judy knows pretty much what i like and could probably order for me, but generally says, "ask him"
and sometimes adds "he's ordering for me." :-)
--- On Tue, 8/12/08, Kendall D. Corbett <[log in to unmask]> wrote:
> From: Kendall D. Corbett <[log in to unmask]>
> Subject: Re: Dealing with the public if you have CP
> To: [log in to unmask]
> Date: Tuesday, August 12, 2008, 1:37 PM
> Ken,
>
> It's funny sometimes when Janet and I go out shopping
> or to dinner, people
> don't know who to talk to! I look more physically
> disabled, so they'll talk
> to her first, then her non-standard speech becomes
> apparent, and they don't
> know what to do! We do a top ten list (a la Letterman),
> and one of the top
> three items on it is "What does s/he want?"
>
> On Sat, Aug 9, 2008 at 12:28 PM, ken barber
> <[log in to unmask]> wrote:
>
> > yeah, i know i get ignored by some. they view judy as
> my keeper. instead of
> > listening to me they look at her.
> >
> > like in a resturant, they ask her what i want.
> >
> >
> > --- On Wed, 7/30/08, Kathy
> <[log in to unmask]> wrote:
> >
> > > From: Kathy <[log in to unmask]>
> > > Subject: Re: Dealing with the public if you have
> CP
> > > To: [log in to unmask]
> > > Date: Wednesday, July 30, 2008, 9:14 PM
> > > Yeah I know what you mean - I have two degrees
> myself and am
> > > in a
> > > wheelchair, too. Unless I say something witty at
> first,
> > > they ignore me.
> > > It gets old fast, doesn't it?
> > >
> > > Kat
> > >
> > > Bob Segalman wrote:
> > > > Kat
> > > >
> > > > Most people who see me on the street view me
> as
> > > defective. They ignore the
> > > > name plate on the back of my wheelchair the
> says:
> > > >
> > > > "Bob Segalman, Ph.D., Sc.D. (Hon.)
> - the only
> > > American with cerebral
> > > > palsy known to hold two
> doctorates"
> > > >
> > > > - Bob
> > > >
> > > > -----Original Message-----
> > > > From: Cerebral Palsy List
> > > [mailto:[log in to unmask]] On Behalf Of
> > > > Kathy
> > > > Sent: Wednesday, July 30, 2008 4:56 PM
> > > > To: [log in to unmask]
> > > > Subject: Re: Genetic Link to CP??
> > > >
> > > > Well, I don't consider myself a
> > > "defect," either (or else I'd be
> sitting
> > > > at home doing nothing, like a lump) but
> unfortunately
> > > AB people think we
> > > > are. :( Hell, I know plenty of deaf/HOH
> people who
> > > don't want to
> > > > identify themselves as disabled because they
> don't
> > > want to be seen as
> > > > defective - of course that means they
> don't wear
> > > the hearing aids or
> > > > cochlear implant processors that could help
> them so
> > > much.
> > > >
> > > > You really stirred up some hornets with this
> one! ;)
> > > >
> > > > Kat
> > > >
> > > > Linda Macaulay wrote:
> > > >
> > > >> James,
> > > >>
> > > >> Read or don't read what I post to
> the list.
> > > Form your own thoughts
> > > >> and opinions and express them as you
> like. I got
> > > the email and
> > > >> thought it would be worthy of some
> comment....and
> > > apparently I was
> > > >> right ;)
> > > >>
> > > >> For the record, I like who I am and
> certainly
> > > don't think I am
> > > >> DEFECTIVE...One of the reasons the
> article title
> > > made me react so
> > > >> vehemently "No Way!" However,
> I was
> > > intrigued and read on and perhaps
> > > >> there is a grain of salt to a genetic
> connection
> > > that may make
> > > >> conditions such that CP COULD occur.
> Certainly
> > > doubt it would ever be
> > > >> found to be like Down's Syndrome or
> other
> > > genetic diseases.
> > > >>
> > > >> Linda
> > > >>
> > > >> On Jul 30, 2008, at 5:41 PM, James Fee
> wrote:
> > > >>
> > > >>
> > > >>> [log in to unmask] wrote:
> > > >>>
> > > >>>> Hang on, I don't think Linda
> was
> > > calling CP a genetic defect, just
> > > >>>> that CP
> > > >>>> could be caused by genetic
> mutations.
> > > >>>>
> > > >>>>
> > > >>> I don't think she CALLED it
> anything, just
> > > suggested we read an
> > > >>> article about it might be..
> > > >>>
> > > >>> Jim Fee
> > > >>>
> > > >>>> Kat
> > > >>>>
> > > >>>> Original Message:
> > > >>>> -----------------
> > > >>>> From: James Fee
> [log in to unmask]
> > > >>>> Date: Wed, 30 Jul 2008 17:17:51
> -0400
> > > >>>> To: [log in to unmask]
> > > >>>> Subject: Re: Genetic Link to
> CP??
> > > >>>>
> > > >>>>
> > > >>>> I really wish people would get
> this
> > > straight, and I don't know why
> > > >>>> if urks me SO MUCH that they
> don't,
> > > perhaps its a male virility thing.
> > > >>>>
> > > >>>> There is a genetic defect that
> causes a
> > > lower of calcium in the
> > > >>>> bones, children born with this
> defect
> > > break bones wille-nillie...in
> > > >>>> fact some parents have been
> accused on
> > > child abuse because of it.
> > > >>>> But the broken bones ARE NOT a
> genetic
> > > defect the lower calcium is.
> > > >>>>
> > > >>>> ITS THE SAME WITH CP, DAMN IT.
> CP
> > > (simplified to the ridiculous) is
> > > >>>> broken nerve fibers. SOMTIMES
> those
> > > broken nerve fibers ARE CAUSED
> > > >>>> by a genetic defect in the Mom,
> BUT CP IS
> > > NOT a genetic defect.
> > > >>>>
> > > >>>> Okay, I'll go back to my
> corner now.
> > > >>>> Jim Fee
> > > >>>>
> > > >>>> Linda Macaulay wrote:
> > > >>>>
> > > >>>>
> > > >>>>> Here's something I found
> on
> > > BabyCenter -- take a look!
> > > >>>>>
> > > >>>>> Australian study seeks
> genetic roots
> > > of cerebral palsy
> > > >>>>>
> > > >>>>>
> > > >>>>>
> > > >>>>>
> > > >
> > >
> >
> http://www.babycenter.com/204_australian-study-seeks-genetic-roots-of-cerebr
> > > >
> > > >
> > > >>>> al-palsy_5234805.bc
> > > >>>>
> > > >>>>> (If clicking doesn't
> work, simply
> > > cut and paste the link into your
> > > >>>>> Web browser.)
> > > >>>>>
> > > >>>>>
> > > >>>>> When I first saw the title,
> I thought
> > > "No way!", but then in
> > > >>>>> reading it, maybe...
> > > >>>>>
> > > >>>>> Heck, my mom and I both have
> Factor V
> > > Leiden which is a genetic
> > > >>>>> mutation to be more prone to
> blood
> > > clots. When we learned I had it
> > > >>>>> and then mom too, we
> realized that was
> > > probably why she had so many
> > > >>>>> miscarriages and that I came
> > > early...placenta bloodclotting...thus
> > > >>>>> why I must take injections
> of blood
> > > thinner when pregnant and be
> > > >>>>> monitored closely...
> > > >>>>>
> > > >>>>> Any thoughts?
> > > >>>>>
> > > >>>>> Linda
> > > >>>>>
> > > >>>>>
> > > >>>>>
> > >
> > > -----------------------
> > >
> > > To change your mail settings or leave the C-PALSY
> list, go
> > > here:
> > >
> > >
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
> >
> >
> >
> > -----------------------
> >
> > To change your mail settings or leave the C-PALSY
> list, go here:
> >
> >
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
> >
>
>
>
> --
>
>
> Kendall
>
> An unreasonable man (but my wife says that's
> redundant!)
>
> The reasonable man adapts himself to the world; the
> unreasonable one
> persists in trying to adapt the world to himself.
> Therefore, all progress
> depends on the unreasonable man.
>
> -George Bernard Shaw 1856-1950
>
> -----------------------
>
> To change your mail settings or leave the C-PALSY list, go
> here:
>
> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=c-palsy
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