Welcome Judi!  My name is Denise and I am 35 (YIKES!), married, a great cook,
avid gardener - oh yes, and I have spastic bi/tri plegic cp.  Sorry I can't
be of any help with info for Dana and college, but I could relate to a few
topics you mentioned.

You said (re: Dana) "He used to get botox injections, which helped for a
while, but then it seemed that he needed to get injections more and more
frequently."

I find this is a problem for me when it comes to ANY pharmacological
treatments.  No matter what medication I start with, in the beginning I get
tremendous relief.  Unfortunately, within two weeks my body seems to adjust
and I'm back to square one.  I end up getting bumped up to the higest doses.
I had been on 60 MG of oral baclofen for years.  Over the past few months I
lowered my daily dose to 30 MG a day (10MG X 3).  I find no change with this
reduced amount.  I figured it was better to take less if I felt just as
crummy on the double the dose.  My Neurologist agreeed, but he keeps pushing
me to "look into" the pump.  I did some research, and after careful
consideration, I just don't think it's for me.  I know it does help some
people, but it seems so invasive, high-maintenance, and costly, I figured
best not to pursue that course.

I know this might be a long-shot, but as to your son's pain- has anyone ever
mentioned this phenomena?  As a rule, I always get the generic equivilant for
the name brand.  Normally this is never a problem, BUT once my pharmacy
switched generic brands.  I beleive the drug (this was several years back)
was either a pain killer or tranquilzer (to make those muscles loosen).
Anyway, once I started taking the different generic brand, within several
days I was in distress.  The pain kicked in to over-drive and I stiffened up
quite badly.  I could not understand why as I'd always found some relief with
the medication.  My best-friend's mother (God Bless Her) is a retired RN.
She has been more helpful to me over the years than every doctor I've ever
seen in my lifetime (and that's quite a yard stick!)  - I told her my problem
and she informed me that although the main ingredients in generic drugs are
the same, they often use different agents to bind the material together.  She
worked in a nursing home for years and had seen this happen to her patients.
Some people have trouble breaking down the medication.  If the meds aren't
being properly absorbed in the system, you are not receiving their full
benefit.  If your body has problems with the binding agents, basically the
drug is not getting where it needs to go.  I went back to a different
pharmacy which carried the generic brand I'd originally been taking.  Within
a few days, I began to feel relief.  Also remember it is critical to take the
medication on a set schedule.  Your goal is to keep a constant level of meds
in the system.  Also, when a person is in SEVERE pain, like you describe your
son, ask the doctor about upping the dosage just long enough for  him to get
"on-top" of the pain.  Once the pain is under control, then perhaps a lower
"maintenance" dose would be enough to keep him comfortable.

As for a referral in the Seattle area, I suggest you call the local UCPA
office.  They may know of a qualifed doctor.  I actually found a doc (back in
NJ) who had interest, if not a wealth of expereince, with adult cp patients.
I believe your son is almost out of the pediatric classifications.  Oh, but
my point is, I called several rehab centers and located a doctor that way.
If you run out of options- you might want want to try this as well.  Sorry I
couldn't be more helpful.  Take Care, Be Well: Denise.