lisa, Does he have an IEP?  Do you know? 

---- Original message ----
>Date: Thu, 14 Aug 2008 08:16:26 -0500
>From: The Stone Family <[log in to unmask]>  
>Subject: Re: Say it Sam XPI  
>To: [log in to unmask]
>
>Long story short.  The school would not provide a device for home use and we
>were insistent on signing (they didn't want to go that route as they had no
>strong folks in this area) as we could not afford a device on our own.  Even
>so, the devise he uses at school is a minimal devise (Go Talk, I believe).
>Thank goodness we have a speech therapist with higher aspirations of what he
>is capable.  He has been able to get some basic communications out, but in
>the last year has really been frustrated that he couldn't get more
>understanding to us. 
>
>We finally spoke to the right person and now have him on Medicaid and MDCP -
>Both have been unbelievable at getting things that we just haven't been able
>to do on our own.  We are now able to get more therapies and we are hoping
>this is going to be huge asset to him.  
>
>His background - He is ambulatory (wheelchair used for malls, theme parks,
>etc), non-verbal, but understands everything you say, stubborn as a mule,
>seizures under control (finally), has a great sense of humor, spoiled
>rotten, and just a really awesome kid. He has not been challenged in the
>educational setting and we are really pushing back on them to educate him.
>I see what you guys are doing and there is no reason he can't be as
>productive with the right education.  
>
>
>
>-----Original Message-----
>From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
>Tamar Raine
>Sent: Thursday, August 14, 2008 1:10 AM
>To: [log in to unmask]
>Subject: Re: Say it Sam XPI
>
>I'm just curious why your son's communication needs haven't been met before=
>? these devices have been around since the 90's?? =0A=A0=0A~~~~~~~~~~~~~~~~=
>~~~~~~~~~~~~~~~~~~=0Ahttp://www.zazzle.com/TamarMag*=0ATamar Mag Raine=0ATa=
>[log in to unmask]
>~~~~~~~~=0A=0A=0A=0A----- Original Message ----=0AFrom: The Stone Family <a=
>[log in to unmask]>=0ATo: [log in to unmask]: Wednesd=
>ay, August 13, 2008 9:56:03 PM=0ASubject: Re: Say it Sam XPI=0A=0AThanks fo=
>r the advice.=A0 At almost 12, he has really had no means of=0Acommunicatin=
>g (some sign language and just being independent) so we are=0Aexcited.=A0 E=
>ncouragement and advice are both welcome!=0A=0A=0A=0A-----Original Message-=
>----=0AFrom: Cerebral Palsy List [mailto:[log in to unmask]] On Beh=
>alf Of=0AAnthony Arnold=0ASent: Wednesday, August 13, 2008 11:19 PM=0ATo: C=
>[log in to unmask]: Re: Say it Sam XPI=0A=0ASpeaking from =
>experience, just allow him to play and explore on his own, I=0Adid that a f=
>ew years back when I changed vocabularies, and it was very=0Aeffective. Whe=
>n he locates whatever he wants, it definitely encourages him=0Ato try more,=
> but you don't want to get on him for incomplete sentences, just=0Aback off=
> until you know he knows where something is. I was once with=0Asomebody who=
> insisted on complete sentences from somebody who barely got=0Atheir device=
> and that was totally stressing and discouraging them =0A=0AThanks, =0AAnth=
>ony Arnold =0ARemote Troubleshooter for PRC =0Awww.anthonyarnold.net=0Aanth=
>[log in to unmask] Message-----=0AFrom: Cerebral P=
>alsy List [mailto:[log in to unmask]] On Behalf Of=0AThe Stone Fami=
>ly=0ASent: Wednesday, August 13, 2008 10:40 PM=0ATo: [log in to unmask]
>.ORG=0ASubject: Say it Sam XPI=0A=0AWill do - the rep is in town on Monday =
>so we will get our training then - in=0Athe meantime, we are starting to pl=
>ay around with it and will be trying to=0Adetermine what will work best for=
> Matt (pictures and speech for each).=A0 He=0Afound tacos today and was ver=
>y proud of himself!=0A=0AWill catch up later next week once I have had a bi=
>t of time with it.=0A=0A=0A=0A-----Original Message-----=0AFrom: Cerebral P=
>alsy List [mailto:[log in to unmask]] On Behalf Of=0AAnthony Arnold=
>=0ASent: Wednesday, August 13, 2008 10:31 PM=0ATo: [log in to unmask]
>RG=0ASubject: Re: I came back=0A=0AYou have to keep us updated on your expe=
>rience with the Sam XPI Tablet, I=0Adon't think I have seen one before, but=
> at conferences I tend to stay away=0Afrom other company's booths. If there=
>'s a device I truly want to look at, I=0Ahave my attendants do my snooping,=
> they know what to ask and how to get=0Acompanies to talk. =0A=0AThanks, =
>=0AAnthony Arnold =0ARemote Troubleshooter for PRC =0Awww.anthonyarnold.net=
>[log in to unmask] Message-----=0AFrom: Cer=
>ebral Palsy List [mailto:[log in to unmask]] On Behalf Of=0AThe Sto=
>ne Family=0ASent: Tuesday, August 12, 2008 8:00 PM=0ATo: [log in to unmask]
>CORS.ORG=0ASubject: Re: I came back=0A=0AIt is a Say It Sam XPI Tablet by W=
>ords Plus.=0A=0A-----Original Message-----=0AFrom: Cerebral Palsy List [mai=
>lto:[log in to unmask]] On Behalf Of=0AMichael H. Collis=0ASent: Tu=
>esday, August 12, 2008 7:09 PM=0ATo: [log in to unmask]: =
>Re: I came back=0A=0ALisa, what type of device is he getting? =0A=0A---- Or=
>iginal message ----=0A>Date: Tue, 12 Aug 2008 17:45:28 -0500=0A>From: The S=
>tone Family <[log in to unmask]>=A0 =0A>Subject: Re: I came back=A0=
> =0A>To: [log in to unmask]>=0A>Thanks - I have enjoyed being he=
>re with this group -=A0 I will definitely=0Asign=0A>up as the device he is =
>getting is so intimidating.=A0 We are just now getting=0A>my son the types =
>of services he has needed - we just were not aware they=0A>were available.=
>=A0 You guys are great!=0A>=0A>=0A>=0A>-----Original Message-----=0A>From: =
>Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of=0A>Ken=
>dall D. Corbett=0A>Sent: Tuesday, August 12, 2008 5:35 PM=0A>To: C-PALSY@LI=
>STSERV.ICORS.ORG=0A>Subject: Re: I came back=0A>=0A>Lisa,=0A>=0A>I really t=
>hink it could be helpful to you.=A0 There are a lot of people with=0A>varyi=
>ng degrees of expertise in AAC, but they are a good group, and welcome=0A>a=
>ll kinds of questions.=A0 I'm not an AAC user, but I feel welcome there.=0A=
>The=0A>place I work is building expertise in AAC, and that's how I got invo=
>lved=0A>=0A>On Tue, Aug 12, 2008 at 4:27 PM, The Stone Family <=0A>allthest=
>[log in to unmask]> wrote:=0A>=0A>> We will be receiving our first communic=
>ation device tomorrow for my 12=0A>year=0A>> old son.=A0 Would this group b=
>e something that could benefit us?=0A>>=0A>> Lisa=0A>>=0A>>=0A>> -----Origi=
>nal Message-----=0A>> From: Cerebral Palsy List [mailto:[log in to unmask]
>ORS.ORG] On Behalf=0AOf=0A>> Kendall D. Corbett=0A>> Sent: Tuesday, August =
>12, 2008 4:54 PM=0A>> To: [log in to unmask]>> Subject: Re: I ca=
>me back=0A>>=0A>> ACOLUG=3DAugmentative Communication OnLine Users Group.=
>=0A>>=0A>> Here's the webpage with the basic info on it.=0A>>=0A>> http://d=
>isabilities.temple.edu/programs/assistive/acolug/=0A>>=0A>> It's a pretty f=
>reewheeling group, like C-Palsy=0A>>=0A>> On Tue, Aug 12, 2008 at 1:42 PM, =
>Michael H. Collis <[log in to unmask]>=0A>> wrote:=0A>>=0A>>=A0 > ACOLUG?=A0 =
>What's that?=0A>> >=0A>> > ---- Original message ----=0A>> > >Date: Tue, 12=
> Aug 2008 11:23:16 -0600=0A>> > >From: "Kendall D. Corbett" <kendall.corbet=
>[log in to unmask]>=0A>> > >Subject: Re: I came back=0A>> > >To: [log in to unmask]
>ICORS.ORG=0A>> > >=0A>> >=A0 >Anthony,=0A>> > >=0A>> > >Welcome back!=A0 I'=
>ve kind of kept up through ACOLUG.=A0 Mike, that might=0A>> > >interest you=
>.=A0 If so, ask Anthony or me about it!=0A>> > >=0A>> > >On Sat, Aug 9, 200=
>8 at 10:52 PM, Anthony Arnold=0A>> > ><[log in to unmask]>wrote:=0A>=
>> > >=0A>> > >> Friends,=0A>> > >>=0A>> > >>=0A>> > >>=0A>> > >> The majori=
>ty of you probably remember me, I'm Anthony Arnold from=0A>> Grand=0A>> > >=
>> Forks North Dakota, the augmentative and alternative communicator=0Awho=
>=0A>> > works=0A>> > >> in technical support at the Prentke Romich Company.=
> I decided to=0Atake=0A>> a=0A>> > >> little break from the list while trav=
>eling, but never did rejoin=0A>until=0A>> > now,=0A>> > >> and I sure have =
>missed everybody. Life is basically the same, I=0A>remain=0A>> > >> living =
>independently and employed with the Prentke Romich Company,=0A>but=0A>> > >=
>> however I was offered a position in the research and development=0A>> > d=
>epartment=0A>> > >> which I start in October, we had to get another guy tra=
>ined before I=0A>> > move=0A>> > >> up. I will sure miss helping people, bu=
>t I'm ready for more=0A>> challenging=0A>> > >> work. I also enjoy hearing =
>my parents tell friends of the family the=0A>> > >> exciting news, and that=
> I know the inners and what components work=0A>and=0A>> > >> which=0A>> > >=
>> don't.=0A>> > >>=0A>> > >>=0A>> > >>=0A>> > >> I'm looking forward to reu=
>nite with everybody!=0A>> > >>=0A>> > >>=0A>> > >>=0A>> > >> Thanks,=0A>> >=
> >> Anthony Arnold=0A>> > >> Remote Troubleshooter for PRC=0A>> > >>=0A>> >=
> >> www.anthonyarnold.net <http://www.anthonyarnold.net/>=0A>> > >> anthony=
>@anthonyarnold.net <mailto:[log in to unmask]>=0A>> > >>=0A>> > >>=0A>>=
> > >>=0A>> > >>=0A>> > >> -----------------------=0A>> > >>=0A>> > >> To ch=
>ange your mail settings or leave the C-PALSY list, go here:=0A>> > >>=0A>> =
>> >> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A>> >=
> >>=0A>> > >=0A>> > >=0A>> > >=0A>> > >--=0A>> > >=0A>> > >=0A>> > >Kendall=
>=0A>> > >=0A>> > >An unreasonable man (but my wife says that's redundant!)=
>=0A>> > >=0A>> > >The reasonable man adapts himself to the world; the unrea=
>sonable one=0A>> > >persists in trying to adapt the world to himself. There=
>fore, all=0A>> progress=0A>> > >depends on the unreasonable man.=0A>> > >=
>=0A>> > >-George Bernard Shaw 1856-1950=0A>> > >=0A>> > >------------------=
>-----=0A>> > >=0A>> > >To change your mail settings or leave the C-PALSY li=
>st, go here:=0A>> > >=0A>> > >http://listserv.icors.org/SCRIPTS/WA-ICORS.EX=
>E?SUBED1=3Dc-palsy=0A>> >=0A>> > -----------------------=0A>> >=0A>> > To c=
>hange your mail settings or leave the C-PALSY list, go here:=0A>> >=0A>> > =
>http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A>> >=0A>>=
>=0A>>=0A>>=0A>> --=0A>>=0A>>=0A>> Kendall=0A>>=0A>> An unreasonable man (bu=
>t my wife says that's redundant!)=0A>>=0A>> The reasonable man adapts himse=
>lf to the world; the unreasonable one=0A>> persists in trying to adapt the =
>world to himself. Therefore, all progress=0A>> depends on the unreasonable =
>man.=0A>>=0A>> -George Bernard Shaw 1856-1950=0A>>=0A>> -------------------=
>----=0A>>=0A>> To change your mail settings or leave the C-PALSY list, go h=
>ere:=0A>>=0A>> http://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=3Dc-pa=
>lsy=0A>>=0A>> -----------------------=0A>>=0A>> To change your mail setting=
>s or leave the C-PALSY list, go here:=0A>>=0A>> http://listserv.icors.org/S=
>CRIPTS/WA-ICORS.EXE?SUBED1=3Dc-palsy=0A>>=0A>=0A>=0A>=0A>-- =0A>=0A>=0A>Ken=
>dall=0A>=0A>An unreasonable man (but my wife says that's redundant!)=0A>=0A=
>>The reasonable man adapts himself to the world; the unreasonable one=0A>pe=
>rsists in trying to adapt the world to himself. Therefore, all progress=0A>=
>depends on the unreasonable man.=0A>=0A>-George Bernard Shaw 1856-1950=0A>=
>=0A>-----------------------=0A>=0A>To change your mail settings or leave th=
>e C-PALSY list, go here:=0A>=0A>http://listserv.icors.org/SCRIPTS/WA-ICORS.=
>EXE?SUBED1=3Dc-palsy=0A>=0A>-----------------------=0A>=0A>To change your m=
>ail settings or leave the C-PALSY list, go here:=0A>=0A>http://listserv.ico=
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>=0A=0ATo change your mail settings or leave the C-PALSY list, go here:=0A=
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>--------------------=0A=0ATo change your mail settings or leave the C-PALSY=
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> list, go here:=0A=0Ahttp://listserv.icors.org/SCRIPTS/WA-ICORS.EXE?SUBED1=
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>
>-----------------------
>
>To change your mail settings or leave the C-PALSY list, go here:
>
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