Linda,

It'd definitely be covered under 504, as it's run through the
University of Colorado Health Sciences Center (at Denver Children's
Hospital).  The thing we're thinking is that if the docs there aren't
comfortable with people "our age," we'd probably be best looking
elsewhere.  They gave us a referral to another Denver Doc, but we
haven't been able to get an appointment with her yet.   so we'll give
her a shot first.

From the research we've done, about the best place in the country for
PM&R (physical medicine and rehab) training in the country for adults
with CP is Wayne State in Detroit.  There's one doc on the UCHSC
faculty in PM&R that trained there, but she does kids now.

On 6/20/07, Linda Walker <[log in to unmask]> wrote:
> I am currently reading Legal Rights of Persons with Disabilities: An
> analysis of Federal law. It is a legal reference book written by
> Bonnie Tucker and Bruce Goldstein. I am NOT an attorney and cannot
> give legal advice and this is for informational purposes only. Well
> you guys probably already know a lot more about this than I do but here it is.
>
> It quotes Alexander v Choate as holding that "Section 504 seeks to
> assure evenhanded treatment and the opportunity for handicapped
> individuals to participate and benefit from programs receiving
> federal assistance."
>
> Further rulings have stated that if you are denied services in a
> federally funded program they must offer an opportunity for an equal
> alternative program.
>
> What it basically says is disabled people cannot be denied equally
> effective health services. This is age discrimination it seems as well.
>
> If there is any chance this clinic receives federal monies I think
> you could quote that in a letter and demand access to this care. The
> case involved medicaid insurance and I don't know if you are using
> that but they I think if this is the best care for Janet then I would
> write and insist on it.
>
>
> At 10:04 AM 6/20/2007, you wrote:
> >My neurologist's nurse has me go over my entire med list every time
> >I'm there.  It's kind of a pain, but that way we're clear about meds
> >and avoid errors.  We're working on the right med/dosage level for my
> >spasticity, so the caution is especially warranted.  He's mentioned a
> >baclofen pump, but I think we'll try oral meds for about another 6
> >months as that'll be about a year.  If I do eventually go with a pump,
> >at least I know of a good surgeon for it! ;-{)}
> >
> >
> >On another note, I mentioned that Janet was to have an appointment
> >with the adult CP clinic in Denver two weeks ago, but they called and
> >said that we are too old!  The age range they're working with
> >presently is 18 - 30, and we're 46.  So, is the theory that people
> >over 30 don't have CP, or is it that people over 30 with CP are part
> >of the geriatric population!?!  It'd be nice if people over 30
> >couldn't have CP, because then all our other ailments could be treated
> >without that "complicating factor!"  I DON'T want to consider that my
> >beautiful bride and I are geriatric cases!
> >
> >
> >On 6/19/07, Kathy Salkin <[log in to unmask]> wrote:
> > > As some of you may recall, I had surgery last week and because they
> > > gave me two meds together, my blood pressure plummeted down to a
> > > really low level.  I went back to the doctor today to have the
> > > surgical staples removed and they asked me what medications I was on
> > > (normal procedure when one goes to a doctor nowadays).  Well she
> > > started to put in Nifedipene and turned and looked at me and said,
> > > "But it says here that you take Procardia!"  I almost fell off my
> > > chair because I had told them when I went there a month and a half
> > > ago that my GP had switched my BP med.
> > >
> > > Oy vey ....!
> > >
> > > (BTW, the staple removals was painless and the implanted ear is doing
> > > fine.  Now all I have to deal with right now is a sinus drainage
> > > problem which the doctor assured me is normal).  I get connected on
> > > July 10 - I can't wait!
> > >
> > > Kat
> > >
> > > -----------------------
> > >
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> > >
> >
> >
> >--
> >
> >
> >Kendall
> >
> >An unreasonable man (but my wife says that's redundant!)
> >
> >The reasonable man adapts himself to the world; the unreasonable one
> >persists in trying to adapt the world to himself. Therefore, all
> >progress depends on the unreasonable man.
> >
> >-George Bernard Shaw 1856-1950
> >
> >-----------------------
> >
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> >
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-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all
progress depends on the unreasonable man.

-George Bernard Shaw 1856-1950

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