Ken,

Janet got a pump about a year ago, and it's worked fairly well for her.  She
was getting over-medicated on oral baclofen, but the pump doses work
relatively well.  If the oral was causing nausea or other symptoms for
you, ITB might not be the way to go.

She's also got tendonitis symptoms that sound quite a bit like what you've
described in the past.  She hoped the pump would help some with that, by
reducing the spasticity in her arms, but it hasn't.  Have you found anything
that's helped with your tendonitis?


On 4/8/07, ken barber <[log in to unmask]> wrote:
>
> mag it is great that the baclofen pump worked so well
> for you. i wish i did not get side effects with
> baclofen.
>
> --- Tamar Raine <[log in to unmask]> wrote:
>
> > Dear Friends,
> > I have good news! Many of you know that due to
> > severe pain from severe tightness in my legs, due to
> > several car accidents in the 1990s, I have not been
> > able to walk. Last year I was in even worse shaape
> > as I hurt my hip, and it was so tight it hurt to get
> > in the car because the seat in the car was the wrong
> > angle. So, I was in a lot of pain, and
> > ever-increasing pain medication did little to help.
> > I tried Feldenkrais, Massage, Acupuncture, hot tubs,
> > PT, nothing worked. Xrays finally showed that my hip
> > was so tight that it was pulling everything out of
> > alignment. I was seriously depressed. Then I
> > remembered the spasticty clinic in Berkeley. I was
> > finally able to get in to be evaluated by the PT's,
> > they couldn't do anything with me because everything
> > caused me so much pain. They recomended I try the
> > ITB pump, aka the Baclofen pump. It has an 87
> > percent positive response in folks with CP, 95
> > percent positive response in people with SCI. Before
> > they open you up to put in the
> >  pump, they test it, by injecting Baclofen into the
> > spine. It worked very well for me, so in December
> > 2006, I had the surgery. And now, three months
> > later, I am walking with a walker in PT!  After I
> > get more practice walking on different surfaces,
> > they will give me a walker to take home. On
> > thursday, I walked about 30 feet...
> >
> > So, that is one thing, another thing is I have fixed
> > up my website and have added many new paintings, so,
> > go have a look and let me know what y'all think. Of
> > course, I'd like you to purchase something if you
> > see something you like. My prices are fair, remember
> > that most of the price goes to cafepress who provide
> > the items, print them, ship them, so I usually earn
> > just a couple dollars on most, though not all items.
> > Each design comes on many different items in a range
> > of prices. if you have trouble seeing things, press
> > Control and the Plus symbol on your numeric keypad.
> > this will enlarge the page.  New items I'd like to
> > point out are postage stamps. Yes, these are real
> > U.S. postage stamps with two of my designs on them.
> > Also of note, is my award-winning poem; The Cerebral
> > Palsy Lady.  Also Breast Cancer Awareness
> > tee-shirts, and anti-RFID real i.d. act tee shirts.
> > If I sell 200 breast cancer tees, I'll donate 100.00
> > to Susan Koman foundation. So, tell all your friends
> > to
> >  visit my website!
> > http://www.cafepress.com/tamarmag
> >
> > Love,
> > Tamar
> >
> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> > Tamar Mag Raine
> > [log in to unmask]
> > www.cafepress.com/Tamarmag
> > Lots of new art & designs ~ come and look!
> > ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
> >
> >
> >
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> >
>
>
>
>
>
>
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-- 


Kendall

An unreasonable man (but my wife says that's redundant!)

The reasonable man adapts himself to the world; the unreasonable one
persists in trying to adapt the world to himself. Therefore, all progress
depends on the unreasonable man.

-George Bernard Shaw 1856-1950

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