Hi Susan
Often during grade school and high school classes I would need to lean down
and disconnect my leg brace from the shoe because it was so painful. Several
times the teacher asked me what I was doing and I was too embarrassed to
explain. I doubt that any of the able bodied had any clue of what was going
on.
Bob
Bob Segalman, Ph.D., Sc.D. (Hon.), Founder of Speech-to-Speech
President, Speech Communications Assistance by Telephone, Inc.
515 P Street, #403; Sacramento, CA 95814
Call 1-888-877-5302 and then ask for me at 916-448-5517
E-mail: [log in to unmask]
Website: http://www.speechtospeech.org
IM: Mensaman1 (in Yahoo) -- the fastest way to reach me.
-----Original Message-----
From: Cerebral Palsy List [mailto:[log in to unmask]] On Behalf Of
Susan Moskowitz
Sent: Thursday, July 31, 2008 4:18 PM
To: [log in to unmask]
Subject: Re: Dealing with the public if you have CP
Linda, Kat and Mary Katherine,
I know what you mean. I remember sitting through my S A T's and most of
my high school finals with my legs sticking out in front of me, as close to
straight as they ever got.
Susan
----- Original Message -----
From: "Linda Macaulay" <[log in to unmask]>
Newsgroups: bit.listserv.c-palsy
To: <[log in to unmask]>
Sent: Thursday, July 31, 2008 5:37 PM
Subject: Fwd: Dealing with the public if you have CP
> Begin forwarded message:
>
>> From: Linda Macaulay <[log in to unmask]>
>> Date: July 31, 2008 4:14:01 PM EDT
>> To: [log in to unmask]
>> Subject: Re: Dealing with the public if you have CP
>>
>> Kat and Mary Katherine,
>>
>> I, too, also have more rigidness when I am stressed, scared/ nervous, or
>> tired. I recall in elementary school when I was learning to play the
>> clarinet, my legs would get so rigid that I would have them straight out
>> in front of me as I sat on a chair and played during a lesson or in
>> front of other people....talk about nerves getting the better of me!
>>
>> Linda M.
>>
>> On Jul 31, 2008, at 4:08 PM, [log in to unmask] wrote:
>>
>>> MK - A lot of CP'rs have spasticity that fluctuates aoocording to
>>> stress
>>> and moods so you're not alone in that respect. I know that when I'm
>>> tired
>>> and stressed out, I am more rigid in my leg than when I'm more relaxed.
>>> There's a direct link between brain chemistry and how your muscles
>>> react.
>>>
>>> Kat
>>>
>>>
>>> ------------------------------
>>> another thing is, unlike almost everyone with CP, I don't have unusual
>>> muscle tone. I was told that technically I have CP b/c I was premature
>>> and damage to my cerebellum has affected motor skills and other things
>>> when I was born. but unlike almost everyone with CP, I don't have
>>> muscle tone issues except with fluctuating spasticity and weakness when
>>> I am upset.
>>>
>>> so that - almost the vast majority of what people say about CP does not
>>> apply to me. in terms of how they are affected. except that motor
>>> skills are very difficult.
>>>
>>>
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>>
>
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