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Subject:
From:
ken barber <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Sat, 15 Mar 2008 15:06:37 -0700
Content-Type:
text/plain
Parts/Attachments:
text/plain (135 lines)
Kendall, your dad was a doctor, are the not suppose to
explain and have the patient sign off on procedures
before they do them? 

--- [log in to unmask] wrote:

> You may use my name Kendall.
>  
> As to the don't care and stuff.... Here are a few
> things I think you missed 
> in the tone of what I wrote.
>  
> I wanted my child.... I know know about the pill and
> was 27 years old... she 
> was planed.... not the question.
> The doctors NEVER mentioned that they could and
> would 'save' her.  I thought 
> they were doing a DNC to save my life.  I told my
> mother we would have to try 
> again next year for a baby... and told her on the
> phone because they had told 
> my family I was being watch and the doctors would do
> nothing right away... but 
> then 1 hours later they said off to the OR.
>  
> I have had disabilied friends all my life... blind,
> deaf, no legs and  my 
> mother had a stroke 14 years before the birth of my
> daughter.  My mother and I 
> had many talks about my mother stroke risk and
> quality of life issues.  My 
> family beleives in no tube or machine to extend
> life.  Laying in a bed and looking 
> at the ceiling is not life to us.... just us.  We
> make no choices for other.  
> I am just saying that prople should be the one to
> make choices for thier selfs 
> and families.
>  
> I was never ask about putting my child on a
> ventilator, on experimental 
> equipment, on giving her blood, or doing a spinal
> tap.  The doctors she had when 
> she was first born only wanted the money.  They said
> when they were done "take 
> her home or give her to the state".  They did not
> care what kind of life she 
> would have.She has CP, mental delays, and a feeding
> tube.  
>  
> I care very much for her.  When we changed hospitals
> and were finally told 
> her mostlikely outcome... they said she would die a
> slow death.  She would 
> suffocate over a few days and would casp for her
> last few breaths.  They said she 
> would only know tubes and needles to keep her alive.
>  Hoe could ANY human with 
> a soul WISH that on another human.  I as a mother
> could not.
> BUT we have betten the odds.... we got her home...on
> a ventilator until she 
> was 2 years old.  Now she is 12 and has CP...and is
> mental delayed... NO it is 
> not the end of the world and yes I love her.  BUT
> who will take care of her 
> when I am gone?  Who will change her diaper like it
> should be, who will give her 
> a bath ever day, who will brush her hair, who will
> clip her nails.  Will she 
> be one of those un-lucky ones in a care home that
> gets raped or hurt on a 
> regular basis?  Remember the news coverd a story a
> few months back where some man 
> had raped up to 40 women in homes.  I do not want
> this for my child.  I will 
> not kill her nor let her get sick... she has done
> better they thought she would 
> do because of us (her family) and our hard work. 
> But I am an only child... 
> so when I am gone and my dad is gone she will have
> to be in a home.
>  
>  I know of kids that are 3 and 4 years old and have
> never left the hospital 
> nor been off of machines... this can be the life of
> some premature infants.  To 
> me this is just doctor greed.... not saving a life. 
> If you believe if 
> GOD.... he deicded the life was to end but then man
> or the devil in man made people 
> intervein and 'save' these kids.
>  
> If it was your older family member...they had a
> massive stroke and would 
> never walk, talk, of leave the hospital again....
> would you tell the doctors to 
> put them on machines and tubes?  I have a living
> will not to be on machines and 
> tube.. for myself but was not ask for my child.
>  
> I love her and take good care of her..... but I wish
> someone had ask before 
> shoving machines in her.
> Kristina
> 
> 
> 
> **************It's Tax Time! Get tips, forms, and
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> 
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