Hi Lisa!

Yes, expect him to do as much as he can for himself.
do not limit him. let him know constantly that he will accomplish whatever
he sets out to do, nothing is impossible.

I remember I started going to camp at age 9, and  there were lots of things
I needed help with that year, but my mom noticed that as the years went on,
she had to check off less and less items that I needed help with. So it
became a benchmark every year.

learning to play piano one summer, and I came back to school to show the OT
that I could now type with 8 or nine fingers, and she had said it would be
a waste of money! I showed her! lol...

feldenkrais method therapy has improved my speech greatly! you can find
more by going to www.feldenkrais.com

mag

~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Please ask your Congressperson to vote FOR the MICASSA bill, this
will allow medicaid funds to pay for community supports
instead of isolating the person in a nursing home or institution.
HR 910 is the bill number
Senate version of MiCASSA (S 401).

Oakland Mayor's Commission on People with disabilities
~Tamar Mag Raine~
[log in to unmask]
IM: tamarmag48
Yahoo IM Tamarmag56


> [Original Message]
> From: Lisa Stone <[log in to unmask]>
> To: <[log in to unmask]>
> Date: 4/28/2005 8:26:02 PM
> Subject: New to group - Need your knowledge and experience to rely on
>
> Hi to all - I joined this group last week and have been reading through
your
> emails.  I have an 8 year old CP child.  He is the most wonderful kid in
the
> world.  He is ambulatory, but non verbal and of course, spoiled rotten.
He
> can do some things for himself (feeding) and can help when he wants on
> dressing himself.  We have started insisting that he do more for himself.
>
> We have been asking questions regarding what is in store for him.  You
guys
> seem to have already been there; done that.  What should I be doing for
him
> at this stage in his life?  What can we expect for him?  Doctors have not
> been very forthcoming with any information and we don't really want to go
> there regarding the school systems.  We are still dealing with them and
are
> really having to fight for language skills - we prefer sign language (a
> little difficult with him being high tone, but he is managing with a
little
> bit of adjustment) and they are pushing for communication boards.  I have
> had my concerns, but now I really anxious about what needs to be done for
> him.
>
> After 6 years, we do have the epilepsy under control with medication, but
> have had to fight insurance to provide his meds at a reasonable cost to
us.
>
> Any suggestions, recommendations, help would be greatly appreciated.
>
> Thanks so much
> Have a blessed day,
>
> Lisa Stone