Hi Judi-

My name is Anee and I am 20 and have mild to moderate athetoid and ataxic cp.
 While I have no information to offer you on the hip/leg spasticity problems
that your son has been experienceing I can be of some help to you on the
college front.  I have been going to a communoity college here in texas till
a year ago.  Starting in January I will be attending Idaho State Univeristy
in Pocatello Idaho to get a bachlor's in Healthcare Administration.  They
have wonderfull support for people with disabilities.  I also have a list of
some of the "Top Colleges" for people with physical disabilities. If you
would like a coppy of the college list or would like to talk about what Idaho
State University has to offer you may e-mail me privetly at [log in to unmask]

Yours,
Anee Stanford
webmaster of CPIC
http://www.geocities.com/aneecp/CPIC.html

In a message dated 11/17/1999 6:58:12 PM Central Standard Time,
[log in to unmask] writes:

<< Hi!

 My name is Judi Kloper and I live in Oregon, along with my husband Peter
 Owens and three of our five kids.  The older two were adopted as older kids
 from India and now live out of the home; one lives in a group home.

 Our three at home are by birth, from India and from China.

 Our son, Dana, is now 17 1/2 yrs old, and came to us from India at 8 weeks
 old weighing just four pounds on arrival.  He is gorgeous, smart, charming,
 and has severe quad. spastic and athetoid CP.  He's a senior in high school
 and thinking about college.  This is a huge task we're starting on--exploring
 colleges and careers for a kid who is so very physically limited.

 Anyway, Dana has the baclofen pump (for 14 months now) and though he's had
 some improvement, it's not been near as wonderful as we had heard it'd been
 for others.  In fact, he has wanted it out.  He used to get botox injections,
 which helped for a while, but then it seemed that he needed to get injections
 more and more frequently.  He'd gone without them for about a year and just
 recently got some in his left leg cus of the pain he was having, but it only
 worked for a brief time.

 Last June Dana had hip surgery and hamstring release (that was in both legs,
 and just the left hip was operated on.)  While finally he doesn't have the
 hip pain he was having, he now has incredible pain in his left upper thigh.
 Can't move him from any position to another, in fact, just moving his left
 leg an inch or two causes incredible pain for him.  He continues to take
 Klonzapin (Clonipin?) at night, along with one ibuprofen.  The doctors at
 Shriners in Portland haven't come up with a reason for this or a "fix," and
 we are tired of going up there and saying the same thing, yet our son is in
 intense pain and he cannot, nor can we, go on like this.  This is supposed to
 be his senior year, which means good times as well as some learning
 times....but it's really been difficult for him to focus.

 Therefore, we would like to seek a second opinion.  If any of you in the
 Seattle area could recommend some physicians for us to see (orthopedic with
 specialty in CP and a neuroligist with specialty in CP, Baclofen, Botox, etc)
 I sure would appreciate it.

 Thanks so much.
 Judi >>