social =
> > arenas. We do not know if children with cerebral palsy have positive or
>=
> > negative self concepts. Additionally, we do not know if we (health, =
> > educational, and vocational areas) are serving children with cerebral =
> > palsy in the best method possible which would promote their self =
> > concepts or not.
> >
> > My research: I am trying to fill this need by conducting my dissertation
>=
> > research under the supervision of Temple University's IRB. This will be
>=
> > done by first cross validating the Self Description Questionnaire-I =
> > (SDQ-I) which is the most valid and reliable tool for use with =
> > preadolescent children without disabilities. The cross validation will =
> > involve performing data analysis to find the reliability and validity of
>=
> > the tool when it is used with children with CP. If the tool is found =
> > valid and reliable for use with children with CP, then I will look for =
> > associations between self concept, gender, physical impairment, and =
> > educational placement.
> >
> > Parents: I would like parents of fifth and sixth grade children with =
> > spastic diplegic cerebral palsy and average intelligence to contact me =
> > for more information on the research and to schedule a research session
>=
> > if they are interested. Because of geographic limitations, the parents =
> > need to reside in the Mid Atlantic region as I will need to meet with =
> > them and their child at a place that is convenient for all. The research
>=
> > session would take 30-60 minutes to complete and would involve:
> >   1.. introducing the research topic in greater detail=20
> >   2.. signing informed consent and informed assent forms=20
> >   3.. completing a demographic form that has no identifying information
>=
> > (e.g. gender, race, educational placement)=20
> >   4.. interviewing the child using the SDQ-I asking him/her how s/he =
> > feels about himself/herself academically and nonacademically.=20
> >   5.. observing the child move for five minutes to complete a =
> > standardized functional assessment tool=20
> >   6.. giving the child a nominal gift thanking him/her for his/her =
> > participation
> > Results: When the study is complete, I will share a group summary of the
>=
> > results
> >   1.. With the listserv=20
> >   2.. With the parents and children who participated.
> > If you would like more information or are interested in this study, =
> > please contact me.
> >
> > Contact Information:
> > Greta von der Luft
> > email [log in to unmask]<mailto:[log in to unmask]> or =
> > [log in to unmask]<mailto:[log in to unmask]>.
> > phone 610 240 9520=20
> >
> >
> > Thank you so very much for your time and consideration,
> >
> > Greta von der Luft BS, MSPT, MEd, PhD Candidate
> >