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Subject:
From:
Kathy Jo Pink <[log in to unmask]>
Reply To:
St. John's University Cerebral Palsy List
Date:
Sat, 29 Jan 2005 22:13:54 -0600
Content-Type:
text/plain
Parts/Attachments:
text/plain (128 lines)
lol

















At 09:59 AM 1/25/2005, you wrote:
>hey, beth, don't forget to add "don't baby these
>kids."
>lol.
>
>--- Elizabeth Thiers <[log in to unmask]> wrote:
>
> > Hi Debra,
> > I'm Beth an occupational therapist, I hang here for
> > the good jokes.  I don't
> > have CP but, I've been working with people with
> > disabilities (mostly
> > children) for 10 years now, been an OT for 6 years.
> > 1.  Don't baby.
> > 2.  Create experiences for the child to do work as
> > independently as
> > possible.
> > 3.  Get them out of the wheelchairs and down near
> > their peers.  Children w/
> > CP should have a new position every 20 minutes to
> > prevent contractures.
> > They should be in gait trainers, mobile prones,
> > standers, rifton chairs etc.
> > Let the other kids play in the equipment when the
> > child with cp isn't in it.
> > Good experience, bonding happens.
> > 4.  Don't baby.  Unless there are strict doctors
> > orders to do so.
> > 5.  Adapt, adapt, adapt.  Whether it's
> > communications, books, activities
> > whatever.
> > 6.  Assume the child knows more than what you think
> > and start there.  While
> > old statistics state that the majority of children
> > with CP are mentally
> > retarded.  Honestly, most of them have never have
> > good learning experiences,
> > the right set-ups or a chance.
> > 7.  Don't baby.
> > 8.  Do know that many children with CP have
> > processing delays.  It takes
> > them awhile to respond.  This can affect hearing,
> > visual, touch, balance,
> > etc.  These kids should be screened for visual motor
> > deficits, central
> > auditory processing problems, etc.  If gentle
> > insisting won't get this
> > testing done.  Just assume it's a problem and adapt
> > from there.
> > 9.  Adapting the curriculum is an on-going process.
> > I've seen too many
> > times that a child was evaluated, set-up accured and
> > then that was it.  What
> > about putting worksheets on computers?  The company
> > the teachers got the
> > worksheets from are required by law (ADA) to provide
> > alternative methods of
> > accessing there work.  You have to know to ask.
> > 10.  Did I mention don't baby these kids.
> >
> >
> > Beth t the OT
> >
> >
> >
> > -----Original Message-----
> > From: St. John's University Cerebral Palsy List
> > [mailto:[log in to unmask]] On Behalf Of
> > Dufour, Deb RQHR (by way
> > of Deri James <[log in to unmask]>)
> > Sent: Monday, January 24, 2005 9:09 PM
> > To: [log in to unmask]
> > Subject: School Inservice
> >
> > Hi there,
> > I am an occupational therapist doing an inservice
> > next week for school staff
> > (teachers and assistants) on working with children
> > with Cerebral Palsy.  One
> > of the discussion points will be myths or
> > misconceptions about children with
> > Cerebral Palsy.  I have heard of a few from
> > co-workers that school staff
> > have had about children with CP (ie. they can't go
> > outside because the cold
> > air will make them more 'spastic').
> >
> > I was wondering if you have ever experienced
> > difficulties with school staff
> > having misconceptions about your child (ren) with
> > Cerebral Palsy?  Could you
> > share?  I would love some more ideas to go with for
> > the inservice, without
> > having to pull teeth to get them to admit what they
> > believe or think about
> > the children I work with.
> >
> > Thanks for any and all information shared!
> > DEb
> > Debra Dufour
> > Occupational Therapist
> > WRC - Children's Program
> >
>
>
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