Hi Heather,

  You may want to join the CP Parent list - they speak of CP and their children to the exclusion of all else. I am glad here we are a well rounded society. My daughter has Cerebral Palsy and it colors her life - but its not all her life. 

                              Trisha

 
--- "Heather L. Beaudry" <[log in to unmask]>
wrote:

> To All:
>
> I tried to word my request carefully because I
> understand that lists are used for all kinds of
> topics.
>
> Unfortunately the subject lines often do not reflect
> what is in the post and I have often found
> invaluable info in subject lines that seemed
> irrelevant.
>
> I delayed making my request for several days because
> I understand the enormous impact Hurricane Katrina
> has had directly and indirectly.
>
> However, after more than 100 posts, it seemed to me
> not an unreasonable request -- although I know from
> lots of real-life experiences that reasonable
> requests are often not consistent with the needs and
> desires of others.
>
> I too like to play well with others.
>
>
> I am affected by one of my four-year-old twins
> having "mild" diplegic spastic cp.  He can walk with
> a walker and will have surgery in October done by
> Dr. Nuzzo.   I often drift into wondering what life
> will be like for him down the road so I "lurk" on
> this list to hear the experiences of adults who have
> thrived and battled and lived and battled and dealt
> with cp over the years.  The input I read from you
> all is really helpful to me in thinking about ways I
> can be helpful to Dylan in the coming years.
>
> There are two comments I hear frequently from adults
> who are just getting to know Dylan:
>
> "He's so happy."  I think that's because (in
> addition to O.T., P.T. and speech exercises done
> daily) I have made a daily "goal" of laughing,
> playing and just being with Dylan daily.
>
> The other comment is:  "he's so good at getting
> around by himself" in his mainstream daycare, at the
> church playground etc.  That's because it has been
> important to me to encourage Dylan to be as
> independent as possible and to do things for himself
> as much as possible.
>
> So, thanks to all of you for sharing your thoughts
> and concerns and allowing others like me to listen
> in so (hopefully) I can learn what will be helpful
> to my little one (and his brothers) over the coming
> years.
>
> Heather
>
>
> > Heather,
> >   i do understand your feelings. i must say though
> > that you are going to see this on tv, hear it on
> > radio, read it in the papers, recieve request for
> > donations, and many other referances for at least
> > months to come. how are you going to avoid it when
> it
> > comes from every direction? i doubt that this list
> > avoiding the subject would be of much help. i
> simply
> > do not know what to suggest.
> >
> > --- "Heather L. Beaudry"
> <[log in to unmask]>
> > wrote:
> >
> > > To all:
> > >
> > > I too feel devastated by the effects of Hurrican
> > > Katrina on so many poor people.
> > >
> > > Could we please use these lists to stay on
> topic?
> > > There are lots of lists and blogs to address non
> CP
> > > related Katrina issues.
> > >
> > > Thanks, Heather
> > >
> > > -------------- Original message --------------
> > >
> > > > FEMA has got to be addressed when the right
> time
> > > comes
> > > > and that will be soon.
> > > >
> > > > --- Kathy wrote:
> > > >
> > > > >
> > > >
> > >
> >
>
http://www.dailykos.com/storyonly/2005/9/5/105538/7048
> > > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > > >
> > >
> >
>
______________________________________________________
> > > > Click here to donate to the Hurricane Katrina
> > > relief effort.
> > > > http://store.yahoo.com/redcross-donate3/
> > >
> >
> >
> > __________________________________________________
> > Do You Yahoo!?
> > Tired of spam?  Yahoo! Mail has the best spam
> protection around
> > http://mail.yahoo.com
>


__________________________________________________
Do You Yahoo!?
Tired of spam?  Yahoo! Mail has the best spam protection around
http://mail.yahoo.com