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Subject:
From:
Tamar Raine <[log in to unmask]>
Reply To:
Cerebral Palsy List <[log in to unmask]>
Date:
Fri, 28 Sep 2007 23:58:44 -0700
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mag
 
~~~~~~~~~~~~
hahaha kat, but have ya been hearing joan baez?

mag
 
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
http://www.zazzle.com/TamarMag*
Tamar Mag Raine
[log in to unmask]
www.cafepress.com/tamarmag
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~



----- Original Message ----
From: Kat <[log in to unmask]>
To: [log in to unmask]
Sent: Friday, September 28, 2007 11:11:53 PM
Subject: Re: Hello again


I can't believe I forgot to mention the most significant event in the past 
year!  *slaps self on head*  I had surgery on June 11th for a cochlear 
implant and was "activated" a month laer; that is, a sound processor was 
connected to the implant.  The first couple of days, I was cringing at every 
sound, even voices, as people all sounded like they were on helium!  I'm 
happy to say things have got much better since then although my brain is 
still learning how to hear all over again!

But one thing has not changed, I'm sorry to say - Bob Dylan stills sounds 
horrible!  *grin*  I  didn't expect him to, anyway. ;)

Kat
----- Original Message ----- 
From: "Cleveland, Kyle E." <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Friday, September 28, 2007 6:56 PM
Subject: Re: Hello again


OK, so how's everyone doing CP-wise?  As for me, I've found Botox.  Anyone 
else have any experience with this stuff?  It's been a godsend for me.  I 
get shot about every 3 months or so and a heck of a lot of stretching in 
between.  I guess we're going to start using some drug called "Myoblock" 
next time around.  Apparently the body doesn't develop the same accomodation 
to the botulin toxin.  I also found a kick-butt orthotist in town that built 
an incredible AFO for me--makes a night and day difference in my gait.

Last year I had an aneurysm pop somewhere in my gut and came pretty close to 
going 'casters up'. The net result was that I lost about 30 pounds in the 
hospital and have managed to keep it off.  That helps enormously.  Every 
pound you lose is one pound less to carry on a battered old frame.

I've also found a new med called Lyrica (pregabalin).  The stuff originally 
was prescribed for folks with diabetic nerve pain, but they are discovering 
it helps with a host of CNS issues.  My pain load has dropped remarkably. 
Lyrica and Zanaflex (tizanidine) at night are the only two CP meds I'm 
taking now.  I'm doing better than I have been in years.

Enough about me, what about everyone else?  Bring me up to date on 
everything.

Kyle

________________________________


---- Original message ----
>Date: Fri, 28 Sep 2007 15:02:18 -0700
>From: ken barber <[log in to unmask]>
>Subject: Re: Hello again
>To: [log in to unmask]
>
>we occasionally talk about cp if we have to.


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