you know, i worry about a stroke becouse of blood pressure, but i doubt that my cp symptoms would allow for someone to see the warning signs of a stroke.
--- On Thu, 7/31/08, Kendall D. Corbett <[log in to unmask]> wrote:
> From: Kendall D. Corbett <[log in to unmask]>
> Subject: Re: Dealing with the public if you have CP
> To: [log in to unmask]
> Date: Thursday, July 31, 2008, 5:17 PM
> Linda,
>
> My stroke was pretty significant (middle cerebral artery)
> on the right, and
> resulted in paralysis of the left arm and leg, and weakness
> of my trunk and
> neck and facial muscles. The trunk, and facial muscles
> pretty much
> recovered, but I've still got problems with my neck,
> due in part to needing
> to hold up a size 8 1/4 head. It happened during a brain
> surgery for
> hydrocephalus (water on the brain) which is what caused my
> CP. My dad is a
> (now retired) general surgeon, and so he understood that it
> was something
> that happens sometimes regardless of the best intentions of
> a doctor.
>
> I carried a lot of animosity toward the neurosurgeon until
> about a year and
> a half ago, when I had an MRI to see if there was another
> cause for my
> increased spasticity. My neurologist wanted to rule out
> MS, which he was
> able to do when he saw the artifact of the stroke, and no
> sign of
> demyelination indicating MS. Up to that point, we
> hadn't been able to see
> what caused the stroke, because the technology (or the
> medical need for an
> MRI) wasn't there. My neurologist's partner is a
> neurologist and also an
> attorney, and has testified on both sides of malpractice
> cases in the past.
>
>
> Since I was in high school when I had my stroke, and had
> dressed myself
> since the age of 4 or so, I'm not too hot on the idea
> of accepting help
> there, but if I fall anymore, I can't get up by myself,
> so it's inevitable
> that I'll have to accept help at some point in the not
> too distant future.
> If you want more info, email me off-list!
> On Thu, Jul 31, 2008 at 12:00 PM, Linda Walker
> <[log in to unmask]> wrote:
>
> > Kendall,
> > What caused the stroke? This is very interesting
> exactly what I joined to
> > fine out. We still help Case dress because it is so
> difficult for him and
> > why should he spend so much time at it. OTOH it does
> stretch when he has to
> > manipulate his socks and what not. I have been afraid
> to bring this up with
> > his parents but I am wondering if his heart needs to
> be checked as I am
> > concerned about how strong it is.
> > The therapists want him back in DAFO's which he
> has not worn since his
> > operation. The person who does Anat Baniel thinks the
> DAFO's are not good
> > because they stop his sensory perception on his feet.
> >
> >
> >
> > At 05:38 AM 7/31/2008, you wrote:
> >
> >> Kat,
> >>
> >> I haven't used a "chair cycle" of
> the type you describe, but I do have a
> >> recumbent stationary bike that works pretty well.
> As happened with Mary
> >> Katherine (do you mind if I call you MK?), I also
> had a stroke at 16 on
> >> top
> >> of my CP, which changed my capabilities, but as we
> age, Janet and I are
> >> seeing physical changes that our parents and aunts
> and uncles didn't see
> >> until their 60's. I'm really interested
> in working with NIDRR to
> >> establish
> >> a RERC on aging and disability issues. WIND (The
> UCEDD I work for) has a
> >> really strong tie with Wyoming's Geriatric
> Education Center and UW's
> >> School
> >> of Engineering, so we might be the ideal place to
> get one started.
> >> Re-assessing our capabilities as we age is very
> important. About a year
> >> and
> >> a half ago, Janet decided that there were tasks
> that she (we) needed AB
> >> help
> >> with, and so got qualified for help with dressing
> and light housekeeping.
> >> It's been a Godsend for both of us. My ego is
> almost to the point that
> >> I'll
> >> be willing to accept help with dressing myself, as
> I'm having mornings
> >> when
> >> I'm afraid I'm going to wind up on the
> floor as I put on shoes and socks.
> >>
> >> On Thu, Jul 31, 2008 at 3:00 AM, Kathy
> <[log in to unmask]> wrote:
> >>
> >> > I'm 55 and my capabilities are still
> changing, too. It's not just CP
> >> but
> >> > also aging and a willingness to keep
> assessing what you can do and
> >> pushing
> >> > yourself just a bit more. Most of my friends
> are giong through the same
> >> > thing and they're all AB.
> >> >
> >> > In fact, I've started taking advantage of
> fitness programs at work to
> >> start
> >> > chair yoga and upper-body strength
> exercising. I also plan to buy a
> >> chair
> >> > cycle so I can exercise my legs - has anyone
> used one of these? You can
> >> put
> >> > them on a table and also cycle with your
> hands.
> >> >
> >> > Kat
> >> >
> >> >
> >> > Mary Powers wrote:
> >> >
> >> >> Hello,
> >> >>
> >> >> I can walk but - I tend to have 1 of 2
> reactions. either denial that I
> >> >> have impairments or a pitying 'so
> that's your problem' attitude.
> >> >>
> >> >> that said, some people have responded
> positively when I tell them that
> >> >> there is something neurologically wrong.
> >> >>
> >> >> I have CP but I also had issues with a
> stroke when I was 16, and poor
> >> >> vision, an odd type headache that did not
> go away, and poor
> >> coordination,
> >> >> based on that. I am currently recovering
> from that based on better
> >> visual
> >> >> and motor therapy, which is based on
> sensory integration.
> >> >>
> >> >> however that said, I was diagnosed with
> ataxia before I had the stroke
> >> and
> >> >> I'm in the odd position of not
> knowing what my capabilities are,
> >> really. I'm
> >> >> almost 40 and stil figuring that out.
> >> >>
> >> >> take care,
> >> >>
> >> >> Mary Katherine
> >> >>
> >> >>
> >> >> **************************************
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> >> >>
> >> >> -----------------------
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> >>
> >>
> >>
> >> --
> >>
> >>
> >> Kendall
> >>
> >> An unreasonable man (but my wife says that's
> redundant!)
> >>
> >> The reasonable man adapts himself to the world;
> the unreasonable one
> >> persists in trying to adapt the world to himself.
> Therefore, all progress
> >> depends on the unreasonable man.
> >>
> >> -George Bernard Shaw 1856-1950
> >>
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> >
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>
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's
> redundant!)
>
> The reasonable man adapts himself to the world; the
> unreasonable one
> persists in trying to adapt the world to himself.
> Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
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>
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>
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