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Subject:
From:
Lauren Brigham-Burke <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Mon, 16 Jan 2012 14:25:24 -0500
Content-Type:
text/plain
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so sorry for your traumatic experience



-----Original Message-----
From: James Fee <[log in to unmask]>
To: C-PALSY <[log in to unmask]>
Sent: Mon, Jan 16, 2012 1:20 pm
Subject: Post Operative Care


Hi All,
I am just coming out of a chapter of my life that has been the second 
ost horrendous of
hem all.  On October 11th I had a cervical spinal fusion.  The surgeon 
oticed "considerable"
welling and left the interbation tube in place.  I was in ICU for three 
ays when an attending
ook it upon himself to remove it.  My airway promptly swelled closed 
ompletely, I had to be
einterbated and I bleed from the nose and mouth.  After that I remained 
n a drug induced comma for 14 days.  I finally had to have a trach, and 
 feeding tube placed.  All the while (so
'm told by my wife) the nurses were running around trying to learn how 
o "treat" me for my
erebral palsy and were perturbed that I was on meds. for it, nor was I 
aving therapy in a
ehab facility.  I was supposed to be in the hospital for a total of 4 
ays, I was actually there for 28 days.  I wasn't allowed to eat or 
rink ANYTHING by mouth, because tests "indicated" that I
ould aspirated EVERYTHING.  I was sent home with the feeding tube still 
n me, whereupon I
ook it upon myself to begin eating normally without any dire 
onsequences.  The residual effect of all this is that one of my vocal 
ords is now paralysed and I don't know if I'll ever get it back.
I'm curious to know if anyone else has encountered such ignorant nonsense?
Thanks,
im Fee
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